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1903798_tn?1333908888
New diagnoses to go with my EDS
Yesterday went to the Dr and...
Olecranin bursitis and trochanteric bursitis (hips)
Retrocalcaneal bursitis heels
Costochondritis ribs


Last night went to football game with kids and when they do the stomping on the bleachers I thought wow this really is painful...weird.  Today it is near impossible to walk!
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620923_tn?1452919248

  Hi Mel, I have issues with all those areas, but have not gotten ne of the dx's...how didu, or should I say what testing was done to determine these?

I learned a long time ago not to even try and tap my toe to music, as my whole leg would stiffen up till I was not able to keep the beat, and I looked like a spaz, and my leg would hurt....
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1903798_tn?1333908888
Yeah my whole leg hurt too...really she confirmed by my history and my asking.  Research said it is often diagnosed that way and sometimes X-ray.  She ordered custom orthotics for me too but I may insist on seeing orthopedic dr...
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620923_tn?1452919248

  I had orthodics for in my shoes, could not sit with them in my shoe let alone stand up and walk....I had shin splints and all, growing pains as a kid that I now know was EDS pains...ugh

  I also had issues finding shoes, did u have that problem too, always felt like a rock was in them when it was a strong arch support and they hurt my feet and certain style shoes just would not fit as I have a high instep I think it is called....
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1903798_tn?1333908888
Oh the growing pains were horrible even when I was 20!  I also get a weird nerve pan between my toes in some shoes.
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620923_tn?1452919248

  B4 surgery I would get those electric shocks in my toes, I thought it was static electricity and was the shoe I was trying to wear.. a pair of pigskin boots....lol...every time I put them on I would get zaps...

What I find weird is that my mom had 4 kids and I was the only one dx'd with growing pains.....

  
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1903798_tn?1333908888
I find it weird that the pains were so bad and they said oh growing pains...I had them when I was 20.  My daughters Dr told me growing pains were not normal and to take vitamins....(years ago). Now knowing what we know....
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620923_tn?1452919248

  Oh I know.....knowing what we know now....ugh....I want to know y the Drs then did not know this???? huh?

  What a bunch of u know what....sigh
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