Endometriosis on Bladder and Urinating a Lot

[strangecats2]

I have endo on my bladder and I have to urinate a LOT... like every hour or so. I'm not sure if it's due to the endo or not, I'm assuming it may be because there is slight pain in my abdomen when I feel the need to go. I do have a lot of pain though if I hold it in too long and have had accidents due to the endo pain, quite embarrassing, but true. Hopefully this goes away for you, and I'm hoping the urges go away for me also, I know the other day I sat on the toilet and urinated for about 10 mins... I just wish this would stop, it's embarrassing to keep having to run to the bathroom all the time! Does anybody else have this problem with endo on their bladder, or am I just losing my mind and possibly control of my bladder?

[achilles2]

You might also have intestinal cystitis (IC) many times women with endo have IC as well. My IC was diagnosed the same time as my endo. My doctor did a cystoscopy with hydro-distention at the same time as the lap. (I also had endo on my bladder.) Some things that I have found that helps (besides taking Elmiron) is to watch my diet. I cannot have soy milk, fruit juice, most things that are highly acidic, and pears. (The pears are crazy because they say people with IC can eat pears, well my body never read the info.) Also you might want to try a gluten and dairy free diet. (I was on one before the diagnosis) as IC does have an autoimmune component.

Whatever you do not let anyone perform the Potassium Chloride test (KCl test) because this test is only 70% reliable. Plus if you do react to potassium chloride (that is one of the theories) then it will be a very painful test. I was on the 30% who came out neg luckily my doctor (another doctor than the one who ordered the KCl did not go by the results but by my symptoms when he decided to the cystoscopy with hydro-distention. I am glad he did too I practically had no lining (GAG layer) in my bladder.
I hope this helps,
achilles2

PS If you are interested, here is some more info about IC--
http://www.ic-network.com/

[ticked]

I would have a cystoscopy done to rule out Interstitial cystitis to rule that out because they have linked that to endo.

I too have the same issues as you speak of and have had them since my daughter was born. They have gotten worse recently.  I ruled out Interstitial cystitis and because I am on the pill the endo should not be growing but I had endo everywhere including my bladder so maybe I have adhesions.  

I am having an US to see if I have a prolapsed uterus as well.