Every so often, usually after a sneeze or a sniff, I get a foul smell in my nose that only I can smell. It's hard to describe. It's a combination of many bad smells put together. It makes me not want to eat, because it's not even worth eating anything for the enjoyment of food. (It would probably be good for someone trying to lose weight). :-) I tried to pinpoint the cause, but I haven't been successful. It's usually gone after a night's sleep. A nap doesn't always do the trick. Note that this is a smell that only I can smell. My wife tells me that she cannot smell anything in my breath. I've seen other posts where folks say that their mucous has an odor, but this is not the case with my condition. It's not associated with any infection, such as a cold viurs. Does anyone have this condition or something similar?
I was trying to do some research on the internet and came across your post. My husband has the SAME THING! He has been trying to figure out what the problem is for years. He's visited a few doctors, and no one seemed to be able to help.
He actually won't let himself sneeze, bend over, or do other things that will 'trigger' this horrible smell/taste. Sometimes when he sleeps he can get rid of it, but not always...
It really interferes with his daily life....like, he won't want to plan a birthday dinner because he's afraid he'll have his 'thing' (as we call it) and he won't be able to eat.
Seriously, though...we've been trying to figure this out for years, and no 'chemosensory disorder' seems to fit the symptoms.. I think one of the biggest things is the fact that the symptoms are not always present, that they have to be set off---as in sneezing, or something like that.
My husband is 27...I'm not sure how old you are, or if age even has anything to do with it...
If you've come across any new information since your post...please let us know!
I'm 49 and I first experienced this when I was around 30 years old. I know exactly what your husband means when he says that he doesn't enjoy eating out when it it happening. You call it the "thing" and I call it the "condition". My doctor has no idea what it is and I've searched the internet for years and have never really found any information. My wife thinks that it could be polyps but we've never had that confirmed. You mentioned birthday dinners which is funny becasue my son't birthday is May 7th and we are celebrating it today (Saturday). I am praying that I don't get it today. I used to be able to take a nap and it would go away... that doesn't work anymore. How often does it happen to your husband. For me, it seems to come in spurts... I'll get it for a few times every few days and then I won't get it for weeks. I used to think that it was from a cold coming on, but it is not related to colds. If you guys find anything on the internet, please let me know. Tell your husband not to let it get him down although it is hard to make folks understand how much it affects everything, most notably eating and enjoying your food.
Alright well, I think I know what’s troubling you and I know where you can find a cure. I suffered from the same symptoms for five years before I found someone who could help me.
You have what my doctor calls cyclic smell distortions. People with this condition smell unpleasant odors that seem to switch on and switch off throughout the day. These bad odors might smell rotten or burned and they tend to occur only in one nostril. In my case, the unpleasant smells started when I sniffed, blew my nose, sneezed or laughed. However they can also manifest for no obvious reason. This disorder progresses over time, but you will probably NOT notice that unpleasant odor directly after you wake up (at least at first).
When these smells first appeared, I got temporary relief by pinching on my nose and holding my breath. A salt water rinse also helped to suppress my symptoms. Eventually though, all my coping strategies stopped working.
Cyclic smell distortions do not happen in your nose. You actually have a sensory seizure disorder, which is caused by a slight chemical imbalance in your brain. Unlike motor seizures, sensory seizures are partial seizures and they don’t manifest in a loss of motor control. Instead they affect how people perceive sounds or images, or in your case, smells. Your seizures are activated when you stimulate the nerves in your nose by laughing or talking.
If this condition goes untreated it will often get worse and worse, until the smell is unremitting. so it’s really serious. It is also extremely rare and there’s only one doctor I’m certain will recognize it since he was the one who identified it. He’s found a means to control this disorder. You can take medication for this and get it completely under control. You’ll get rid of that smell completely. But because you have something so rare, you really have to contact him. He’s a specialist named Doctor Henkin and he’s the head of The Taste and Smell Clinic in Washington DC.
I strongly urge you go to this website:
and call the clinic. It might cost you a plane trip but because this is so rare, the clinic covered a lot of my expenses so they could study this disorder.
Here’s an article from the taste and smell clinic about your condition:
I hope this helps. I remember searching on the web just like you. I found NOTHING. It really got me down. But during those searches I also ran into a lot of people who had the same symptoms and they didn’t know what to do either. So now that I DO know, I’m trying to post stuff around the web so other people might read this and get some help. Anyway.. Please email me if you have any questions good luck
i have the same thing happen,what you are suffering about that bad smell..it started for me,when i was 16 yrs. old,until now,i am 30..but i have an anti bacterial medicine to get rid of this bad smell temporarily..i take it 3 times a day..
