A little concerned and a little embarrassed. Please help!

[just_a_little_little]

Hi! I'm 15 and was diagnosed with endometriosis at about 12. I was put on continuous birth control so I'd stop having my period and stop missing school because of it. Recently, whenever I masturbate using clitoral stimulation, I bleed down there?? I've never been penetrated by anyone or anything before, my hymen is still intact. But when I do clitoral stimulation I get this discharge about half an hour afterwards that's either dark red or brown. Is this normal? Should I stop?

[Deebee14]

Just an FYI,  when your period stops due to birth control pills,  the blood isn't just sitting in there.  If you are not producing an egg (ovulating)  you will not shed your uterine lining, hence the period stopping.  This was a huge concern for me when I saw my specialist and he suggested a birth control to stop the period (which in turn slows the growth of scar tissue)   In addition   I frequently have old brownish/blackish blood.  It is definitely common for us endo sisters. Good luck!

[ipurr2]

my STRONG advice is to seek an endometriosis specialist! You should not have to have surgery every two years if you see a TRUE specialist and not an obygyn who is no way, shape or form trained to deal with this extensive disease! They are the dr. you go to when you're in need of a regular pap smear or if you are pregnant..endo needs more training then the 15 min they receive in medical school on endometriosis..so not accept this as ok...if you feel something is wrong it is...I allowed the dr.'s to dismiss me and it has put me on such a health roller coaster it's horrifying! So don't be another one of us with a long hard journey of being changed forever because of misinformed dr.'s trying to treat a disease they do not understand...You would not go to your primary dr. for cancer and you should not go to your gyne for endometriosis...I suggest you go here and read current research on this disease and how to treat it for the best possible outcome!
http://endopaedia.info/

[just_a_little_little]

So I went and saw my new OBGYN and she did an ultrasound and said everything looked fine. But it doesn't feel fine. I've been experiencing pain, like always, but I'm not sure if it's a severe pain that my body has become numb to or a small pain that I'm just feeling constantly. She said I could take a break from my continuous birth control it I wanted and I'm considering that. But my old gynecologist said I needed to have a laparoscopic every 2 years, which means I'm due for one in January but this doc said I shouldn't. I guess I'm just conflicted now. Advice?

[ipurr2]

good luck and if she won't refer you to a specialist...find a dr. who will or find the specialist with our help!
Let us know how you are coming along!

[just_a_little_little]

Thank you all so much :) I have an appointment with my new OB/GYN next week and I'll ask her about an Endo specialist.

[ipurr2]

I agree with ticked...you are so young and really need to see an endometriosis specialist. Endo has many variations in appearance and it will most likely not all be recognized by an oby/gyn...You are so young and have such a high chance of beating this disease by seeing a specialist. Please make that happen. I too was on BCP and it did help with pain, but the endo continued to destroy my pelvis...by the time they did actually diagnose rather then medicate my disease it was advanced, deeply infiltrated...so at minimum get your records off to an endometriosis specialist and at least get the process going so you can live your life fully rather then being consumed by this disease!

[ticked]

It is quite possible that the surgeon who did your first surgery did not remove all the endo. Endo looks different the younger you are. Sometimes it is clear which could have been missed. I am glad the pill helps and although it doesn't stop endo from growing it does help elevate pain for many women including myself. I was on the continuous BCP for 8 yrs but I also had a top Endo surgeon operate and that is key in order to live somewhat pain free from this disease.

[red_lippy]

Hi. What do you feel when u have that endo? I mean the symptoms, where does the pain located, hope you'll be okay

[just_a_little_little]

I have had a laparoscopic done and was diagnosed when they removed all of the endo. That was  Febuary of last year and I'm supposed to go get another one next Febuary. And my birth control does stop my period all together because when I was 12 especially, the pain crippled me and I couldn't get out of bed or stop vomiting and I missed 9 days is school each month from my long, heavy periods. And I wouldn't say it gushes. One time, I showered and got dressed and the next time I went to the bathroom there was the dark red/brown blood... My OBGYN said that spotting might happen since I'm taking continuous birth control pills.

[ticked]

Where you surgically diagnosed or did the doctor say that you had endo and out on the BCP? I am not saying you don't but the only way to be diagnosed 100% is through surgery and biopsy.

It is really important for you to see an endo specialist so that you can have the endo removed.

[cdvr1]

When you see the blood is it just a little spotting or is it like a gush? I also have endo & have for many years & I do know that brown & a dark red blood is just old blood that has set up & needs to come out. The birth control they have you on stops your period all together??? I would be very concerned with that for the fact that with endo your lining already isn't coming out all the way & now your just having all that blood sit inside of you. Maybe I'm just confused. I hope this helped some. Good luck!