Aa
Yeah!!! Glad to hear u r finally getting answers.....
Very scary. My endo called and after reviewing my records wants to see me next week. I had the mra today...looks like I am on the fast track to answers :)
No, but hopefully others with EDS will pop over here....it is good to have a place to chat about a similar topic.....
and not everyone with EDS has Chiari.....
But 1 in 100 have Chiari when 1 in 1,000 have MS....scary huh?
I found one:) I have an appointment 1/9. I will let you know what I find out. This forum is not as popular as our other hangout lol...chiari.
Thank you Selma:)
Sorry we do not have a list, but u can start with Rheumatoid Drs and ask if they work with EDSers..and if that does not help there is a good one in Baltimore, MD that can and will offer suggestions to help ur local Drs treat u.....Dr Francamano....this is a female Dr that many chiari specialists refer their EDS patients to.
I am hoping to get to see her.
"selma"
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