I had it years ago,and it drove me crazy! I went to an ENT specialist and he said it was a sinus blockage all the nasal sprays and meds didnt work,and it eventually went away on it own,but every now and then it comes back,so i get a bowl of boiling water and,put a towel over my head and inhale for a couple of minutes,it may help.If all fails go see a doc.:)
I know it's been quite awhile...but I haven't checked this in a long time, and was surprised when I did.
Honestly, we're quite excited about all your information, katkatkatkat4! My husband is going to call a specialist in the morning and ask about the MRS test preformed for seizures....if they don't seem responsive to that, he's going to contact the Taste and Smell clinic.
I do have a question, though.....For my husband, the 'condition' isn't just trigged by blowing his nose, sneezing, laughing ...It's also triggered by certain smells. Cooking smells, for example. I have to be very careful not to burn anything, or even sear something on a higher heat...the smell is almost certain to bring on the 'condition'. Have any of you found this to be the case, also?
Actually, I've never had the condition brought on by a smell. I can't figure out why I can go months without it happening, and then it could happen several times in a week. I've tried to tie it to weather, or something in the environment, but I've never been able to do that. I don't want to jinx myself but I'm in one of those periods when it hasn't happened in a while. I'll let you know if I could figure out anything else. I'm not sold on the siezure theory, but I guess anything is possible.
I was so excited to find this post. I have had this for what seems like forever, probably only 18 years or so, but with as bad as it has gotten it seems like forever. The doctor that I had seen for it said it was because of extreme sinusitis due to a drainage duct being deformed, they went in and cleared it all out and fixed the duct and I had no problems for 6 months. Then wham, it came back, he said it was due to getting a cold and not getting antibiotics for it. I used to be able to lay down on my right side, then that didn't work, then take a short cat nap, then a longer nap and then sleeping overnight. Now of course even that isn't a guarantee that it will go away. I am dealing with it as best as I can but would love to find a way to get rid of it. I am just very glad to know that I am not crazy and this is a real thing. I am going to check into the taste and smell clinic!! Thank you all for posting all this info!! Would love an update on whether anyone has had any luck fixing this condition!!
Just wanted to say that I started having similar symptoms like the ones described by the posters about a week ago. Mine started after I sneezed, went away after I slept and came back again after I sneezed again. Now it seems to be here and started again this morning after I woke up but it was not started by a sneeze. My smell is hard to describe but it is a moldy kind of smell. If it continues and doesn't stop I will need to see a ENT because it can become tough to deal with. Also thanks to katkatkak4 post and the info about Doctor Henkin and The Taste and Smell Clinic in Washington DC.
Your problem is remarkably common on this forum. All I can tell you is some of the things I've noted here, with no guarantees.
1. Some people, including myself, have had a smell that only they can smell. It could smell like dog-poop, old cheese, ammonia, a burning smell, etc. The smell comes on, often, as a result of a cold or sinus infection. Some, not all, of these smells are caused by an anaerobic bacteria thriving in the upper sinuses, and I was able to remove mine with a Flip-Turn Sinus Flush, and many other people have had success with it as well:
The Flip-Turn Sinus Flush is mildly risky, because you have to bend over to do it, preferably in a shower, but you can also do it outside on soft ground, or you can kneel down and lean over a bathtub, or perhaps a plastic basin or tub, with the shower running for steam.
2. Some people had the smell, but were able to get rid of it with long-term antibiotics.
3. Some people had cysts or polyps, which blocked off parts of their sinuses, and created a pocket of infection. One woman, after reading my journal, made an appointment with Dr. Murray Grossan, who invented the Grossan Irrigation Machine, and he removed her cyst and the smell went away.
4. One man did a sinus flush, and some white tofu-like chunks came out. The smell actually got worse for a while, then went back to normal.
5. Many people, particularly the ones who have a strong odor that other people are revolted by, had no change at all after doing a Sinus Flush.
6. One woman found out that the smell was coming from a cracked tooth that her dentist was unable to find, but was discovered by a different dentist.
7. Some smells can come from liver or kidney diseases, (I think it's called ketosis), or from acid reflux in the stomach, or from a brain injury
8. Some smells can come from having a bad mix of bacteria in the intestines, and somehow the smell comes out through the sinuses or lungs. The best solution that I have seen is The Schwarzbein Principle by Dr. Diana Schwarzbein, MD.
9. There is a disease called atrophic rhinitis, which involves the decay of the mucus membranes in the sinuses. I don’t know much about it, that’s what ENTs and Google are for.
10. There are people who have been to multiple ENTs, and the doctors are completely mystified.
11. There may be a possibly be a fungal infection, possibly invasive, that doesn’t flush out with saline, but that’s just a hypothesis.
12. Another hypothesis: Some of the problems may be caused by the same kind of bacteria that cause tonsilloliths, or tonsil stones.
