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Endometriosis After Complete Hysterectomy?
Hi all :) It's been a long time since I popped over here. I spend most of my time on the MS page since that is my biggest issue - or was
I had endo for years - 7 or 8 laparoscopy and finally a complete hysterectomy in 2001. Loved not having the pain, cramps, bleeding (ever, lol) once I healed from the surgery.
Has anyone ever had their endo return after a complete hysterectomy? I never took hormone replacement because the docs said it was too risky. Now after a year of bowel issues that no doc can figure out I started getting really bad cramps like a period back in the day. I went an saw the gyn and she wan'ts to do a laparoscopy to explore the possible return of the endo or adhesions causing this.
I said no thanks but now weeks later I am getting that pelvic ripping pain where you curl up in the fetal position and cry. Cr@p I think I am going to have to go through with this.
Any opinions or experience with this is very appreciated - Thanks for reading
Hugs,
Erin :)
Best Answer
It can definitely come back.If there is any endo implants left behind there is a chance that they can stay and indeed even spread. They have been found to be able to create their own estrogen supply even after your ovaries are long gone. Not to mention all the xenoestrogens out there. I had a hysterectomy, and left in one ovary, which is now coming out on the 11th because all of the endo is back in full force along with multiple complex cysts etc. I'm really hoping that they will get the majority of the endo out and I will be pain free for a while. But in some women this disease just seems to be severely pervasive. I've read stories of women having 19 surgeries or more. I've read about it coming back even after a full hysterectomy. If you can find a specialist that is the way to go. If they can get out every last trace of the implants, that is your best best of having it not return. Best of luck to you!
Hi ! I just wanted you to know that I did have several years without pain and I just love not having the monthly visitor with all it's fun, lol.
Seriously I am in pain now and going through some b/s but I didn't want you to think that it was bad from the beginning. I had about 7 years endo free and no mother nature.
Congrats on the baby & good luck
Hugs,
Erin :)
Hi there,
Interestingly I was about to create a post with the exact same title! My situation is a little different. I have had severe endo for years and am currently pregnant (20 weeks) with my first child. 2nd pregnancy though...
My long term game plan is to get a complete hysterectomy after giving birth because I simply cannot function with this chronic pain any more and its going to be REALLY difficult with a small child to care for too. However, getting that hysterectomy is so final, I want to gather as much info about it beforehand as possible.
Has anyone else had a successful hysterectomy in that the pain has NOT come back afterwards? I'm guessing if so, however, those folks wouldn't be hanging out on an endometriosis forum...hmm...what a conundrum!
Anyway, if anyone can help, I do appreciate any and all feedback. Thanks!!
Interestingly I was about to create a post with the exact same title! My situation is a little different. I have had severe endo for years and am currently pregnant (20 weeks) with my first child. 2nd pregnancy though...
My long term game plan is to get a complete hysterectomy after giving birth because I simply cannot function with this chronic pain any more and its going to be REALLY difficult with a small child to care for too. However, getting that hysterectomy is so final, I want to gather as much info about it beforehand as possible.
Has anyone else had a successful hysterectomy in that the pain has NOT come back afterwards? I'm guessing if so, however, those folks wouldn't be hanging out on an endometriosis forum...hmm...what a conundrum!
Anyway, if anyone can help, I do appreciate any and all feedback. Thanks!!
Hi! Thanks for responding!
I was at the gyn today to discuss an exploratory laperoscopy and he told me there was no way he was doing it. Said I have pelivc adhesive disease and I need a specialist in that area and a general surgeon.
I am going to do some research on who is best in that field - after I get a few days of rest to absorb this new dx and refusal to operate!
Good luck with your surgery on th 11th. I hope they get every last bit of it and you never have to suffer this again!
Hugs,
Erin :)
I was at the gyn today to discuss an exploratory laperoscopy and he told me there was no way he was doing it. Said I have pelivc adhesive disease and I need a specialist in that area and a general surgeon.
I am going to do some research on who is best in that field - after I get a few days of rest to absorb this new dx and refusal to operate!
Good luck with your surgery on th 11th. I hope they get every last bit of it and you never have to suffer this again!
Hugs,
Erin :)
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