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Help, has anyone....

Has any had endoscopic sinus surgery before? Is it worth it for a chronic sinus infection? If any of you has had this procedure I would greatly appreciate the pros and cons of the experience. thanks
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Avatar universal
Sorry you have fatigue. I had CFS for years and that's what my book is about, fatigue.

I still have some but not nearly as bad, and my guess is for both of us it's the allergies that are causing it. If you had a viral illness you could also be dealing with post viral syndrome.

Getting control over your allergies with the shots is going to really improve things for you. I have been having a lot of severe symptoms and post nasal drip so bad that I'm nauseated in the morning. Can't wait to see what the allergist is going to do for me.

There's a lot of things you can do for fatigue, sugar and coffee are both a couple of the worst offenders, along with cigs, alcohol, processed food and lack of exercise. You have to exercise period....let me know if you want any more tips. (make sure to eat a good breakfast of real whole food to start with).
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Avatar universal
I was getting blood tests for other things like viral infections. My dr. thinks that i had a viral infection in my nose, which could be a result of lung problems. So I'm still waiting on that. Either that or it just be allergies.

I was allergic to a lot of airborne things. Like pollens, trees,grass,etc.

I'm taking zyrtec and also using an alubterol inhaler with benadryl at night. I just can't wait for the fatigue to finally leave.
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Avatar universal
I've had the lung distress off and on so I know how bad it can be. I get short of breath and sometimes my airway feels like it's tightening up so much it's painful. I really think all of it for me is due to allergies but I'll find out if I get improvement.

The allergy testing ended up making me feel so sick, full blown allergies, but today I feel a little better. I was positive to a lot of the pollens too I think 11 or 12 of them.

That's great you are recovered from surgery. I would have been scared to death to be honest to undergo it. What blood tests did you have? for allergies?

I'm taking clariton and using flonase and allbuterol and benadryl at night, sleeping better too the last few nights.
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Avatar universal
O wow, thats odd. I was allergic to quite a bit too.

I have not started the allergy shots yet, I'm waiting to for other blood tests to come back. My recovery is going well, I'm fully recovered from surgery, yet I'm still having lung/breathing problems which will hopefully subside soon.
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Avatar universal
I had the first day of allergy testing but was sent home early because I reacted to so many that they said it would be too irritating to go on. they did environmental stuff today like mold and feathers, I'm positive for 12 out of 20, and then tomorrow they will do pollens and trees and food.

I'll see the allergist then again on the 4th. Have you started the allergy shots yet? and how is your recovery going?
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Avatar universal
thanks im glad to hear you are doing better. yeah the inhaler helps my airways relax a little bit better.

yeah being off of them for 5 days be sure to keep your sinus' irrigated with saline to flush out the allergens so it doesn't cause any issues, hopefully. yeah, the allergy shots are definately long term to get you immune to what you are allergic to.

Yeah its pretty tedious, keep me posted.
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Avatar universal
oh that's great to hear, I'm so glad you are doing better....I felt well enough to go out of town for the weekend, and I still don't feel bad now that I'm home so that's a good sign.I do think the inhaler is helping, my lungs and airway don't hurt like they usually do.

but I'm worried about being off antihistamines for 5 days, that's going to be hard. I will let you know how the testing goes, and yeah I heard the allergy shots are a regular thing that you have to get for years. Let me know how it goes.

I'll let you know after next Tues, how my testing went, they said bring a book because it's 3 hours for 2 days and it's really boring.
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Avatar universal
Hey, this is my first time back in the forum in a while. Thanks for your hopes and prayers.

My surgery went fairly well. Most of my symptoms are gone now and now I'm just trying to get my breathing back to normal and get back on my feet. Im still sore around my face and my ENT said it healed really well and he doesnt need to see me again.

Im also getting allergy shots. Its crazy because i have to get these shots over 2 years every week. Tell me if thats how you are getting yours done and how your tests are. Also what kind of test you get. How is the inhaler helping?  

thanks
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Avatar universal
How did your surgery go? I didn't forget about you, in fact thinking about you a lot and I hope/pray that you are feeling better. Let me know.