13. Finally, some patients have doctors who have diagnosed a yeast infection in the gut, which cause the smell which comes out through the sinuses or breath, and prescribed Fluconazole 150mg. This looks somewhat promising, but Fluconazole must be administered by a doctor at any rate. Here is the Medhelp thread for that:
Hi, I'm 29 and I have recently experienced a similar thing, my nose gets congested (doctors say its due to hayfever but i get it all year round). As soon as I blow my nose I smell something rotten, the smell is hard to describe but its almost like rotten meat...Anyway I recently tried something new today and eat some natural yoghurt, the smell seemed to go away!
I haven't had the "condition" in quite a while. I've never been able to pinpoint a cause or trigger. I thought it might have been when the air is dry or rapid temperature changes such as when you go from a warm building to the cold outdoors, but I think I all but disproved that as a trigger. I am truly baffled as to what causes it. The seizure theory is kind of unsettling. I get ocular migaines quite often and I wonder if the two could be related. If the smell condition returns with more frequency, I am going to make an appointment with a specialist. Good luck and please let me know if you receive a definitive diagnosis.
I experience the same thing. It started about a year ago and for the longest time I thought maybe it was the water I was drinking at work, or the dust in my office. When the odor is triggered it does smell like mold or dust to me, so my best guess was dust. For a while it was happening maybe 2 to 3 times a week and the odor would last for a full day until I slept. Lately it's been less frequent. It happened yesterday and finally prompted me to do some searching online and that's how I came across this forum. I am relieved to know I'm not crazy and this happens to other people! I've only really told one person about it becasue I honestly just don't know how to describe it to anyone. I too find the seizure theory to be a bit unsettling. I also get migraines frequently and yesterday before the odor was triggered, I was feeling very dizzy, fatigued and nauseous and when I blew my nose the odor came, and the nausea was gone (not sure if there was any connection there or not). Another bizarre change since this started, which could just be a complete coincidence, is that I haven't gotten a cold in over a year. I normally get 2 to 3 colds each year. This is the first year in my life that I haven't had one. It does sort of feel like I have a cold when the condition is triggered, but then it only lasts that day. I haven't read about anyone else having that same effect, but I'm interested if there's any connection. Anyway, I'm in the same boat as you. If this starts happening more frequently I may consider reaching out to the Dr. Henkin that was mentioned earlier. Good luck to you and keep us posted on here if you find more information!
I wonder if there is a connection between the smell condition and the migraines. I have been experiencing the migraines a lot lately, especially the ocular type. I haven't had the smell condition in quite a while. It is very frustrating as you want to let people know how truly bad the condition is and how it makes you feel, but I don't think that people would understand unless they experience the condition themselves. It can really affect your mood as you cannot enjoy eating at all when you have it. Don't let it get you down. The human body is truly a mystery, isn't it?
Have you seen anyone for this? I have the same symptoms and even the occular migraines. It has gotten worse over the years and I am afraid to tell anyone, much less see a doctor. I think part of me fears that it could be something serious and part of me feels they will think I'm crazy. It is so hard to explain especially when there isnt much information out there to back it up. It makes every day living difficult to enjoy things and always worrying that this will come on. If anyone had any definite explanation it would be helpful.
I have the same problem! I was thinking we should compare lift styles - see if there are any common denominators. This is by no means scientific but here goes:
I'm 24 Single, Male, live in the Countryside.
- don't smoke
- do little or no exercise
- drink socially at weekends (not excessively)
- am of normal weight
- have 6 cats
- eat a diet heavy in meat, particularly red
I experience the 'thing' when I blow my nose, sneeze, cough, bend, inhale suddenly - once this has happened it will tend to subside for 12 hours or more. It temporarily ruins my taste and smells disgusting for an hour or so. It makes me self conscious as I wonder if anyone else can smell it - although, one person in this thread said his wife couldn't detect it!
Last year I visited Edinburgh for a week where the problem cleared up. I was exercising regularly (walking miles per day) and stayed in a house with no pets. I drank heavily and ate a lot of crap (maybe that's the way forward ; )
Again, I make no conclusions, but this is my story.
The only common denominator is that I have a cat. Note that I don't think that it is caused or triggered by pets since I can get it when I am not in my house and not near any animals. One time I got it when I was on a cruise ship, and I remember being so disappointed that I would not enjoy the delicious food that day on the ship. I don't eat a lot of red meat and I only drink occasionally. This condition is such a mystery. It comes and goes and there seems to be no obvious connection to anything in the environment. As a matter of fact, I haven't had it in weeks. I even had a very bad head cold about 6 weeks ago and I don't recall getting the condition when I had the cold. Normally, when I do have a cold, the bad smell condition will occur once or twice throughout the duration of the cold. I try to connect it to the weather, the time of year, etc, etc and it just seems to me that it is very random. A sneeze or blowing my nose can bring it on, but only at very infrequent times. I hate it when I get it in the morning, because I know I will be stuck with it the entire day. It sometimes goes away overnight but not always. For folks who have never experienced it, it's difficult to explain to them what it is and how miserable it could make you feel. This condition can actually affect your mood and it's not only about enjoying food.
