Anyone else here been told that Endo. is too severe for hyst.?

[staceyann73]

I have stage 4 endo and have a 7-8cm complex cyst on my ovary.  As I developed the cyst while on lupron, this puts me at risk for the cyst to be cancerous.  Dr, has told me that my endo is so severe, that I have a 50%chance of having to have a gastric bag after surgery (complete hyst.) and doesn't even want to attempt to do a biopsy yet for the same reason.  My cyst grew over 1 cm in 1 week.  They are waiting 6 weeks to re-ultrasound to see if it has grown more - then will make a plan.  I am soooo worried.  My grandfather just died of cancer, my father has 5th stage cancer, its all just too much.  I feel so helpless.  So many tell me that they had a hysto and felt better and why haven't I had one yet - but they are telling me that my case is just toooooo severe.  Anyone out there in my boat???

[staceyann73]

I did get a 2nd opinion - and the recommendation was the same.  The Dr. told me that the first Dr. I went to was the best in the state and if I was to ever have surgery, he would be the only one that could do it - he is the director of Gyn/Oncology with expertise in Robotic Surgery.....just not for me :-(

[teddybears4ever2]

It might be time to get a second opinion.  You should probably see a specialist, it might cost more money, but it would be worth it.

[Lulu0712]

I'm so sorry to hear that you are having so much trouble with your endo! I wish I had answers for you. I hope that someone might be able to help. I just can't believe that the medication caused even more problems. I hope you get some relief & answers very soon! Good luck with everything! Please keep us posted.