My infection was gone on the CT scan but i still felt bad, the pain in my face has gone now after a few wees, I saw the allergist yesterday and she gave me an albuterol inhaler...and I'm going to get allergy tests on the 18th and 19th. It's 2 days of testing at a different center, I have to stop the antihistamines 4 days before. Then she said they will give me the allergy shots etc.

Let me know how you are.
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Avatar universal
Yeah, Im going to push for allergy shots after I recover from surgery. My surgery is on thursday so hopefully it works out and nothing bad happens. Thanks for the tips Ill pick some Vitamin D and try it out.

So was your infection completely gone? Or did the ENT feel it was moving out on is own and didnt need any surgical intervention?

Thanks I appreciate the tips for insomnia, I will try them.
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Avatar universal
It has something to do with that the infection has contributed to an obstruction so the pus ball can't drain, and your deviated septum, and allergies are all contributing to that.

Thanks for letting me know I'll stop the Benadryl then the week prior. I went out the last 2 nights, I always leave very early and get kidded about being a lightweight. Last night I went to a high school reunion, I was already sick but the perfume there just floored me, my throat and eyes were just on fire, I was so congested by the time I got home. And I still feel exactly the same in regard to the sinus symptoms except I'm not in excruciating pain.

So I also feel that this is not the end of this for me. I'm going to push for allergy shots because I feel like a complete freak that needs to live in a bubble or something. I can't deal. here is something I wrote for an editorial. I've also been taking 100 mg. of Benydrl at night. The sunlight, exercise, are really important! You should also get some Vitamin D supplements, start with 1000 mg.

Top 5 Sleep Tips

1. Stimulants--Use your bed only for sleep and sex—don’t read or watch TV in bed- and avoid other stimulants that include vigorous exercise, caffeine in beverages and such things as caffeine containing medications like Excedrin, smoking, alcohol, and emotionally charged conversations in the evening. Because individuals have their own thresholds for each of these I always say to find your own cut off time. But the general rule of thumb is to limit your caffeine laced drinks to three cups and before 10 am. Just being aware that all of these are factors is the first step in knowing that you have to find your own limitations/thresholds.

2. Sleep environment-- Keep your sleep environment dark, quiet, comfortable and cool. That includes black out shades, drapes, or even an eye mask. Any light at all during the night will disrupt your circadian clock and your ability to sleep, so keep lighted clocks out of your bedroom (use a clock that requires you to push a button on top to illuminate). Some people like to use a fan for white noise to drown out any other noises, comfort can come from changing your sheets more often and investing in comfortable bed linens and pillows and temperature is so important you need an environment that is around 64-68 degrees. Today there are great pillows like the down alternative gel pillows that are made from polyester that you can you buy 2 King size gel pillows for around 25$. And the deal with changing your sheets often is to reduce itching and feeling hot from things like dust mites. Fewer dust mites can mean a difference in allergy symptoms. And you should change your pillow when you change your toothbrush, because 10% of the weight of a 2 year old pillow is dust mite droppings.

3. Food--Eat your last meal at least three hours before you sleep and avoid sugars for bedtime snacks. A meal raises your blood sugar too high, inhibits sleep, and later when your blood sugar drops too low you might wake up and not be able to fall back asleep. Instead, have a snack that contains the amino acid tryptophan (a natural relaxant), such as a small cup of milk or some turkey, along with a small piece of fruit or other complex carb to help the tryptophan cross the blood-brain barrier. Avoid eating foods that you might be sensitive to because the resulting indigestion or heartburn will keep you awake. Try a small snack of some whole-grain bread, rice, or pasta, yams, a mixed green salad, sautéed vegetables-a small portion of a healthy fat-containing food, such as olive oil, avocado, or nuts or seeds or their oils or butters--herb tea (especially chamomile or peppermint).

4. Schedule--Maintain a regular sleep and wake schedule. Go to bed at the same time every night and wake up at the same time every morning in order to help regulate your body's inner clock. Stick to a similar schedule on weekends and days off. Go to bed within an hour of your usual bedtime every night and if you have problems sleeping, avoid naps because they often interfere with nighttime sleep.