I'm trying a different deodorant at the moment as I saw a post above that mentioned it. When I was in Edinburgh for the week where it went away I was using a roll-on and not a spray. Today I haven't had it when I usually do - shall continue to monitor the situation!
I agree though, it is unlikely to be caused by pets.
It's been over a week now since I switched to a roll-on anti-perspirant and I can honestly say I've noticed a big improvement. It's reduced the frequency, and also, when it does come on it seems less severe and passes far quicker.
The roll-on has very similar ingredients to the spray I'm using, so I can only imagine it's down to using less deodorant. I tend to spray fairly liberally as opposed to my frugal use with the roll on.
Encouraged by these findings, I am going to try some non-aluminium deodorant next!
That's interesting. I use Menen speedstick deodorant. I haven't used a spray in years. I did get the condition last week. It's been a while since I had it prior to last week. Not sure what brought it on.
I've had this condition since I was about 9 years old. I am 29 now. It used to happen once every six months, until 3 years ago it started coming on pretty much every day. It ruined my mood every time. I've tried going to so many doctors, from general doctors to ENT specialists to neurosurgeons. Nobody knew what it was or how to help.
Finally I have found a solution through homeopathy! The condition has something to do with memory and how the cells in your brain have memorized something wrong and are therefore sending the wrong signals and so this smell gets produced at wrong times.
Since using specific homeopathic products for the last 6 months, my condition is pretty much non-existent.
If anybody would like more information about this, please let me know! It has changed my life.
I've had this for about 4 years now.
It'll go about 2~3 weeks and goes away.
I live in TX and I have bad BAD seasonal allergies from pollens, trees, grass, etc etc.
It's driving my nuts! I have the smell 24/7 until it goes away.
I feel like throwing up and have really bad headache.
Seems like im intoxicated with this awful smell.
I'm going to try neti pot method tonight and see if it helps any.
Any more info to pinpoint this cause would be great!
I called the clinic. They seem like they know more than any of the ENT docs I've seen. But they charge $4100 and don't accept insurance. For that kind of money, they should guarantee a cure. But they don't.
I called the clinic - tasteandsmell.com. They seem to be the real deal. They ask questions over the phone that none of my ENT doctors have asked. But they're expensive - $4100 and they don't take insurance. For that kind of money they should offer a guarantee, but they don't.
I am so thankful to have found this web page. This terrible affliction started almost a year ago - around the time I graduated from college. When I came home last summer(May), the smell was non-stop. There is good information here and I will just jot down some notes about my personal experience with "it."
-It took me many months to realize what caused it...laughing and deep breaths in/out. Sometimes bending down or turning my head too fast will cause it as well.
-I cannot describe the smell. It is simply "annoying." It doesn't smell like anything I've ever smelled on this earth. I am 90% sure most people can smell it. I am too afraid to ask someone for that last 10% of certainty. My brother says he smells s*** whenever I smell "it." So, I know it must smells bad. It doesn't smell like feces to me but I cannot trust my own sense of smell when this is happening. I am unsure if people can smell it before I do or after I think its gone.
-The smell can fill a whole room very quickly. I can leave and walk back in and its there still. I make a trail of it wherever I go.
-I can trigger the smell at any moment I choose(I usually do not do this for the heck of it) just by blowing my nose or taking a deep breath in through my nose. It lingers for hours! I can smell it every single second until I am unconscious in sleep. I don't smell it in the morning upon waking. After brushing my teeth though, I usually have to blow my nose...before I knew this was a trigger, I blew my nose every morning after brushing my teeth and thats how I'd be stuck with it ALL DAY, EVERY SINGLE DAY.
-Unlike most of you, my sense of taste isn't so different when I am smelling "it." However, I do notice that since this has started, I have lost some sensitivity in my ability to smell smells. Also, when I smell "it," the smell will come out from my mouth as well...and most times I can taste a hint of it. It doesn't overpower the taste of my food, but if I am not eating...it's a pretty disgusting taste in my mouth. Nothing, that will ruin my appetite or cravings though.
-My solution(temporary solution) every day, is to use a neti pot. After brushing my teeth and washing my face I really need to clear my nose. I have always been this way. Usage of a neti pot allows me to blow my nose, clearing the drainage, and wash away the smell at the same time. Sometimes the smell will come back...and I just use the neti pot again. Sadly, I cant take the neti pot with me everywhere I go...but this is a big improvement in my condition day to day.
