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Female problems
I have recently been diagnose with severe endometriosis by laparoscopic surgery. The gynecologist explained to me that from the time he cut me open there was scar tissue everywhere. He was able to remove some of it but not all of it. He put me on birth control continuously to help control this issue. I have had severe cramping in my stomach and back continuously. This disease has put a toll on my body it even effects my legs. The pain is so bad I have had to seek pain management. My first period after the surgery was awful with severe cramps. It is now time for my second period. I have been experience a lot of severe pelvic and back pain. My period has not started but I noticed thick hard clumpy pink discharge with very little dark red blood when I go to the bathroom. There is a little blood in my panties but not Enough for a pad.Can someone please tell me what going on?
oh wow I am totally on the same boat as you. Today is the 3rd day of my first period after my lap and c section surgery. They told me that I have stage 4 endo and it was all bad too. I have 2 endometriomas on the left ovary and right ovary before the operation I was having severe problem with the right endometrioma it kept throbbing like crazy but after the surgery now it feels better. However, like you my OB & Gyne didnt touch the left endometrioma because I have severe bowel adhesions so they had to make a choice to only take out the right side problem I was having. I need to do another surgery I was planing maybe something next year so I wont be taking too much time from work. But now, I have my period too I dont have severe cramping but like you my anus hurts or somewhere in my butt hurts that its so freaking hard for me to even sit down. And my left back that radiates the pain through side of my right thigh. Now, my freaking c section cut seems like it is starting to hurt which didnt bothered me not until now Im on my period. I think this is because of the severe bowel adhesion I have I just hate it since its so killing me now. I am only taking June 1/20 birth control and motrin for the pain.
I am kind of confused as I have never heard of anyone being diagnosed or told Endo wasn't all removed with a pap. That seems weird to me as the only way to really tell is through lap surgery. However I know an MRI can detect deep disease and CT and Ultrasound can diagnose Endometriomas but nothing through pap unless you had cervical Endo which is also very rare.
The pain you may be having is deferred pain from Endo or scar tissue which can radiate all over the body. Mine was my knee.
Also you mentioned they left the scar tissue there as well as Endo on the bladder and bowels that there can explain it all.
The pain you may be having is deferred pain from Endo or scar tissue which can radiate all over the body. Mine was my knee.
Also you mentioned they left the scar tissue there as well as Endo on the bladder and bowels that there can explain it all.
Thanks so much for the advice you have given me. Sorry it has taken so long to respond.
Yes I take the pill everyday at the same time. But still feel as if it not working as well as it should.
My pain management found me a specialist to see. I went to go see her yesterday and she suggested that I tried Lupron injections. I have not started it yet. A little scared to but if it will help it will be worth it. She examined me and explain that endometriosis is a microorganism and that all of mine didn't get removed. She could tell from the pap smear she done. This exam explained the pain in my back that I am having. As well as the problem in my legs.
I got medical records which showed that there was a lot of scar tissue. Since the doctor who did the surgery was scared to remove what was on my bladder and intestines he just left there. Seeking a second opinion has made me feel so much better about dealing with these issues that I am having. She explained it better to me. She knew exactly what was going on with my body.
Kinda thought I was going a little crazy but know understand that every women symptoms are not the same.
Once again thank you so much for the advice. I just pray that I can do this and that things will get better. Every women diagnosis with this disease should know that it does not have to take control of their life. It might have control of myn now but I plan to take control of it.
Yes I take the pill everyday at the same time. But still feel as if it not working as well as it should.
My pain management found me a specialist to see. I went to go see her yesterday and she suggested that I tried Lupron injections. I have not started it yet. A little scared to but if it will help it will be worth it. She examined me and explain that endometriosis is a microorganism and that all of mine didn't get removed. She could tell from the pap smear she done. This exam explained the pain in my back that I am having. As well as the problem in my legs.
I got medical records which showed that there was a lot of scar tissue. Since the doctor who did the surgery was scared to remove what was on my bladder and intestines he just left there. Seeking a second opinion has made me feel so much better about dealing with these issues that I am having. She explained it better to me. She knew exactly what was going on with my body.
Kinda thought I was going a little crazy but know understand that every women symptoms are not the same.
Once again thank you so much for the advice. I just pray that I can do this and that things will get better. Every women diagnosis with this disease should know that it does not have to take control of their life. It might have control of myn now but I plan to take control of it.
So what it sounds like is that he didn't remove all the Endo. Sometimes Endo grows within scar tissue and is missed and it all needs to be removed. Large amounts of scar tissue could possible be a lot of disease and if it wasn't removed the pain you are having now is probably why.
Are you taking the pill continuously at the same time every single day not missing a day? When you first start the pill continuously it could take up to 3 months to stop the periods however you will experience breakthrough bleeding around the 3 month mark so that is when you come off the pill to bleed then go back on. This will happen about 4 times a year but everyone is different. I have heard that if all Endo is not removed it is possible that the pill will not work effectively like it should be.
For example before I was diagnosed with Stage IV endo I was on 3 different pills but I bled on all of them nothing would stop the bleeding. After surgery I went on Lupron for a month then on Marvelon continuously and I only had breakthrough bleeding 3-4 times a year and the last 2 yrs of the 8yrs being on it I never got break through bleeding at all. Everyone responds differently to hormone medication and sometimes you have to find the one that works best for you.
I would if I were you go get the copy of your surgical report. Sometimes things are not mentioned to you but are documented on there and it is good to have if seeing another surgeon so they know what to expect.
I can help you find an Endo specialist as most obygn's are not experienced in the different characteristics of Endo and often miss it with leads to ongoing pain and growth of the Endo along with surgery after surgery or you are left to feel that nothing further can be done.
Having an Endo specialist operate with excision rather than laser is key and its the gold standard in treating Endometriosis. 80% of women after having excision surgery by a specialist get the pain relief they need.
Are you taking the pill continuously at the same time every single day not missing a day? When you first start the pill continuously it could take up to 3 months to stop the periods however you will experience breakthrough bleeding around the 3 month mark so that is when you come off the pill to bleed then go back on. This will happen about 4 times a year but everyone is different. I have heard that if all Endo is not removed it is possible that the pill will not work effectively like it should be.
For example before I was diagnosed with Stage IV endo I was on 3 different pills but I bled on all of them nothing would stop the bleeding. After surgery I went on Lupron for a month then on Marvelon continuously and I only had breakthrough bleeding 3-4 times a year and the last 2 yrs of the 8yrs being on it I never got break through bleeding at all. Everyone responds differently to hormone medication and sometimes you have to find the one that works best for you.
I would if I were you go get the copy of your surgical report. Sometimes things are not mentioned to you but are documented on there and it is good to have if seeing another surgeon so they know what to expect.
I can help you find an Endo specialist as most obygn's are not experienced in the different characteristics of Endo and often miss it with leads to ongoing pain and growth of the Endo along with surgery after surgery or you are left to feel that nothing further can be done.
Having an Endo specialist operate with excision rather than laser is key and its the gold standard in treating Endometriosis. 80% of women after having excision surgery by a specialist get the pain relief they need.
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