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Is there any treatment?
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Is there any treatment?

My mother as been diagnosed with endometriosis. She had her womb taking out and is in constant pain and suffering daily she's takes pain medication to make life a little more bearable but the pain is constant. She has about 2 or 3   cysts inside her fallopian tubes the size of quarters which add to the abdominal pain the doctors said it spread to her bladder which she has blood with her urine the doctors say It was sore    s with a white flim covering her bladder which the only treatment is to have them burned out every year.  On top of all this she might have fibermayslia or however you spell that. Is there any treatment out there the only option there giving her is pain management and birth control which none are helping
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136956_tn?1363091289
I have both fibromyalgia and endometriosis. The main thing to tackle right now is finding her a surgeon that knows how to excise (cut) out the Endo that is key not just laser. She probably has severe Endo and if the doctor isn't taking it all out then the surgeries in itself are useless. Nothing stops the growths but thy will grow less once excised out. I have ha 2 surgeries and mine always grows on the ureters, bladder and bowels. You need to find her an endometriosis specialist. I can try to help if you tell me what city and country you live in. These doctors are hard to find but they are out there.

The fibro was probably triggered by the endometriosis so dealing with the Endo should be top priority.

What meds does he take right now?
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4190741_tn?1370181432
I read this post with interest because I had severe endo with cysts in my bladder, bowels, stomach and intestines.  I had a complete hysterectomy at 35 including both ovaries and tubes.  My surgeon said that any hormones he would give me after surgery might cause the cysts to reappear in the bowels or bladder so I am also hormone free.  I have never had another incidence of any cysts or problems after my original surgery and as I am now at an age where I would be going through normal menopause, am quite happy that I agreed to the surgery so many years ago...

I am wondering if your mother could ask for a 2nd opinion for her endo problems.  35 years ago it was easy to find a specialist for womens Reproductive Health, today not so much.  You might have to call the Insurance Company and ask them who even out of your area might be a good specialist to see....and also covered by her insurance.  

Sending best wishes to you and hope that your
mom gets some questions answered soon

M
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Avatar_f_tn
We live in Saskatchewan and so far she's been to many many doctors and countless appointments and not one doctor can provide any real answers or surgery options other than burning the bladder. But she knows that it has spread and will continue to spread if nothing is done the meds are pain management and birth control that's it
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Avatar_f_tn
Oh and we live in a town called La ronge
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Avatar_m_tn
I'm a 33 year old husband, my wife had her first battle with endometriosis about 6 months ago. We are trying to have kids so she couldn't take lupron or birth control pills to control the endometriosis. I think it has returned because she is starting to have pains again. It is hard for me to understand how she feels because I don't know the feeling. I used to get upset with her when she takes pain killers because of the effects in the long run. But I got over it because it eases me to see her free of pain. I sometimes would pressure her to go and see a doctor to see if the endometriosis has come back, I feel it's better to catch it before it turns into anything serious...she does not want to go to the doctor because she does not want surgery again. I feel bad because I don't want her to feel like i'm being insensitive when I try to help or give my opinion. I try to understand how she feels by going online and researching. My question to you all is how can I as a husband support my wife in her battles with endometriosis. I have a feeling she will be dealing with this for a long time since we are still planning on having kids, so the least I can do is be calm, be understanding and learn more about endometriosis and what I can do to be there and support my wife. Any advice........
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Avatar_f_tn
Me personally watching my mother suffer is Hard as is but watching my step father support and is being very sensitive and reassuring about everything that comes with dealing with endometriosis made me realized how confusing and worried she must be going through and that her husband is really the only person who can get her through this emotionally gives het enough strength to battle the sickness rather than feeling like a burden to everyone and giving up
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Avatar_f_tn
Oh my point is that in a marriage you vowed to lover that person in sickness and in health and seeing him fulfill that vow with such love and understanding makes me want that kind of loveI my marriage I know if the tables where turned and it was my dad with that circumstances she would love him unconditionally and help nurse him back to health. Be supportive patient understanding with her and if you have God directing your life/marriage in scriptures it says to love and care for her as you would for your own body. God as made you two into one. And of course prayer and faith. =]
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Avatar_f_tn
Oh my point is that in a marriage you vowed to lover that person in sickness and in health and seeing him fulfill that vow with such love and understanding makes me want that kind of loveI my marriage I know if the tables where turned and it was my dad with that circumstances she would love him unconditionally and help nurse him back to health. Be supportive patient understanding with her and if you have God directing your life/marriage in scriptures it says to love and care for her as you would for your own body. God as made you two into one. And of course prayer and faith. =]
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Avatar_m_tn
Thank you...
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136956_tn?1363091289
Has your wife been surgically diagnosed with Endometriosis or has a doctor just told her she has it?

Endometriosis is like being in labor. That is the best way for me to describe it to a male. So if the hospital is going to give you an epidural for the pain to numb your entire body from the pain then why is it so hard for doctors to understand that women need proper medication to treat the pain.

I have posted my journals on my profile if you want to read them. I have battled this disease for 23 yrs and it took 17 yrs to be diagnosed and I lived it utter pain in silence and no doctor would help me.

She needs to have a lap done and "Excision" not "laser" done to remove the implants.

After having my daughter my Endo was at its worst!!! I was out of it and I swear I thought I was going to lose my mind.

Please all I can say to you is try to understand. I know my husband does not and he tries but when I talk he changes the subject. It is depressing in itself to have this disease but to fight this disease alone is hell on earth.

Make sure you find an Endometriosis specialist and if there is not one in your area you need to find an oncologist/gynecologist as they are better than a regular gyno.

I would make sure that surgeon if needed would be able to remove the Endo from Everywhere including the bowels, bladder and ureters etc.

It is imperative that the Endo is removed completely nothing left behind.

Endo will continue to grow regardless of what medication she is given however I have taken the continuous BCP for 6 yrs and have had little pain and no periods so it has helped with me but my recent surgery there was still endo and severe scar tissue.

This disease is serious, more serious than doctors say because they are extremely uneducated with this disease and even when they tell you what you need to combat the disease they are usually wrong because they are not up to date on this disease.

Let me know if you have anymore questions
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