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Endo on the bowel

After 8 years of remission my endo is back - at my last surgery it was found on my bowel - it was left there due to my surgical history in agreement with my surgeon and due to extensive disease throughout my pelvis that he excised during that surgery - symptoms are now  back with a vengeance and I'm startingthe medical process again - would like to hear from others with endonon the bowel - how do you cope - did you have surgery - advice and tips
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1422680 tn?1282580990
I have endo that causes bowel symptoms. I just last month, after 3 years of misery and laporscopic surgeries, and a colonoscopy got the right doctor. I am on the depo provera shot and that has made a world of difference. At my time of menstration, I would have debilitating cramping and severe diarrhea. I often would have loss of bowel control with no warning. I went to a specialist at a women's hopsital in P'burgh and thank GOD I did. I will end up with a complete hystorectomy at some point but not yet. The depo I can take indefinitely and until that doesn't work, no surgery! Perhaps discuss if the shot is an option for you? I also strongly advise starting a probiotic supplement. I take Align twice a day. Hope that helps.
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136956 tn?1688675680
I have had surgery to remove endo on the bowels and pretty much all over my abdominal cavity.  That was 2.5yrs ago.  I know its back but the surgeon has told me to stop worrying about it and looking for it.  Ya cause thats what I was trying to do!!!

When I had my surgery everything was removed and he was a very good surgeon and I was happy with the outcome as I didnt lose any organs.

I also recently was diagnosed with PID because of Gonorrhea and I know without a doubt that scar tissue and adhesions have covered all of my insides.

the way I see it. if you are in pain, why stay that way.  After my surgery I felt awesome and for the most part I still do so I dont think I am ready for another surgery or I would go and tell them I am having one.
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1363198 tn?1278632079
I'm sorry to hear that after 8 years it is coming back, and in the least favorite area I'm sure. I just had a laparotomy during which they removed my left ovary, large chocolate cyst, and 'lots' of endometrioma 'everywhere' according to doc. However, I was told that they had to leave a bit around my rectal area so I'm worried I might have the same kind of problem in the future. So I guess surgery may or may not fix it, depending on hard it is to get to or perhaps, how competent the surgeon is?? I'm a bit disappointed with mine. Not sure how much that helps, sorry. You may already be aware of this, but I just read an entire book (in one day!) "Living Well with Endometriosis" and I was pretty hopeful reading about taking any combo (or just one) of the following herbs: Black Cohosh, Chasteberry, or **** Quai. All 3 work to reverse any hormonal extremes (endo apparently feeds off excess estrogen, as I'm sure you know) and also reduces any menopausal symptoms, if any. The best deal I can gather from the info is that if you add in milkthistle, which detoxes and regenerates liver cells, excess estrogen will start being dissolved, which can greatly slow down the crazy endo cells from growing or spreading, in theory. I plan to buy some Chasteberry and milkthistle. Apparently your liver is a really big player in reducing rogue estrogen. I hope that helps.  My question for you is, how on earth were you in remission for 8 years? How did you accomplish that? If you did it before, I bet you can do it again! :-)  
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