19 with Endo?

[TyDawnnn]

I'm in need of help and guidance. Ever since 2012 when I was 16, the symptoms started. I would like to say when I started my period at 12 it was fairly normal, not too bad of cramps. But when I was 16 my ongoing nightmare began. I got my period and about an hour after the bleeding started, I was seeing dots, couldn't walk, had extreme hot flashes & and shortly after that, began throwing up non stop until I passed out. Now this has become a regular occurance, slowly getting worse, along with extreme bone ache from pelvis all the way to my toes, no sort of over the counter pain reliever has worked. The pain I get is very very sharp & I can feel it in my rectal area also. The pain is very low in my ovaries and very intense. I've been with the same guy for 5 years and get some sharp dull pain after sexual entercourse. There have been times I've been close to calling ambulances because I've felt like I am dying the day I begin my period. I haven't seen a doctor yet because I haven't had health insurance, but I will soon with my full time job. I'm afraid that I could go misdiagnosed, that's why I would like opinions with women that have Endo.. I just know this pain is not normal, especially when it's so bad suicidal thoughts come to mind.

[ipurr2]

You are most welcome! Feel free to reach out to me anytime!

[ipurr2]

so glad that you had success with acupuncture!  I love acupuncture I did it twice a week for 3 years but I still had to have excision surgery because mine was DIE,I still do acupuncture because it does help with pain but doesn't cure endometriosis ...I also eat an extremely clean and healthy diet...in dealing with this disease for so long and trying everything what I stand behind and what research backs is excision surgery by and endometriosis excision specialist and the soon it's done the better chance at a good outcome!
So have you had a laproscopy done? as that is the only way to truly diagnose endometriosis...Anyway, if you have found something that works for you that is wonderful and I wish you well and continued health to never have to walk the path of millions of endo gals have had to walk!

[TyDawnnn]

Thank you so much, I will be seeing an expert in endometriosis as soon as possible. You've helped educate me so much!

[Child_of_Venus]

I've already visited gynecologists and doctors and done tons of tests and I was diagnosed with PCOS and of everything I tried the only thing that helped me was acupuncture and healthy diet.

[ipurr2]

This definitely sounds like endometriosis...I would recommend both of you to see an endometriosis specialist rather then wasting your time and risking your well being in the hands of a gynecologist who spent 15 min in medical school on your extremely challenging disease...so just see a specialist so they can go in and diagnose as well as excise (cut out) the endometriosis if it's found...all in one surgery...rather then having many surgeries...I would also suggest going here to learn all you can about this disease!
http://endopaedia.info/
your stories sound like mine and I ended up in the hands of an unknowlegabel dr. who took years for diagnosis...I actually diagnosed myself...asked for the lap to diagnose or dismiss I had endo...I had it so severe that hysterectomy with ovaries removed was what I was told needed to be done...so no kids, thrown into hormonal hell, then only to have the endometriosis still inside...still in pain and it took years to find a dr. who believed I could have it after a complete hysterectomy with ovaries removed...but I finally did...he was an endometriosis specialist...even after having had the hysterectomy to "cure" my endo because it took so long to get diagnosis and get proper care it took two surgeries by endo specialists to get things at least better...but by this long there is so much damage in my pelvis things will never be right again and I will forever deal with other issues (pelvic organ prolapse, pelvic floor dysfunction) so I will always be in the medical system trying to have some form or normalcy after this disease ravaged my pelvis...so this is why I tell you PLEASE get to a specialist and only allow a specialist to cut on you...they know what they're doing and had I been referred I know my story would be so much better! So only accept the best which is a dr trained in our disease and many say they are when they aren't so always ask them "so if you find disease on my bladder, bowels, ureter what will you do" if they want to leave it or they want to put you on estrogen suppression drugs they are NOT specialist...the ONLY chance at possibly beating this disease it cutting it out...all of it...if they leave a little in there it's like having a tiny piece of sand in your eye...you will still be in pain until it's ALL cut out...which it can only be seen by a true specialist because of their extensive training in the disease...just like we would see an oncologist for cancer not a regular dr. we need an endometriosis excision specialist for this complex disease!

[Child_of_Venus]

I had the same pain when it's my period, i wasn't going out of home the first two days, I couldn't move at all. The pain was down in the area of my ovaries, low back and going down to my toes + headaches, sweating and losing energy. (like fainting)
I've done an acupuncture treatment and since then I have pain only the first day of my period, but I can't compare that pain with the one I had before, it's bearable and also my period regulated (I had PCOS).
I also suggest do not eat cold food and drinks, keep the low back always covered and warm and drink a lot of water, tea and C vitamin. And try acupuncture :)