5. Light, exercise, and ritual--Expose yourself to bright light and get at least 15 minutes of sunlight on your skin every day and get plenty of exercise. Work out regularly because exercise makes it easier to fall asleep and sleep more soundly. But sporadic exercise will contribute to muscle pain and discomfort which may keep you awake. And people who suffer from fatigue need to exercise in order to make their bodies physically tired enough to want to sleep. Exercise is different for everyone, a brisk walk can be enough to tire some people, other people need to start out more gradually, and others need very vigorous exercise. Bedtime rituals can include making sure you are not exposed to bright light within a couple of hours before bed, taking a hot bath 90 minutes before bed so that your body temperature can fall, deep breathing exercises, and reading something relaxing, writing out your tomorrow’s to do list so that your mind doesn’t have to worry you will forget something, praying, chanting, or meditation whatever you like to do for spiritual practices.
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Avatar universal
Yeah, no problem. And yes, I was on AB prior to the follow-up CT scan of my sinus'. It showed no improvement so thats why my ENT thought I needed surgery because it didnt go away with treatment for a month.

That makes me curious though, if the AB didnt kill it, that means it not bacterial or it is bacterial and its just pretty resistant toward AB. But yeah, I guess my allergies have got to me. Its really funny because Ive never had a problem with allergies ever until now.

Yes, on my first visit they had me do a test so I would stop taking them so you can see exactly what you are allergic to.

Yeah, I know the feeling, I barely go out because of my fatigue and the symptoms are just killing me that all i can do is rest. When I do go out, its not for long.  Yeah, "chronic" sinusitis is horrid, it doesn't like to leave thats for sure.

O thanks for the insomnia info when you get a chance. Yeah! Usually I can tolerate being sick, Id rather have the FLU then this. There is a lot of things id rather have than this. The lady with chemo can attest to that! Yeah Ive had some bad strep infections but nothing ever like this. Going through this will really make me not slack on sinus health that is for sure!
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Avatar universal
thanks for the rundown, did you take a full 4-6 weeks dose of maximum AB prior to the CT scan? The reason I am asking is that I was informed and also read this has to be done in order to actually determine if you have to have surgery.

I'm really sorry that you have to have it done but I know it does work for the majority of people. They do say that if you have allergies it's a cause of chronic sinusitis.

Another question, did you get the allergy testing on your first visit to the allergist? because if so I will stop the truckloads of antihistamines I'm taking a few days prior to my visit.

I feel a little better but the symptoms are still the same, I went out last night and had to excuse myself at 9 pm to go home, and by that time my eyes were bright red and I was feeling horrid. I am going to push for allergy shots if I am allergic to things that works for so I can end up not taking medication. I have to 86 my walk at a lake sanctuary I go to because I am so over the top with symptoms when I go there. :(

I'll try and think of more insomnia tips for you. In regard to worse diseases.....I've read some pretty funny sort of black humor things online, one guy said he lost a leg got run over by a truck, had severe bone infections and the sinus infection ranked right up there. Another lady said the sinusitis is worse than her chemo and I can attest, I had a year of interferon and this infection was AS BAD and that was hideous beyond words!
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Avatar universal
My CT scan showed a opacified (completely gray and filled with something) maxillary sinus. And the allergy test was quite painless and simple actually. Its where they poke your pack with needles and after about 4 minutes if its a mosquito bit like reaction from the ***** your allergic.

I am taking cetirizine (generic form of Zyrtec). Needless to say, I dont like taking it but I guess i need it. Wow, and yeah, Ive been having a hard time sleeping. It must be that or the post nasal drip/breathing, keeping me awake at night.

they said i should take delsym and some ibuprofen. It really hasnt helped so i went off of it.

O, thanks for the tips Ill be sure to do that. Yeah i never ever drank caffeinated stuff.

Yeah, if you have any other tips for insomnia (a natural way) i would like to hear. Thank you for your prayer I really hope my surgery will improve my symptoms. Yeah, people dont really realize how diffucult this truly is until they experience it. Sure, there are a lot worse diseases out there, but this is pretty bad haha. I havent gotten a lot of sympathy either especially from my work ha I hope i dont get fired.

