Dysautonomia (Autonomic Dysfunction) Community
summertime blues
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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summertime blues

i have been having terrrible problems with swelling in my arms and hands with pain.  i seem to always feel bad with changes of weather but especially from winter to summer (terrrible).  i told my family it seemed like this year was earlier and worse but then realized that i posted a similar question in march of 2011.  i notice that most have problems with lower extremities (i swell in my feet also) but i seem to be bothered more in my hands, arms, neck and shoulders.  my doctor keeps telling me to exercise but it makes me feel so bad.  i actually end up in bed which seems so counter productive.  any suggestions or similar problems?
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875426_tn?1325532016
Have the ruled out autoimmune problems?  Done an echocardiogram to rule out congestive heart failure?  Looked at your kidney function?  Sent you to an allergist?
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1649405_tn?1366260626
i have had allergy test and echo along with many more tests.  i see a specialists for POTS every 6 months and they do EKG and blood work everytime i go.  my doctor tells me that i probably am not hydrating enough during the change in weather and that i need to exercise reg. i probably don't drink enough and exercise is hard.  i think i am going to try a recumbent bike and push, push, push the fluids and see if it helps.
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875426_tn?1325532016
Let me know if it does help?
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