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Diagnosed with endometriosis second surgery showed no endometriosis

I was diagnosed with endometriosis when I was 20 years old (3 years ago) they did a laparoscopy and cauterized 2 spots, this helped my pain for 2 weeks but then it started coming back. Ever since I have been on the Nuva ring for about 2 years then visanne when the pain started getting worst. I have been on visanne for one year now and the pain has become unbearable for the last 2 months. My doctor discussed the option of Lupron or another surgery. I decided to go for another laparoscopy. The doctor said she did not find any obvious endometriosis so she didn't cauterize anything. What does this mean? Does endometriosis go away but the pain stays? Or is the pain something else? Why would there be no endometriosis when there was 2 lesions 3 years ago and the pain has only gotten worst.  This is very frustrating for me because my pain is every day and has been for the last 3 years, I'm not having any periods but the pain is getting so much worst. Any comments will be greatly appreciated . Thanks
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136956 tn?1688675680
That is good that you are doing all you can to reduce the pain :) Message me where you are and I can let you know of some good surgeons if you may need them later on.
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Avatar universal
Thanks for the response, I was on visannee during this second surgery, my surgeon is a gynecologist but I don't know of anyone that specializes in endometriosis in my region.  The first surgery she said she saw 2 spots of small endometriosis in the posterior cup de sac and cauterized them both.
The last time I had an ultrasound would have been 3 and a half years ago before my first surgery, as far as i know they said everything looked normal in the ultrasound. I don't have the operative report from the second surgery yet but am seeing my doctor in a few weeks and will get it then.
I have tried a few different hormone methods, bcp, nuvaring and visanne. Changing hormones (especially from nuvaring to visanne) caused extreme pain for a few weeks so Im never excited to change hormones but am willing to do whatever it takes to reduce the amount of pain I'm in.
Helpful - 0
136956 tn?1688675680
I am sorry that you are suffering so much and are going through all of this.

Were you on Visanne during the surgery? Did you come off it months before surgery? Was your surgeon an Endometriosis Specialist?

I am going to explain why I ask these questions. Sometimes to the untrained eye they can't see the different shapes, colours and forms of Endometriosis. Also being young like you are it is possible the Endo is looking clear and if your doctor doesn't know Endo as well as a specialist it could be that he/she missed it.  If excision (cut out) surgery is done it gets to the root so no it will not grow back, but if the only tool used is laser its a possibility it could because it is only getting the surface of the disease.

When is the last time you had an ultrasound done?

Have you thought of possibly changing the hormone method to see if something else will work? sometimes different things work for different people. I was on the regular low dose BCP continuously for 8 yrs but I did try Visanne but I couldn't handle the side effects of progesterone only medication and I became depressed and suicidal so I had to come off it after 3 months. Lupron in total I did it for 9 months within 8 yrs and I don't feel it did anything for me but cause me more depression and throw me back into a Fibro flare.

There are many different things that could be happening right now like Pelvic floor dysfunction, Adenomyosis (however you are a little young but it could still be the case) fibroids, polyps etc.

Do you have the surgical report from the recent and past surgery as well as ultrasound reports?
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