I was at the rheumatologist yesterday and I wasn't referred to a specialist for tests, the hospital I was at used to have a clinic for EDS but the Professor has now retired, but his team of physio's still work there so I've been referred to them.
Should I have had any tests done to find out what type of EDS I have? I am hypermobile and understand that is the same as EDS type 3. I am back in 4 months to see rheumy.
From what I understand a geneticist does the next set of testing....so, if u r going to see this team of physio's mayb they will do them....??? I would ask them about it since ur Rhuemmy didn't or doesn't seem to know what to do or who to send u to.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.