Hi Kristin and welcome to the EDS group.
SO many of us with Chiari also have EDS and I strongly suggest getting tested and ruling it out b4 u have ne surgery if ne kind as having EDS can affect how we feel and heal post op.
Please review the videos posted above in the top thread-
http://www.medhelp.org/posts/Ehlers-Danlos-Syndrome/-Utube-videos-of-EDS-dr/show/1623053
I was the first to say I did not think I had EDS and testing shows I do.....so, u have had many of the signs far more then I ever did so do get this checked. A good rheumatoid Dr should be able to help and then u go to a geneticist to determine the type of EDS it is.
I could not touch the ground either bcuz with chiari I could not bend over with out losing my balance....lol....
Also many with Chiari and EDS can also have POTS or ICP....we need to rule out all related conditions as symptoms can be similar.