I was at the rheumatologist yesterday and I wasn't referred to a specialist for tests, the hospital I was at used to have a clinic for EDS but the Professor has now retired, but his team of physio's still work there so I've been referred to them.
Should I have had any tests done to find out what type of EDS I have? I am hypermobile and understand that is the same as EDS type 3. I am back in 4 months to see rheumy.
From what I understand a geneticist does the next set of testing....so, if u r going to see this team of physio's mayb they will do them....??? I would ask them about it since ur Rhuemmy didn't or doesn't seem to know what to do or who to send u to.
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