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Endo and cysts
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Endo and cysts

Hello. I'll try to make this as short as possible. When I was 19 I had a ruptured ovarian cyst which resulted in emergency surgery (they removed my appendix). 6 months later I had a 2nd ovarian cyst removed. I didn't ask to many questions then but  the dr DX me with Endo.  I have a hard time with BC so I have not been on it for years. I really don't have a lot of symptoms from the Endo. on wens I had excruciating abdominal pain with was identical to the ruptured cyst I had years ago.  The E.R. Did an ultrasound and gave me pain meds.  The US showed a 6CM complex cyst on my right ovary. Follow up with my dr (different dr) and he believes it's endometrioma.  He does not want to do surgery despite my intense pain. He wants to see if it resolves on its own which I have read endodemetrioma do not do. I also read that an ultrasound can not determine what type of complex cyst it is.  My problem is I cannot work like this. I have a physically demanding job so the wait and see approach does not work for me.  We settled on a follow up US on Monday to see if there is a change.  My other concern is he stated if this were in an older woman he would have me in the OR ASAP but Im only 34 so he has no concern of cancer. This alone makes me nervous. Anyone with similar problems? Thank you
10 Comments Post a Comment
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136956_tn?1363091289
Thanks for your post. I can try to answer your question the best I can. I myself am a 23 yr old sufferer of Endometriosis and in 2006 I came to medhelp looking for a similar answer to a 10cm complex mass. I was told it was possibly an Endometrioma but they could not be certain so I was scared to death thinking it was cancer. A lot of the women I met on the ovarian cancer board put my mind at ease by saying 99.9% of cysts are benign. So I hope that helps.

In 2007 I had surgery and was diagnosed with stage IV Endometriosis. What the mass was, was my entire insides wrapped around my uterus. So it had complex aspects to it that is why they couldn't tell.

An Endometrioma is an indicator or moderate to severe disease and the fact that the doctor does not want to operate means to me he knows nothing about this disease and you are better off finding an Endo specialist. I can't express this enough that there are only a handful of these surgeons worldwide for 200 million Endo sufferers worldwide but I would suggest you see one of them if you can. Either way I can help guide you in that direction if you let me know where abouts you live so I can see what surgeons are closest to you and what ones have high success rates.

There is no cure for Endo however excises (cutting out) the disease is the gold standard and many women who have this surgery done are in significantly less pain afterwards and only a tiny percent will need a follow up surgery. However reg gynos like the one you have will operate and operate and operate and not truly take out the endo from the root therefore only getting the surface and causing it to continually grow. He also made that statement which is way off base because I know plenty of women who have had ovarian cancer one being 11 the other 25 and the other 20. So he is an idiot to be honest if he thinks ovarian cancer is only for older females. I would suggest that you find a new gyno regardless.

Diet is key as well. If you would like to know more information on that I can do that.

I hope this information helps.
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Avatar_m_tn
Thank you so much! I feel that way about the doctor but think I needed to hear it from someone else for reassurance.  I live in southern New Jersey not far from philly.  Any dr suggestions would be greatly appreciated. I appreciate all the info.  It's always nice to have someone who understands to talk to
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Avatar_m_tn
Also I Understand ovarian cancer would be rare but if there's a chance it could be why wouldn't you err on the side of caution. I do have breast cancer in the family and history of early hysterectomies due to fibroid rumors which I also have one.  I had a tumor removed from my breast Monday the 17h  as well so apparently my body likes to grow abnormal things
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136956_tn?1363091289
Sorry I took so long I have not been well.

Here is the name of the one surgeon posted


Dr. Larry Glazerman

MLHC Gynecology at Riddle
Riddle Health Center 3, Suite 3404
1098 West Baltimore Pike
Media, PA 19063
T: 610 627 4170

Specialisation: GYN only
Bowl surgery: Works together with a bowel specialist.

However if you could travel to New York this surgeon is great and I just met her last weekend in Toronto at the Endometriosis symposium


Dr. Iris Orbuch

202 Spring Street, 2nd Floor,
NY, NY 10012
T: (212) 343-3040
F: (212) 343-3036

Specialisation: GYN only
Bowl/urinary tract surgery: Unknown



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Avatar_m_tn
Thank you so much!! I will look them both up. I picked up a copy of my US report today. During my E.R. Trip on March 19 (5days ago) the complex cyst was 60x30x57mm. It's now 65x33x57mm. There is also another complex cyst on the same ovary that is 32x18x24mm with septations.
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136956_tn?1363091289
I would def get in touch with that surgeon and make an appt if you can. I am glad you got the report that is something that you want to bring to your appt with that surgeon. Sometimes doctors don't give all the information and she might want to send you to one that she trusts as every technician is different.
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Avatar_m_tn
I had mt surgery yesterday. They removed both cysts and half my ovary.  Also extensive Endo lesions. Dr. Said my other ovary is scarred from previous surgeries and the tube is twisted from scar tissue. Worried about fertility
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136956_tn?1363091289
Where did you have your surgery and did they not remove the scaring from the ovary and tube?
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Avatar_m_tn
He didn't want the tube and ovary to get worse so he left it alone. I had surgery 4/30/14 @ 1pm
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136956_tn?1363091289
With who?
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