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Diagnostic Laparoscopy
I've been on BCP for almost 5 years which has had my pain under control for about 2 years.
My endo has been misdiagnosed for about 9 years.
December 15th I finally had diagnostic laparoscopy and it was discovered that this is what was causing my pain.
As I stated before, my pain has been very well managed for about 2 years. Since my operation I've been have horrible pain episodes again. Is it possible that the diagnostic laparoscopy aggravated the tissue and this is why I have been having awful pain?
In about 2 days I am starting shots for 6 months that is supposed to significantly help manage the pain.
Also, I was wondering if anyone else feels as if their dying when they have to use the bathroom? When I get endo pain sometimes I feel like I have to use the bathroom immediatly but nothing ever comes out. Could this just be from tissue pressing on my lower intestines or my colon? I know in the operation it was disocevered that the left side of my utereus is actually connected to my lower intestines.
I appreciate any answers or advice since I'm not new to the pain, but new to the diagnosis and all that it can cause. Thanks so much!
My endo has been misdiagnosed for about 9 years.
December 15th I finally had diagnostic laparoscopy and it was discovered that this is what was causing my pain.
As I stated before, my pain has been very well managed for about 2 years. Since my operation I've been have horrible pain episodes again. Is it possible that the diagnostic laparoscopy aggravated the tissue and this is why I have been having awful pain?
In about 2 days I am starting shots for 6 months that is supposed to significantly help manage the pain.
Also, I was wondering if anyone else feels as if their dying when they have to use the bathroom? When I get endo pain sometimes I feel like I have to use the bathroom immediatly but nothing ever comes out. Could this just be from tissue pressing on my lower intestines or my colon? I know in the operation it was disocevered that the left side of my utereus is actually connected to my lower intestines.
I appreciate any answers or advice since I'm not new to the pain, but new to the diagnosis and all that it can cause. Thanks so much!
What I would do is get the pictures and the results from your lap and DO not go on any medication like those injections until they have removed the endo. It makes no sense and this is also lack of knowledge by your doctor to have you take that medication without removing anything because the Lupron or Depo shot is not going to make it disappear and if some of the pain goes away it will only go away for a little bit because you cant stay on that medication very long because prolonged use causes osteoporosis.
I would research as much as you can to find a doctor that will operate on the intestine and that has great knowledge with endo because by the sounds of it, there could be a recto-vaginal nodule that is causing the pain.
Does it hurt when you have sex?
When did the pain start?
A day or two before you period can you have a BM with ease then when the period comes you cant go and the pain is more intense until you can, and even when you do go the pain still does not fully go away?
I am sorry that you had that doctor go in and do nothing, the only good thing about that is now you know that you have it.
And to answer your question, yes by him moving stuff around he could have aggravated the adhesions and now they are pulling and stretching.
I would research as much as you can to find a doctor that will operate on the intestine and that has great knowledge with endo because by the sounds of it, there could be a recto-vaginal nodule that is causing the pain.
Does it hurt when you have sex?
When did the pain start?
A day or two before you period can you have a BM with ease then when the period comes you cant go and the pain is more intense until you can, and even when you do go the pain still does not fully go away?
I am sorry that you had that doctor go in and do nothing, the only good thing about that is now you know that you have it.
And to answer your question, yes by him moving stuff around he could have aggravated the adhesions and now they are pulling and stretching.
I'm not sure what the shots are called. I should have them tomorrow or the next day. I was thinking my OB called it something else. But he was not really with it last time I saw him.
The pain when using the restroom or feeling like I need to is in my rectum. It's horrible sharp pains that put me in tears at times of having a BM.
I was diagnosed lactose intolerant and then with IBS, the same as you. I also knew that more was wrong because I knew people who had IBS and they were never in the kind of pain that I was. But none the less that's what we've been treating for over 6 years.
