Meniere's Disease - Open forum, what worked for you?

[molldoll26]

My mother was diagnosed with Meniere's disease about one year ago.  Her symptoms are primarily those associated with loss of hearing.  Ironically she was diagnosed and started experiencing the problems/symptoms shortly after having a crown put on one of her molars on the side with the Meniere's.  Has anyone heard of dental work making or creating Meniere's?  Do you think that it is possible it really isn't Meniere's and just something that happened with the dental work?  She has seen two different specialists and both just basically told her to avoid salt and caffenine.  Neither of these things have helped.  Any suggestions?  What has worked for you?  Thanks so much.

[merali]

Hi everyone,

I was diagnosed with meniere's disease when I was 25. Symptoms were vertigo attacks, dizziness, lightheadedness, sounds in my ear.
I managed to overcome it in 2 years time. Now I am 35 and I didn't have any attacks since then. I hope my story can be helpful  or maybe inspiring.

At first I felt very miserable when I heard the things my doctor told me. I felt depressed for 6 months. I was trying several things to get rid of that dizziness feeling but nothing was really helpful at that time.  I hate medicines, I never used them. After wrong attempts of recovery, I decided to get more involved with my dance classes which I was doing as a hobby back then. As I increased  my physical activity through dance classes, I felt much better gradually. I get less and less dizzy, had very few attacks which were completely gone after 2 years time. In the meantime I changed my career completely, I left my ideal of becoming an academic at the university. Instead I chose to become a dancer at a very late age.

Through time, I discovered that the problem was not related to  my ear actually.It was all about my tight  neck and my weak posture. As I improve my posture, learn how to ease those muscles in my neck, I never had any meniere related problems.Today I am perfectly healthy person which I owe to
my dancing practice and techniques that helped me to learn how to loosen my muscles and have an improved posture.

I strongly recommend meniere patients to check with a physiotherapist preferably  with a dancing background, and see a chiropractor who can realign their spine and other remedial methods such as pilates, feldenkrais practice, alexander technique etc. which can awaken the deep muscles never used before.

With some patience, listening to your body, what it really requires can change the whole picture. It definitely worked for me and hope it can work for others.

[LarryB62]

   For me, this horrible disease is clearly related to low blood sugar.
I have had Meniere's Disease for about a year and a half (I was diagnosed by an ENT), and have found that what I eat (and don't eat) makes all the difference.
   I show a lot of the symptoms of hypoglycemia when I have a "dizzy' attack (paleness, sweating, & shaking, along with the vertigo and nausea), and eating protein and carbohydrates helps considerably. I also keep a few  Lifesavers in my pocket whenever I go anywhere, as well as my motion sickness pills.
   Like a lot of other Meniere's sufferers, I've had to give up salty foods. I,ve found out that spicy foods also trigger attacks, even if these foods aren't especially salty.
   I have to eat breakfast every morning (not a big one), even though I'm not
a breakfast person. Skipping meals is not an option.
   I am not saying this will work for you (I am not a health professional), but it is what has worked for me.
Good luck.

[dizzinessy]

How do I order it from Canada.  Is there a website.  

[mikeog]

A quick sum up without reading the whole post would be the words sensitivity to hearing.  I have had Meniere's for about six years now.  It started with attacks about every three weeks with debilitating dizziness and lasting two to three days with violent vomiting the first day, dry heaves the second, and weak on the third.   They came about once a month.  Now, six years later the attacks come about once every two to three months.  The dizziness lasts only a few hours and sometimes vomiting and sometimes just causing me to lay down for a few hours.   I have ringing in my ears including my left ear which is now deaf.  Sometimes so loud it drowns out sounds in my "good" ear, the right one.  I have 30% hearing remaining in my right ear.  I tried many different hearing aids and hearing devices (such as tv ears) and only a few months ago heard about Menieres also causing a sensitivity to sound.   That discovery hit home with me.   As my hearing loss is in the higher range, hearing devices amplified those sounds and often caused me to feel like a arrow was piercing through my head.  It seemed to me the hearing aids brought on attacks.   When I learned about the sensitivity to sound issue, a light went off.  I no longer wear any hearing assists, my attacks are less frequent and less violent.  I think everyone is different, but maybe this news will help someone like me.  

[70ron]

Good Morning,
lost My hearing while talking on the phone and within 5 min.
the hearing was gone in my right ear and 30 min later dizzy and
unstable very hard to walk think or do anything. Saw gp who  thought
it was meniere's and I have app. 31st for test and what ever.
My thought's are with you and good luck
           Ron
Stevens Point WI

[70ron]

thank you for your thoughts, I have only had it for 2 week
and trying to find my way