****My last bit of personal info will seem a bit strange...but this is something I have noticed for several months now. The smell also comes when I am with certain people. My aunt, my brother, and my dad. I live with my mom only...I have a sister who doesnt bring this on but I rarley see her. Now, when I am with my aunt, bro, and dad I laugh...alot. My breathing isnt calm because I am usually enjoying myself with them. But it is strange because at work I can laugh and breath according to my mood and excitement...and no smell comes.
*Once my dad came to my job...unexpected. I didnt have the smell all day...until the moment he walked into the pharmacy. I get the smell when I go to his house and when he rides in my car...pretty much anytime we are together.
*Two weeks ago, I went to pick my brother up from college. After a 4-hour ride not having the smell...it came as soon as my brother sat in my car to drive closer to his dorm building. He was home for 10 days for spring break. I had the smell everyday... I also had to bear his "you stink, you smell like s***, did you fart/soil yourself?" remarks.
*Every time I go to my aunts house, the smell comes. It's like clockwork in this case. After about 20-30min, there it is.
Well, I know this was long but thanks for reading. I have been suffering for a long time now and wish I could be treated for this. I even get envious that people around me can blow their nose, laugh loudly, and sigh through their nose with no worries of a terrible odor escaping from their nostrils. I am a 23 year old woman and afraid to get up close and personal with anyone. I feel cursed.
There is one thing that is very different between what you describe and my symptons. The odor that I smell when I get hit with this "condition" (as I like to call it) is that the odor cannot be detected by anyone else around me. At least, I don't think it can. My wife never mentioned to me that my breath had an unusual odor when I had the conditions. Since I first posted about this on this website, I've never been able to determine a cause. It seems to be extremely random. The only change that I noticed over the years is that in the past, a nap usually made the bad smell go away. Over the past year or so, I noticed that a nap does not help me at all. The bad smell usually disappears overnight but sometimes it lingers the next day, but to a lesser degree. Anyway, good luck and thanks for posting. Maybe someday, we will get answers.
I am very happy to have found this page. I've always thought that I am the only one who have that strange disease.
I had it for decades now, and nobody can smell that foul odor in my nose except me.
Every times I took antibiotics, the smell stopped for a few month and came back again. But I don't want to take antibiotics forever so I went to the ENT. He ordered a CT scan of my nose and said that my sinus was blocked. He cleaned my sinuses, but the smell persisted (even stronger and more often than before).
The other day I had allergy and my nose ran, so the doctor gave me FLUTICASONE. It stopped my nose from running, but also stopped the smell. Unfortunately, when I stopped spraying it, the smell comes back a few day later. I sprayed again and the smell went away again. But because it's a corticosteroid, I have to ask the ENT if it has any long term side effect.
I have been smelling skunk every were I go when I ask my children if they smell it they tell me I'm crazy I was sitting at home just me and my boyfriend I started smelling skunk so I asked him do you smell skunk he says no it happens at different times of the day it also happens in public places but every time I ask someone if they smell skunk everyone thinks I'm crazy
Hi Dave, I was both relieved and stunned to find all the replies you've had to your original post. Relieved because I was questioning my sanity, unable to believe nobody else could smell what was casing me so much distress. Stunned to learn that so many people still have no proven, guaranteed way of getting relief.
Sorry, I've got nothing to help, I've only just started suffering, but just wanted to thank you and all who have added their experiences and advice. Let's hope definitive cures soon become available as flying to Washington from England is going to prove a little expensive, not even taking into account the medical costs!
It really is a mystery and there seems to be no rhyme or reason as to when it occurs. The other day, I was talking on the phone and I laughed which somehow started the bad smell condition.I noticed that some episodes are more intense than others and this recent one was very intense. And of course, it happened right before dinner which bothered me since I can't enjoy eating when I have this condition. I've also noticed that there is a small variation in the actual smells that occur, which is really bizarre. To describe what the smell actually smells like is very difficult... I look at it this way... Although it is annoying and there is probably no cure, at least it is not a major health issue in probably most cases. In other words, it could be worse. I think all the people that have this condition simply have to deal with it and I would definitely like to know what causes it. Good luck to you and keep me posted on any future developments.
Yep yep yep....another "what's up with my nose" person here. 50 years old and this has just started in the last year. Luckily, I live in Belgium where doctors are much more likely to spend the time to really look, rather than give me a slip for antibiotics, call it sinusitis and send me on my way.
curious though - Dave - what steps have you taken thus far to figure this out?
Thanks for all the info!!
It's been several years since I mentioned it to my doctor, who by the way, recently retired. I may bring it up to my new doctor. My doctor did mention that he wanted to see me when the condition was actually occuring. There is an article in our local paper on a disease when people lose their sense of smell completely. It's called anosmia. I don't think that is related to my problem, but reading about what folks go through with that disease is very interesting. Anyway, good luck in finding a cure. Please keep me posted.
