This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
i have been having terrrible problems with swelling in my arms and hands with pain. i seem to always feel bad with changes of weather but especially from winter to summer (terrrible). i told my family it seemed like this year was earlier and worse but then realized that i posted a similar question in march of 2011. i notice that most have problems with lower extremities (i swell in my feet also) but i seem to be bothered more in my hands, arms, neck and shoulders. my doctor keeps telling me to exercise but it makes me feel so bad. i actually end up in bed which seems so counter productive. any suggestions or similar problems?
i have had allergy test and echo along with many more tests. i see a specialists for POTS every 6 months and they do EKG and blood work everytime i go. my doctor tells me that i probably am not hydrating enough during the change in weather and that i need to exercise reg. i probably don't drink enough and exercise is hard. i think i am going to try a recumbent bike and push, push, push the fluids and see if it helps.
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