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Endometriosis this year
Hello, this year after I had a laprascopy done my gyno told me u had severe endomdtriosis, it's all in my pelvic area, I have adhesions too. I also have a cyst on my left ovary that is all stuck too, it's certainly hasn't been fun. Before all this I had painful periods all the time, lots of shooting pains down my legs lots. Sex has been painful to.
At the moment I'm taking synarel to help reduce the size of the cyst, I will have three people doing this op as its very delicate.
I finding that I get very tired lots just want to sleep heaps. Love to hear from any others too just need some support.
At the moment I'm taking synarel to help reduce the size of the cyst, I will have three people doing this op as its very delicate.
I finding that I get very tired lots just want to sleep heaps. Love to hear from any others too just need some support.
It took 14 yrs to diagnose and if it wasn't for that Endometrioma showing up on my US in 2006 I am sure I would still be suffering alot.
I as diagnosed with Stage IV, my pelvis was frozen, everything was wrapped around my uterus, rectovaginal cyst, mensentric cyst on the colon, bladder resection, deep infiltrating Endometriosis so I know exactly how you are feeling.
My first surgery was 5 hours long and I had a presacral Neurectomy done as well (which some surgeons do on women with severe Endo or heavy bleeding) which severs the nerves from your uterus to the spine so it doesn't sent the pain signal to the brain. All the Endo was excised and minimal laser was used.
The surgery was extremely successful because he was an endo specialist and I was fine up until 3 yrs ago when I contracted an STD which led to PID. The PID destroyed the amazing surgery that was done.
It took until this year in Feb to convince another surgeon to go in as the other surgeon refused to as he said too much damage was done the first time because it was so deep and it was everywhere and he believed that since the Lupron didnt stop the pain I didnt have endo, so I had to go to someone else. So for 3 yrs I was using Enemas 3 times a week just to have a bowel movement because there was a small bowel obstruction from scar tissue, I also started to pee myself and at times had no sensation to pee at all or the pain was so intense I could not pee. It was a nightmare.
For the last 7 yrs I have been on various meds but the one that I felt worked for me with the least amount of side effects was and is Marvelon. Its a BCP that I take everyday with no breaks.
When they went in this time I had Endo behind the cul de sac, my left ovary was stuck to uterus and the uterus stuck to the bowel, on the right side both my ureters were stuck in scar tissue one attached to the ovary and was embedded into the pelvic wall. I had carbon residue from my last surgery from the laser on the bladder flap which might have been the reason for the peeing issues.
The surgeon was not a skilled Endo surgeon and we agreed that she was going to take my tubes and left ovary and if we ran into complications she would open me up and remove it all. I thought long and hard about this because I have suffered forever with this so I agreed.
I woke up to find that she not only did she not take anything she left my ureter and ovary embedded into the pelvic wall. She said it was too complicated to remove so left it and told me to come back in 6 months!!!
So needless to say I am extremely frustrated right now but I am in less pain thank God.
I as diagnosed with Stage IV, my pelvis was frozen, everything was wrapped around my uterus, rectovaginal cyst, mensentric cyst on the colon, bladder resection, deep infiltrating Endometriosis so I know exactly how you are feeling.
My first surgery was 5 hours long and I had a presacral Neurectomy done as well (which some surgeons do on women with severe Endo or heavy bleeding) which severs the nerves from your uterus to the spine so it doesn't sent the pain signal to the brain. All the Endo was excised and minimal laser was used.
The surgery was extremely successful because he was an endo specialist and I was fine up until 3 yrs ago when I contracted an STD which led to PID. The PID destroyed the amazing surgery that was done.
It took until this year in Feb to convince another surgeon to go in as the other surgeon refused to as he said too much damage was done the first time because it was so deep and it was everywhere and he believed that since the Lupron didnt stop the pain I didnt have endo, so I had to go to someone else. So for 3 yrs I was using Enemas 3 times a week just to have a bowel movement because there was a small bowel obstruction from scar tissue, I also started to pee myself and at times had no sensation to pee at all or the pain was so intense I could not pee. It was a nightmare.
For the last 7 yrs I have been on various meds but the one that I felt worked for me with the least amount of side effects was and is Marvelon. Its a BCP that I take everyday with no breaks.
When they went in this time I had Endo behind the cul de sac, my left ovary was stuck to uterus and the uterus stuck to the bowel, on the right side both my ureters were stuck in scar tissue one attached to the ovary and was embedded into the pelvic wall. I had carbon residue from my last surgery from the laser on the bladder flap which might have been the reason for the peeing issues.
The surgeon was not a skilled Endo surgeon and we agreed that she was going to take my tubes and left ovary and if we ran into complications she would open me up and remove it all. I thought long and hard about this because I have suffered forever with this so I agreed.
I woke up to find that she not only did she not take anything she left my ureter and ovary embedded into the pelvic wall. She said it was too complicated to remove so left it and told me to come back in 6 months!!!
So needless to say I am extremely frustrated right now but I am in less pain thank God.
Hmmm I just wrote out a whole story, but didn't log in far out takes you ages doing all that.
No I don't have to go back for another, my next step now, is seeing two more new specialist actually three. I have already met another gyno specialist that deals with endo, but with how severe mine is she can't do it all.
I am now going to be meeting two more new specialist again, thus surgeon he is a very good specialist he is associate professor he desks with hysteroscopies, laprascopies, ivf, he will be doing most of my surgery.
Another person she is a urologist she will also be doing some to,
I have a stent too, they put this in to take the pressure of my kidneys.
All very complicated Ticked,
Sorry this is soo long winded, that's where I at the moment.
Where are you at with yours? How severe is your endo to?
I also may need to see a bowel surgeon to, I'm
Hoping I don't need to do all the bowel prep, gee soo much fun not, us women go through soo much hey.
Don't like having scans done either yuck.
Yes all very tiring, what medication are you on? Do you get cold at times too? I seem to feel the cold all the time, even when rugged up.
Soo glad found this place to
No I don't have to go back for another, my next step now, is seeing two more new specialist actually three. I have already met another gyno specialist that deals with endo, but with how severe mine is she can't do it all.
I am now going to be meeting two more new specialist again, thus surgeon he is a very good specialist he is associate professor he desks with hysteroscopies, laprascopies, ivf, he will be doing most of my surgery.
Another person she is a urologist she will also be doing some to,
I have a stent too, they put this in to take the pressure of my kidneys.
All very complicated Ticked,
Sorry this is soo long winded, that's where I at the moment.
Where are you at with yours? How severe is your endo to?
I also may need to see a bowel surgeon to, I'm
Hoping I don't need to do all the bowel prep, gee soo much fun not, us women go through soo much hey.
Don't like having scans done either yuck.
Yes all very tiring, what medication are you on? Do you get cold at times too? I seem to feel the cold all the time, even when rugged up.
Soo glad found this place to
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