I did not have any of my endo removed during my operation. It was just diagnostic with a small biopsy, which is why I believe I'm in awful pain. Is it possible that he just moved it all around so much that he has aggravted it? But instead of going back in to remove it, they want to start me on these shots. At the moment I am trying to find a new OB because at my post op appointment he did not discuss my biopsy results with me or show me the pictures he took while he was in there. He had left them in his locker down in the OR. Then what was the appointment for?? It was useless.
After my operation when he spoke to my husband he said that it was bad and that it was attached to my intestine but he didn't want to touch it. My husband and his parents both got to see the pictures while I was in recovery. When talking with me he acted as if it wasn't bad at all. Which leads me to believe he had me mixed up with someone else.
I do get what you are saying, and I'm hoping I can find a doctor who will so the same. My PMP is looking for a new doctor for me and trying to get my records from this one so that I can see them and get copies.
The pain when using the restroom or feeling like I need to is in my rectum. It's horrible sharp pains that put me in tears at times of having a BM.
I was diagnosed lactose intolerant and then with IBS, the same as you. I also knew that more was wrong because I knew people who had IBS and they were never in the kind of pain that I was. But none the less that's what we've been treating for over 6 years.
I did not have any of my endo removed during my operation. It was just diagnostic with a small biopsy, which is why I believe I'm in awful pain. Is it possible that he just moved it all around so much that he has aggravted it? But instead of going back in to remove it, they want to start me on these shots. At the moment I am trying to find a new OB because at my post op appointment he did not discuss my biopsy results with me or show me the pictures he took while he was in there. He had left them in his locker down in the OR. Then what was the appointment for?? It was useless.
After my operation when he spoke to my husband he said that it was bad and that it was attached to my intestine but he didn't want to touch it. My husband and his parents both got to see the pictures while I was in recovery. When talking with me he acted as if it wasn't bad at all. Which leads me to believe he had me mixed up with someone else.
I do get what you are saying, and I'm hoping I can find a doctor who will so the same. My PMP is looking for a new doctor for me and trying to get my records from this one so that I can see them and get copies.
Is it the Lupron you are going to be taking? Just so that you know the side effects of that are terrible. Joint/Muscle pain, nausea etc. Everyone is different however. I wish I never took it.
The pain is it in your rectum?
I had a rectovaginal nodule that had to be removed. It was deep in there and was missed for 15yrs. I would have random sharp pains from my rectum and was diagnosed with IBS in which I knew I didnt have. When it was removed the pain went away and I could for the first time in forever have a BM normally without pain.
Maybe they missed something when they removed the endo?
You may still be healing and that is what is causing the pain.
Also pretty much right after you have surgery the adhesions start growing back, that is why less surgeries the better. Finding the right doctor to remove it all in one shot is the best.
I was fortunate enough to have an amazing doctor and removed everything, the bowels, kidney, bladder, ovaries etc. I was covered from top to bottom pretty much.
I have been on the BCP continuously now for 3 yrs and have had no pain hardly at all.
I think that is the key when having the surgery. Some doctors dont like to remove off the bowel in fear of perforating it, and if they keep it then there was really no sense of going in because he didnt remove it all. You know what I mean?
The pain is it in your rectum?
I had a rectovaginal nodule that had to be removed. It was deep in there and was missed for 15yrs. I would have random sharp pains from my rectum and was diagnosed with IBS in which I knew I didnt have. When it was removed the pain went away and I could for the first time in forever have a BM normally without pain.
Maybe they missed something when they removed the endo?
You may still be healing and that is what is causing the pain.
Also pretty much right after you have surgery the adhesions start growing back, that is why less surgeries the better. Finding the right doctor to remove it all in one shot is the best.
I was fortunate enough to have an amazing doctor and removed everything, the bowels, kidney, bladder, ovaries etc. I was covered from top to bottom pretty much.
I have been on the BCP continuously now for 3 yrs and have had no pain hardly at all.
I think that is the key when having the surgery. Some doctors dont like to remove off the bowel in fear of perforating it, and if they keep it then there was really no sense of going in because he didnt remove it all. You know what I mean?
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