Advice or opinions on incisional endometriosis chronic pain

[Feeling_defeated79]

I would greatly appreciate any recommendations on how to deal with chronic pain from incisional endometriosis.  In 2007 I had a unnecessary csection.  Unnecessary because I was the last patient of her on call shift and she was tired of waiting for my son to come into this world on mother nature's pace.  My son was never in distress nor was I.  I had dilated to 4.5 cm and wasn't making fast enough progress for her.  She then ordered a csection surgery that would inevitably effect the rest of my life.  2 years later I started having constant debilitating pain on the left of my incision and felt a large mass that was continuously growing. I had surgery and found out it was endometriosis. 3 years later it came back and the pain was worse. For 1 year I ate Ibuprofen that didn't touch the pain and later found out was damaging my liver.  I did this until it started to effect my every day life of a stay at home mom and was effecting the caregiving to my son and was starting to limit me. I then went to ER multiple times then to ob who told me I would deal with this for the rest of my life. I then was referred to a pain management Dr and finally felt Relief from pain and was able to do my regular daily activities and didn't have to be confined. I am greatful for this but now the pain is returning and the dr seems to not really understand my situation and I feel as though I'm going to have to try all different kinds of medication because of this and the dr is not familiar at all with my endometriosis. I have read that incisional endometriosis is rare and often misdiagnosed and mistreated.  If there is anyone who could give me any advice I would be so grateful!!!!! I am 36 with a child who is my reason and I am so scared,frustrated, misunderstood, exhausted
Thank you

[ticked]

You are right this is very rare and only something I heard about a couple of years ago. I was actually a non believer until I spoke to someone in the Endometriosis world for the last 30yrs.

What you need to do is find yourself an Endo surgeon. The disease needs to be properly removed if not it will continue to grow and cause pain.

I can help you with this, please let me know where abouts you live and I can give you some names of surgeons that would know what to do.

Thanks,

[Caryopteris]

Pain meds never cured anything - they are coping drugs that lose their effectiveness, as you are learning.  

If you want to actually take something that could cure your endometriosis, you are going to have to go back to a non-synthetic herb.  You need to buy one that says it's organic and cold pressed.  Amazon lets users rate things, so choose one that gets 5 stars.  

Nigella sativa is an herb.  You can buy it in oil form or in a pill form on line, such as from Amazon.  It has been used since ancient times.  Pharmaceutical companies have tried to put a patent on it but thankfully have not been allowed because it is natural and not synthetic.  Look it up on line to see how people are using it for your condition.  It often involves putting the oil into good quality (real) honey.  Other times you can put it in juice.  

It has a strong herbal taste, but it's kind of like oregano.  Mixed as above or taken as a pill it is easy to take.  Better than pain and disease.  While it is curing your endometriosis it is also dispatching of any cancer cells roaming around, and other inflammation, etc.  It is a wonder herb.  I take it every day.  

Pharmaceutical companies are trying to take our rights to herbs and supplements away.  Get involved politically and let your senators and congress know you don't want your rights taken away by pharmaceutical companies.