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Avatar universal

I have a few questions.

I have been clinically diagnosed with Endo by civilian doctors. I have finally went to a Military doctor about a month ago, I explained my problems and so on. I was hoping for surgery (maybe I'm jumping the gun), but she will NOT give me it. She wants me to go on bc, but I've been on just about every type (Yaz, Depo, Nuva, Ortho Lo, The patch) and I've had horrible side effects. She told me to come in before the 5th day of my period for the Lupron shot. She wanted me to do this for 3 months and then by best time to get pregnant would be asap.



NOW, I've been looking into this Lupron and it sounds pretty scary. I don't know whether to do it or not, I haven't seen much great feedback...can anyone shine some light on this?




Also, me being stuborn, I kinda said screw doctors for a little while and I bought some ovulation tests. Is it normal to detect your LH surge for up to 5 or 6 days? I know I'm reading the test right, but this doesn't seem right? Is it?
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146298 tn?1258712247
Look into studies on Lupron and yeah it's hella scary. Ever more frightening though is the fact that it  is widely hailed as a miracle drug. I refused to do it also, cuz I'd been on every BC with bad side effects, so it was offered to me free from the company that makes it. I hope Obama does something about this drug with it's devastating effects. It needs to be pulled from the market for good.
Helpful - 0
Avatar universal
I am so sorry for what you are going though. I completely understand. I have been seeing a gyno since I got my period when I was 12 because how painful my periods were. Everyone just made it seem like it was normal. Finally - at age 24, and only because I work in a radiology office, I had an ultrasound that picked up a huge endometrioma on my ovary. Now I am sched for my second lap surg for 2/27 and then will start IVF the following month. This is my second month on Lupron. It is kinda hell, but not as bad as I thought it was going to be. I have luckily had a huge support group because I am an emotional mess. Homicidal, not suicidal (Just kidding, kinda) unfortuanately for my boyfriend. Its been hard but I know it is worth it. I am blessed to have an amazing doctor but he has taught me one thing for sure - endometriosis is not very well understood. Most physicians do not know how to feel it or see it on ultrasounds, which is why it is so important to have the lap. Just keep fighting and you will find someone to do it - see if you can find someone who specializes in endometriosis. A lot of times at fertility centers there will be someone who does. You can see them just as you would a regular ob/gyn. Good luck, keep us posted.
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Avatar universal
Well, Thank you ladies for all of your advice. I have an appointment set up in FEB so hopefully she will actually take me seriously and we can get this all taken care of. I don't think that I am going to do the Lupron, I honestly just want to pop a kid out. HAHA! That sounds so wrong. But in all honesty, I would love to get pregnant and be a mom, then if they tell me that I am bad off...it won't be as bad because atleast I could have one child. Although I may be young, I'd rather have a child at 20 then to find out I can't have one at 35.
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Avatar universal
Hi i  saw that you were wondering about lupron. I was actually brave and tried it. I did once monthly injections for six months. Followed up with a transvaginal ultrasound and found out that it didn't suppress me the way it was supposed to. The cysts and endometriomas had continued to grow even with the lupron. So my specialist decided to try once daily shots of lupron for 4 months.  Worst decision of my life because on top of the issues endo causes i had massive breakthru bleeding while on it and the pain was just as bad.
Now just to let you know your dr. is wrong about how long lupron will make endo go away. Five years is a bunch of bull! It is only capable of suppressing the endo while you are on it  and its doesn't eat the endo. What lupron does is shrinks the size of the growths you have. And how well it works is dependent on the woman who is taking it because everyones body reacts differently to drugs.
I am not for or against lupron because for some women it is a great drug but for others its the worst choice they ever made. The list of side effects is no joke. I had loss of sex drive, insomnia, weight gain, irritability and horrible mood swings while on it.
I don't blame you for being upset that you can't get a lap. Your trying very hard to make sure that your health is being taken care of and other people are shooting that down. A lap is the only definitive way to make sure what you have is endo. I have stage 5 or severe endo and believe me I feel for you because it took me 4 gyns and 3 different REs before someone would actually sit down and listen to me.
Best of luck hope you finally  get the help you need with your civilian dr.
Helpful - 0
478429 tn?1265244387
As far as I know, Lupron won't "eat it up..." it is SUPPOSED to halt it's growth, kind of like they say what b/c pills will do. But b/c never worked for me. Once you're off Lupron and your periods return, so will the endo.
I'm in the same boat, I want more kids (we have 1) and then I'm going to get a hyster. It's been hard trying for #2 though...it will be 2 years of trying in may.

All of it can be confusing, and it doesn't stop until you find a doc who believes you and understands...It s u c k c s that it's so hard to find a good doc these days.
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Avatar universal
My schedule is def. not normal or regular in the least bit, but I always know when I'm about to get it because of the severe pain I go through. My husband and I weren't really planning on having children for a few more years. I've wanted them sooner because I've had doctors telling me to, but it would be nice to wait.


My military doctor told me that if she wanted to give me surgery the board would deny her because I'm so young (I'm 19 almost 20), so she decideds to tell me that I have to go on Lupron...then talks it up like it's an amazing drug and I should feel lucky as a Military wife to have this offered to me because it isn't cheap. I started to get emotional in her office and she like basically was telling me to suck it up in so many words. Then, she tells me that the Lupron will eat up the endo and it won't come back for up to 5 years. Then, as soon as I get off of Lupron start trying to have a baby.



This is very confusing. I'm just ready to pop out kids then get a hysto. Having a va-jay jay is just too much.  =]
Helpful - 0
478429 tn?1265244387
The only thing you can do is keep going to doctors until you find one who will do your lap.
Do you usually have normal cycles? If not, that can be messing with the tests, especially if your hormones are out of wack... I know what it's like with the doctors - as I'm 23. But mine was so bad, I went to a specialist at age 19 and she told me if I wanted kids I had to "Find Mr. Wonderful and have my kids and be done." That is a direct quote from her. Of course I had already had 2 laps, that's how bad the endo was. And she was pretty ticked at me for refusing Lupron. That stuff is scary, and honestly I have never been on it.

Really talk to your new doc, and tell him/her you need this lap done!

Good Luck!!
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Avatar universal
I think I have a faulty box. I've apparently been o'ing for over a week now. I know that I'm reading the tests correctly, maybe there is something wrong with the tests...or is there something with me that could give me these results?


Anywho, I've actually set an appt up with a civilian doctor for Feb. 23rd. As far as how I was diagnosed...like stage wise? Idk, I've only been clinically diagnosed, they keep telling me the only way to tell if I actually do have endo or how far it is, they must do a Lap, BUT NO ONE WILL DO IT!


Everytime I go to a doctor, they talk to me like I'm a stupid little girl who is crazed by the baby bump. ALTHOUGH IT IS CUTE, I'm honestly just worried about my future and whether my husband and I can have children and how difficult it will be when we do decide to.
Helpful - 0
478429 tn?1265244387
Hi!

I don't blame you for not going on Lupron - I was scared of it too and never did it. I too, had bad side effects from all types of b/c. Nothing ever seemed to work. I've dealt with endo for 10 yrs and it took 5 yrs to get diagnosed. I've since had 4 laps done and had to have 1/2 of my right ovary removed.
How were you diagnosed? Is there any way you can go back to civilian docs? I know military docs can be...well...

As far as the LH surge...You should only be detecting it 2 days and that should be 2 days in a row.  

I'm sorry if I'm not much help, but if you have any questions, please feel free to ask!
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