I'm so glad I found an active thread talking about this problem. I've had this "bad smell" for about 5 years now. In the beginning, it wasn't as active but recently I've been getting it almost every day. Things such as laughing, sneezing, breathing too hard, shooting a gun, talking too loud, blowing my nose, or coughing will trigger this bad smell. I've even noticed that it's only in one nostril; my left nostril. It's weird though, sometimes I forget I have this condition and I can go for weeks to months without smelling anything but right when I remember or think about it, the smell reappears magically. Also, like what most of you have said, this condition does ruin the taste of food and also gives off a really bad taste in my mouth; almost like metallic taste mixed with chemicals...
Recently, I've found a way to quickly fix this "bad smell" condition but it will not cure it. What I basically do is, bend over while I'm on my knees until my head is touching the floor (this position will bring pressure or blood into your head), then I simply pinch my nostrils together as hard as I can (so that air will not travel in), and lastly, while holding my nostrils, I breathe in air as hard as I can; sometimes until my ears pop. I recommend doing this for at least 1 to 3 minutes straight or until the smell is gone. You will feel very lightheaded so be careful when you're getting up.
I hope that everyone on this thread will keep in touch and will post when they find out about a cure or different ways to relieve this condition.
Do you have any updates on this "condition"? I've had it for almost two years now it's driving me insane! It has gradually gotten worse each week. I get it almost every single day now and it lasts from a few minutes to ALL DAY. My "condition" is triggered by sneezing, laughing, inhaling too quickly (gasping), sniffing (especially when I have a runny nose), and blowing my nose. Most of the time, it's from sniffing when my nose starts to run.
I am extremely embarrassed when my nose starts to run because I cannot blow my nose or sniff like "normal" people can. I have to use a tissue and dab the inside of my nostrils. Can you imagine doing that in public all the time? I'm sure it makes people feel uncomfortable and disgusted!
My "condition" also gives me a bad taste in the back of my mouth. I can still taste food, but the taste is slightly altered. I've lost my appetite for food because hot (in temperature) foods always give me a runny nose, which leads to the whole "condition" being triggered again.
I've been doing saline rinses, but it only temporarily helps with the "condition". Like another poster said, I can't carry the Neti Pot around with me everywhere!.. And at the rate I'm getting the "condition" each day, I'll have to do the rinse every couple of hours..
If anyone has found a way to "cure" this, please please please let us know!
i have had this for a couple of years and so pleased i'm not alone. the smell is something akin to rotten flesh but no one else can smell it. when i tell people they react with either disbelief or disgust. my doctor doesn't seem to take it seriously either. how many of you are in the u.k? is there any one here i can go to?
Hey everyone I get this same smell. The smell is so intense I almost vomit. The problem is mine only lasts for a min or two then goes away. It comes and goes without any triggers boom there it is . Mine also is in only in the left nostril. No one else can smell it it comes in different smells like bad breath smell, dog farts you name it I get it. At first my dentist said it was from an abscess tooth near my sinus canal had it pulled was on antibiotics for a while no smell then wham ! Hope this helps glad to know I'm not the only one. Oh yeah my nose doesn't really smell things like flowers or even nasty smells that are present in a room only the ones in my head.
Struggling with this for a couple of months. Read most of your posts and relate to many, but didn't see if anyone is smelling what seems to be cigarette smoke. I feel like I smell it and almost taste all day long. I'm NEVER around smokers so it doesn't make sense. When I'm smelling it, I can hardly concentrate on anything else. It is so strong!
Hello,everyone. Sorry,if my English is a little incomprehensible,I am not a native speaker. I experience something similar,too.I should have went to the doctor a long time ago,because that thing made me self-conscious around people in high school.I am 19 at the moment,and I have had that foul smell in my nose after swallowing for 4 years for sure.And I am almost 100 %sure that people can smell it.I didn't pay much attention to this strange smell,because I thought other people can have it too after swallowing, but recently I have become pretty nervous around people,when in the bus,e.g and other crowded places,knowing that emitting bad smell from your nose after swallowing is not normal,right?? Even if I have just washed my teeth and chew gum I have that bad smell back in my nose, coming either from the throat or the back of my nose(not sure),where I have phlegms.That bad-smell thing is pretty depressing,knowing it's not common,and that it's hard to discuss it even with your closest people.What's worse,I have started to observe people's reactions and each time someone rubs their nose or looks in my direction I feel as if that smell really is noticeable,and that they may think I have gas.I may be exaggerating, it may be just my insecurities,don't know.However, I am going to the doctor as soon as I finish my exams!I hope I am not crazy! Another thing,2 years ago for over 6 months I felt as if there was something literally blocking my nose from the inside,not allowing me to breath normally.However,I didn't have runny nose ,just that blockage and the snoring.Again,I didn't see a doctor.... A male nurse from another forum told me it is possible that I have a chronic infection on either sides of my sinuses.Hope I find out soon, and wish all of you to find a way to solve your problem!