In all, my experience has lasted for 3 months now. It started off as a hard time breathing (coincidentally during the really bad allergy season may). So I go to the DR and he says I have asthma/allergies. So I start taking meds for that and it offered a little relief. So weeks go by and it gets worse and my DR finally orders a CT scan of my sinus'. IT revealed a blocked sinus. So i started treating it for a while and it seemed to being doing better. Yet, I was still short of breath and whatnot, so i visit an allergist/asthma specialist. From there i found that i was allergic to a lot of things. Put on meds for that then another Ct of sinus' showed no improvement and now im getting surgery next week.
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Avatar universal
Oh I forgot to say I hope that you have someone to help you when you have the surgery. It's also really hard that people don't seem to get the misery isn't it? I have not had really much sympathy at all.
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Avatar universal
You probably said but I don't remember, did you get a CT scan and what did it show? And in regard to your allergies what kind of test was it a blood test? did they offer you allergy shots?

what kind of allergy medication are you taking? I won't take decongestants because I don't like the weird way they make me feel AND they cause insomnia it's not a good trade off for me.

did they say it's ok for you to take benadryl? and what about pain medication? I have been taking both benadryl and tylenol at night and I get up in the middle of the night and take it so that I can continue sleeping.(because my pain and breathing issues are keeping me awake)

Here are some other things that I do, make sure that you have clean sheets and get yourself a gel pillow, they are really cheap and you can buy a new one every 2 months or so to keep dust mites down (13$ at WM). Keep your house cool at night to sleep, I can't deal with anything about 72 degrees. Don't use caffeine, sleep at the same time every night.

I have other tips for insomnia but don't want to be a know it all, let me know if you want any other tips. I am praying for your surgery, and I really would like to know more details about what has led up to it? particularly your CT scan and allergies????
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Avatar universal
Yeah thanks for the update Im glad to hear you dont actually have to get the surgery. Its good hes conservative, my doctor is sort of but he thinks i need it because it didnt go away after a month with treatment.

Funny thing is, is that I have severe allergies also. I think this is partially what lead to my demise!! Its horrible. Upon getting sick, my DR also sent me to an allergist. DId an allergy test to find out i was allergic to a lot airborne so it was leading to my sinus infection. Unfortunately i found that out too late and the damage was already done to my sinus'!

Thanks for checking up, I will definatly keep you posted as I wont have anything to do after the surgery besides recover. Hopefully it works.

Yeah I think you will feel better after getting on meds for allergies. Its helped a little bit for me.

Yeah, I had severe facial pain and headaches. It was pretty intense. HAve a hard time sleeping because of it so that leads to even MORE fatigue. Its a total utter nightmare ha.

By the way, my ENT said it does have some sort of element where he cuts some of the turbinate tissue. So would this be a problem? Or does it have to be the whole turbinate getting cut up leading to ENS? thanks and good luck
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Avatar universal
Oh I came back to say, I still feel SICK and my face and cheekbones are literally on fire. I really don't know what to think except that I did talk to him about how freaked out I was that I was going to end up sicker again and he gave me the nice little placating lecture about not to be paranoid about becoming sick - we all will get sick - I'll get sick etc. I wanted to say, yeah but you are not sick right now with your face on fire but I do have to say, maybe it is just residual pain from the infection and my problem IS now allergies and I have to see the allergist, in THREE weeks, oiy viey!
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Avatar universal
oh wow my sinus infection is gone and he doesn't want to do anything because he says he's very conservative with surgery! that's the good news, the bad news is that he is sending me to an allergist because he said the reason I am still sick is that I have severe allergies.

I'm really sorry that you have to have the surgery. I'll continue to check back to see what's your outcome. I really wish you the best. SERIOUSLY.

I have never been treated or diagnosed with allergies before but I have alienated many women by telling them their perfume is making me sick and the last few years just being around groups of women makes me sick because of all the fragrance. I also have walked around with beet red eyes sneezing all day every day....and all of that for way too long so I guess it's about time I get to the bottom of that.

