Okay, so I had my tonsils out about 3 years ago because my right tonsil was swollen for over 6 months and my ENT was concerned it was Cancer. So he removed both of them and did biopsy that came back negative.
Since the surgery, I had some tightness on the right side of my neck that I thought was from scar tissue. Then I figured out it was a swollen lymph node. Had a CT scan, and the secretary told me that it showed 2 swollen lymph nodes. My doctor is away until next week and I'm going crazy! I have had these swollen for almost 3 years!! Any idea? Could this be caused from the surgery or the swollen tonsil? I have no other symptoms except for this. The nodes are painless, but uncomfortable.
How awful for you. I have to ask though - did you say the "Secretary" told you you have 2 swollen lymph nodes? If your doctor is allowing his secretary or other assistants to give patients diagnoses, then you really need to find a better doctor!
Well, I walked into the office because I knew he was leaving for vacation. She said he had already left, and I was a little stressed because I then would have to wait for another week. She then told me to hold on and she'd grab my chart. She said what I can tell you is you have two swollen lymph nodes, but the doctor would have to talk to you further about this.
If you have had these nodes for 3 years, I wouldn't be too concerned on just that fact, alone.
I recently had some strange feelings around my neck and was concerned about 2 lymph nodes in back of neck that I have had for years. My mind took over and I was convinced that I actually felt 'activity' in these nodes, too! So, I had a CT scan and to my surprise, it revealed many lymph nodes in neck and soft tissues area. Most were under 1 centimeter but two were about 12 and 14 mm. My ENT doctor still didn't seem alarmed, but gave me two options: do steroid nasal irrigation to see if it 'calms' the nodes down, or do a biopsy of one. I didn't want to hang in limbo, so I chose biopsy. I also have had an enlarged right tonsil for years, but he said they looked fine but recommended me get them out later on.
The biopsy showed nothing- negative. ENT doctor said it must be 'normal' for me, to have very reactive lymph nodes. I can recall having enlarged nodes from a young age, with two never regressing back to normal size. I have to accept that this is normal for me and he reassured me I'm ok.
I hope you get great news so you can relax. Try not to worry.
So you did have the biopsy...How does the scar look? Did you have a plastic surgeon do it, or your ENT? I am supposed to hear from my doctor on Tuesday. I go through moments where I feel like it's nothing, due to the fact that I haven't been sick at all (not even had a cold) since my tonsillectomy 3 years ago. You would think my immune system would be effected by it if it was a life threatening condition. I hope it's good news. Thanks for your comments.
hi guys. I am currently facing the problem of swollen lymph nodes too. last july, I found one swollen lymph node at my neck, and it refused to go down even after doses of antibiotics. had to do a biopsy (family history of NPC), and it turned out to be non-cancerous. however my blood test for EBV turns out positive, so doctor did ask me to go back in like 2 years time to check. just a month ago, another 2 neck lumps appeared. and again, they refused to go down. just went to see a sepcialiast last week, and I am going for CT scan this friday. -worried-
is it possible that I am someone who have very reactive neck lymph nodes that refuse to go down even though I have already recovered from any infection that I might have? i certainly hope so. it doesnt help when persistent enlarged lymph nodes could be a sign of something.
yes, I had the biopsy and they said they found nothing- negative- reactive node. I had it for years too, if I recall correctly. I wonder if all the other ones have been this way for quite some time?
I just had the biopsy on Feb 6th, so it hasn't been long, but the scar isn't looking too bad. It's at the point where it's near my skin tone, with some lighter areas. Also, due to the bad snow/ice in my area, I had to delay getting the stitches out by 3 extra days since even Doctors weren't attempting to drive in the ice! Even though they like to get them out after a week due to more scarring, I don't think a few extra days made too much difference. I can see little marks like where they were, but I was told in time, this scar will fade pretty good. It's in the back of my neck about 1/2" to 1" below my hairline. I have long hair so it's hidden underneath but once in a while I like to just put it up too. If it's bothersome to me I will just put something on it like Dermablend for times when I wear my hair up.
The ENT doc did the surgery.
Hope this helps!
Oh, and like you, I rarely ever get sick. I can't recall the last time I even had a cold. Must be these reactive nodes on guard at all times!
Hi there. It is possible to have persistent lymph nodes enlarged. I was told numerous times that sometimes they don't go back to normal size. Just one day before the 1st appt. at the ENT specialist, I had another lymph node appear on the other side of my neck towards the middle and I freaked. I had been palpating my neck a lot during the days prior and so I may have agitated it. Now, it did go down a lot and it's virtually back to normal. It's very odd, I agree!
I am not trying to sugar-coat everything, but if you are anything like I am (and was), you would go crazy with everything little thing you feel that seems different. Imagine how I felt when the CT scan report said "mutiple" nodes seen. That statement was made twice in the report and there were others besides that!
I do hope things are fine with you and that you can go back to living a peaceful life. I told myself that if the biopsy came back negative, that is the END of the line for me as far as worrying. After this, I have to trust I'm OK now and live my life.
Keep in touch and let us know how you are then. I really think you are going to be fine! :-)
Okay, so the doc called me and said I had only one swollen lymph node and it was 1.4 cm. He said the way it looks, he thinks the chance of it being cancer is small...but there is a chance. He told me to get CBC and Chest Xray and then do a biopsy. He made me feel better, but still scared. Wish me luck.
Yea these all sound a lot like me. I recently over the summer found two swollen lymphs on the side of my neck. I'm an official hyphocondriac- not using the term lightly- so i couldnt eat,sleep, or function. I went to my doctor who said it was probably mono or strep- my mono test came back negative as did my strep test. They told me go home and come back in 6-8 weeks. 8 weeks later they were still there -i had even found more on the other side and back of my neck- i was convinced it was cancer. i went back to my doctor who did a really quick white blood cell test and said they looked fine. they again said i was fine though - they found ANOTHER under my arm. Finally in October i began getting ear aches, jaw pain, shoulder pain, and have a lot of nasal congestion- i went to see an ENT and asked if it could be because i was in a pool alot - he seemed to dismiss that and told me they looked completly reactive but he couldnt place it- it wasnt a sinus infection, they looked reactive but he told me to have a biopsy. the biopsy came back negative in NOV. but i still freak out about them and still have some pain in neck and jaw- my shoulder even swelled up. I feel like lymphs keep popping up everywhere- under my arms- groin area- neck but i dont know what to do,
does anyone else experience symptoms like this?
Yes, I have aches and pains too. Everything started w/ left shoulder and arm pain for me. Then 4 months later my lymph nodes seemed to go crazy! It still makes me wonder why they also found 2 axillary nodes swollen on the CT scan. ENT doc didn't seem worried. At one point, I was even getting odd sensations behind my knee and then my groin, and of course I was scared that lymph nodes in these 2 places would appear, but they didn't. I cannot begin to tell you all the strange sensations I get from time to time. Right now, I am having right lower jaw pain that started about a week after getting a filling replaced. Sometimes I still get the strange neck pain and the shoulder pain is better, but I still don't feel quite like myself.
Everyone keeps telling me it's from getting older, but I just turned 39 and have always felt WONDERFUL until this past August when the shoulder pain started in. In fact, I felt so good that I felt as if I was in my early 20's. I did have my first and only baby in August of 2005 but felt great thereafter until August of 2006. Who knows?
Keep me posted. It's at least helpful and comforting to know I'm not the only one. My email address is ***@**** if you ever want to write me personally.
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