It's been 7 years since your first post. I pray to God that you have found some relief from your symptoms and for what I have come to call "The Smell".
I, sadly, have not. I know that doctors in the US at least try to diagnose this problem and you do have a lot of skilled ENT specialists in your country. I know that we over here in Europe we do not, there is simply not enough research or knowledge about this condition. I know at least one over there who has this phenomena (phantosmia / neural smell disorders) as a research project. Cannot remember his name right now, this doctor has his own clinic in the US. When you think of it it as a quite serious medical condition, or disability actually.
Kind of ironic that when you first posted this was around the time it started for me. Thought I was the only one for a long time and that also drove me crazy.
Remember it quite vividly how it all started in my kitchen on a sunny day. it's like my life took a turn on this day: it is before or after "The Smell". In the beginning I thought it was a "taste" (called it The Taste for a while) and one of the first things I did was actually to completely rinse my nostrils and sinuses with saline solution. To this day, this is actually the best temporary relief. nothing else helps.
My family doctor and then the first ENT I met all recommended me basically the same treatment: anti-biotics and different nasal sprays. Standard diagnosis has always been sinus infection (sinutisis). They seem to ignore the fact that I have had sinuitisis over the years as well from time to time and I know very well that my symptoms exist regardless of any sinus infections. They are not related. I know how a sinus infection feels and this is not it. A sinus smell is also VERY different and other people can often actually smell it too (bacteria)
Nothing has helped so far. I've done a endoscopy of my stomach (as they thought it was a Taste first) and been examined by a rhinoscope in the nostrils. I have taken pills against acid indigestion, even though I told the doctors that I did not have any symptoms or pain from the stomach at all! and last but not least when I was about to give up I demanded an MRI scan of my brain as I knew very well that a tumour could not be ruled out at that stage. Over the years I have always had the feeling that no one took the symptoms seriously.
Anyway the MRI scan did not show anything either, this was in 2011. Guess I have actually come to accept my condition. Which is sad in a way. I know that the last resort i surgery and complete or partial removal of the olfactory bulb = loss of smell. It has always been my firm belief that this is neurological disorder and not related to the nose and / or sinuses!
I also believe this smell is completely neurological (a smell distortion or hallucination) because it is A. very hard to describe and B. when other people try to describe similar symptoms it just seems to be anything that has a foul smell. SO doctors and other people try and "pin point" a smell that does not in fact exist as in mucus/bacteria etc, and so they focus on the wrong thing!. It is just a perception of a smell.
I would say that it is like a mixture of gasoline/something burnt, chemical and and a bit metallic.
Incidentally, this is the first day I felt a foul smell in my nose. I could only relate it to a small accident happened two days back. The car boot door fell down due to heavy find, while I was loading luggage. I had a very small cut, without bleeding. For 30 mins, I had a slight trauma. After an hour I took TT. Today I felt the bad odor in my nose for 3 to 4 times. One of my colleague said that it could be that one of my sinus areas got disturbed and that could be reason. Anyways he has suggested to me to take Homeo Arnica and I should be fine.
I am a 50 year old woman who has just had the onset of this horrible smell. After reading most of these posts, I discovered it is coming from my left nostril. It just came on 2 nights ago for no reason that I can tell.
I became visually impaired (blind in left eye and low vision in right eye) about 11 years ago. I am a type 1 diabetic, have glaucoma, hypothyroidism and nasal allergies. When I became visually impaired, I noticed that as time went on I became more sensitive to smell and sound. My husband is a smoker - outside only - and sometimes I can barely stand the smell that follows him in when he comes back in the house. He has to wash his hands thoroughly after each cigarette or I just about barf. I, too, get fixated on the overpowering smells as they come up.
This smell that is occurring now is sort of a poop - fishy - yeasty smell. It is horrible! And as the day has gone on today, it has only gotten worse.
I was thinking about my father who had what sounds like the same problem. When I was a teenager, back in the early 1980's, he would ask if my mother and I could smell something rotten or nasty. We didn't smell anything. Eventually he went to the doctor and was told he had a sinus infection. Eventually he began to have this really terrible sort of dry cough that would start just out of the blue. After suffering with this for many years, and the sinus infections coming and going, he was tested and was told that he was having mini strokes and that is what was causing the trigger for the coughing. But after more testing he was told that they couldn't quite figure out if the cough triggered the mini seizures or vice versa.
I have never smoked, drank alcohol or done drugs. I do take eye drops for glaucoma, and recently have been put on 2 news one, though they all do basically the same job in your eyes. I do suffer from gastric reflux and take medication for that, but I have been on those meds for years now.