Thanks for listening to all my griping...
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Avatar universal
Yeah, I feel pretty scared also. I mean I dont know if Im necessarily even equipped to go into surgery. Im fatigued and short of breath, and then after the surgery its going to be worse because i wont be able to breath through nose for 3 days or so.
Yeah Im in extreme facial pan and really harsh coughing i thought i cracked a rib nearly. Also get headaches and am extremely sensitive to light.
Yeah i feel you, i also seem to forget to tell my DR or ENT some of my symptoms because Im sooo worn out and having hard time concentrating. Come back to tell me how your CT scan came up and tell me if your ENT plans surgery. Also if he/she puts you on any breathing medications that will help.

The ENT will probably put you on another course of AB before the surgery  if you need it. Im taking another course until my surgery and then ANOTHER course after! Yeah I feel to sick to even be operated on, its going to suckk needless to say.

Yeah ive been out of work, i feel you. Its pretty unfortunate. I keep getting down on myself since Im just so used to being active working and doing everything i can.

The ENT said very minimal about the procedure. He will discuss it a little later. He better not touch my turbinates! I will tell him to watch out for those i dont wanna end up with ENS. Im going to ask mine and ask yours also and get back to me on it. thanks
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Avatar universal
Sounds all to familiar! Thanks for filling me in, I feel pretty scared about all of this actually.

I feel severely sick with EXTREME pain, harsh coughing etc. I'm so photophobic that driving is difficult and I can't wear sunglasses because it cause such extreme pain on my face and nose.

When I finally got to see the ENT I was so ill I and worn out I couldn't really get into depth about my symptoms--so no on the breathing medications-- but tomorrow I will let him know more of the extent of it but by then he's already seen my CT scan so I imagine he will have some sort of plan.

I'm afraid that the ENT won't continue the ABs and today is my last day, the 2 other times I took them I ended up so much sicker so I can't imagine what would happen giving these bugs a chance to grow again. The thing is that I feel entirely too sick to have surgery but I guess that's the deal isn't it?

I own my company and right now it's a one woman show, so I'm training someone to do what she can and then I accepted a project on the side that I'm trying to deal with and I have a book being released on the 5th that if I get called for interviews and or book signings there is just no way. I can't decide whether to push for something like IV AB until I can deal with all of this or just do what he suggests. I guess it will all pan out somehow.

did you ask about ENS and what the risk is on that? Are they touching your turbinates?



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Avatar universal
well I got done with a months course and my ct scan still showed I had am infecion. So I went to my ent and he said we need to get surgery. Then I went to my primary and put me back on some more amoxicillan. I'm afraid I'll get resistant to whatever it it. My scan showed a opacified maxillary sinus. So I've been short of breath (I'm starting to use an inhaled for the first time ever) and haven't benefited yet. I'm fatigued allday. Been off work school and feeling lousy. So I don't know how much worse it could get I'll just try my hand at this surgery.
So after a month of anitbiotics mine didn't go away I hope yours will be different. Are you on anything for your breathing issue? I hate taking **** for asthma.
Thanks for your support I'll definatly come back while im recovering to tell how it went.
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Avatar universal
Are you still on antibiotics? and are you fearful of the surgery? AND did you get a CT scan? I also have had lung issues, it's from that deadly **** dripping down into your lungs. Do you feel well enough for surgery?

There is no way I could be awake for any sort of probing in that area. I have had this for at least 2 years but was sick prior with something else and thought for a long time I was still recovering.

I realized several months ago that this is not related and the pain was so over the top I couldn't work and was doing things with my eyes closed.

I'm at the end of 28 days of Amoxacillin and it's improved but certainly not great I feel very very sick. Had the CT scan yesterday and will see the ENT on Thurs. No matter what he says I will be freaking out, I can't deal with this much longer.

I await your results anxiously and I hope/pray that all goes well.
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Avatar universal
Yeah my infection has been going on for quite some time (3 months). I get endoscopic surgery in a week (wish me luck). Hopefully ill come back to tell you if i benefited. It ***** because supposedly this triggered lung problems also. Im having such a hard time breathing and i guess its because of this hellish sinus infection. Whatever, I just hope my ENT is dumb and wont screw up and end up with some Empty nose syndrome that i recently foudn out about. Facial pains is pretty intense as well.

Wow, i wouldnt wanna be awake through that!!! WOW haha. I can barely put up with my ENT looking up nose with that tool ha
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