I live in a dry, windy, dusty climate and was diagnosed with Valley Fever and pneumonia back in 2010. I was thinking this might all be a bout of either of those things cropping up again - but after reading all of your posts, I am now wondering if it might be something else.
I have started using colloidal silver nasal spray - a natural antibiotic - and will see if this helps before I go to my doctor. I don't do well on antibiotics due to them causing yeast infections (common for type 1 diabetic women), and also that runs in the family. All I know is that this smell is horrible and makes me a little nauseous right after I blow my nose. Funny thing though, I have not sneezed at all today and I am actually blowing my nose less than usual. I keep boxes of Puffs in every room of my home - literally - due to the smount of nose blowing I usually do. So far, this smell has not affected my sense of taste and I have tasted all of my food normally for the last 2 days. I will update if anything new comes up. Hope all of you are doing well and have found some answers!
you guys most likely have a polyp and on top of that you don't drink enough water. I just finished Medical School and i myself have a nasal polyp. its very hard to see but all the mucus just is lodged behind it.. and imagine how gross it is. honestly polyps in the nose do not have any correlation with cancer and if you get them removed most likely it will grow back. if its a really bad polyp ruining your breathing or causing you this taste i say do it . i think insurance covers it. I had severe congestion and trouble breathing my whole life. everyone i know always tells me how i breathe so loudly.. it took me forever to figure out that it was because i pretty much breathe thru only 1 nostril with ease
Hi there: I have read through the comments and must makes some comments myself. Rsur910: As a graduate from med school, you need to learn to think about what you have read. Most people have had diagnostics done, with no polyps etc. detected. I’m pretty sure drinking more water is not the answer. Personally, I have suffered from this condition for over 25 years. It first happened when I was in my mid twenties, and like Dave L, it seemed to become more frequent as I aged. I used to be able to have a nap and it would go away. Now, it usually goes away after I go to bed and wake up, but sometimes it doesn’t. Like many of you, I asked people see if they could smell something on my breath or when I breathed out my nose, but nothing was ever detected. About six years ago, it went away for about half a year, but I’m not sure why. For me, it’s changed my life and I’m pretty sure not for the better. I avoid many things in life that I know I would not otherwise. Apart from not enjoying food, I avoid contact with people as my ‘triggers’ seem to be anything that gets me excited like laughing. But I could be sitting reading a book and it will occur. Generally, I am not a happy person and I feel fairly helpless because my friends and family don’t understand. Also, smell is so a part of our lives. Someone might say, ‘Oh doesn’t that smell wonderful!” And I can’t be bothered anymore saying that ‘No, it smells horrible!”. Partly b/c I don’t want to destroy their moment of pleasure. For me, I think it is some sort of sulfur smell that gets mixed with all the smells of the day. A bad day for me is if I can’t even drink my cup of coffee in the morning. If the condition is there, it makes coffee disgusting. And if it hits me in the morning, as it usually does now, I have to endure the rest of the day…. And hope tomorrow is better.
I have had this condition for a year now. Started out of the blue and had gotten so much more frequent. I was afraid to tell anyone because I thought they would think I'm crazy. My family can't smell the awful "burning moldy" smell that I get from laughing, sneezing, blowing my nose, etc. On occasion smells trigger it, like cooking smells. I am 21 years old and freaking out after reading this entire blog since 2008. I've been to my family doctor 4 times, two neurologists, and I am currently seeing another neurologist at Jefferson Hospital in Philadelphia. I've gotten MRI's, EEG's, and you name it. I am on migraine and seizure medicine because after the "episodes", as I call them, got worse, I started getting awful migraines. The medicine isn't helping the episodes and my neurologist is still doing testing. Naps and sleep seem to be the only thing to get the smell to go away but after reading everyone's post I guess that won't last long. My next step is Washington DC but I don't even know what to expect. It's a bittersweet moment not to be the only one, at least we're not all crazy right? Hoping for a miracle for everyone!
If ever there is an answer, I'd love to know :( I too have been to ENT's, pricing CT scans, nasal swabs (testing for molds) antibiotics.... The "funk" is what I call it. Present with sneezing, blowing nose, laughing loud... Nobody else smells it. I've had it for 8 months, it's making me crazy!
The smell is caused by bacteria. There are lots of places for bacteria to hide like the sinuses and Eustachian tube. If your lucky to find the right doctor and antibiotic the bacteria and smell will go away at the same time. And I know it's difficult but keep your fingers and sleeves away from your nostrils. That's probably how the bacteria got there in the first place.
Has anybody found any cure yet? I am struggling with the foul odor in my sinuses and constantly worried if people around me can smell it. I am 40 yrs old and had this for about 3 years now. I am scared to ask people if they could smell anything. I am also not in a financial position to pay for expensive medical care. It's soul crushing and with times just want to not live anymore. I am becoming a recluse. It's killing me.
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