Possible endometriosis

[Renmumoftwo]

I need some advice.... Iv suffered with extreme period pain and other symptoms for about 13 years, the pain I suffer is indescribable, It normally starts about 4/5 days before my period and then floors me for 3-4 days, extreme cramping that spreads to my legs, up my stomach and into my back and sharp lower sided pain, vomiting, sweating, diarhea, tiredness, vicious lower back pain, pain when emptying bowel ( only when having a period) when all this hits me I can't do anything but hug the toilet bowl or rock back and forth in one spot and cry until the pain subsides and I pass out through exhaustion, I have been taken into hospital and given morphine but no tests were done, was just sent home. Everytime I go to my gp they just throw painkillers at me and tell me it will get better, feel like I'm being ignored and I just have to put up with it and I can't! I'm currently on the depo contraceptive injection and this worked for a while but 2-3 weeks before it's due I'm floored again and bleed :-/ and my dr said I have to come off it soon for a break and I can't cos I'm terrified of being in so much pain.  Just want advice on symptoms, are the symptoms I'm having abnormal? And shall I seek a second opinion... Any advice would be appreciated

[ticked]

Okay this is not okay. I would suggest getting a referral to the UCLH endometriosis clinic. Many Endosisters in the UK go here.

Is it possible you can get a referral there?

[Renmumoftwo]

Thankyou for replying, I live in the UK and so I am an NHS patient! Mum just so frustrated, been on many contraceptive pills and pain relief, none of which worked, was told by my dr that my pain would ease once I had children, Iv had two children and the pain is worse rather than better! My periods start off with an intense sharp scratching pain in my lower right side by hip followed by very painful debilitating cramping, this floors me. It's spreads down my legs and up my stomach and into my back, I will
Then vomit until pain subsides hours later, I get cold sweats and dizziness and very painful
Bowel movements (during period) I am then exhausted and usually pass out on the bathroom floor. Iv been told for years that this is normal, I'm 27 and now know it's not!!

[ticked]

what you have described sounds like Endometriosis. It doesn't seem like anyone is listening to you, however I am. Tell me where abouts you are and I will find you a good Endo surgeon in your area..

There are only a handful of surgeons that know how to excise (cut out) the disease for 179 million women world wide so I am crossing my fingers that there is one that is close to you.

The gold standard for Endo is excision surgery first to diagnose as well as remove at the same time. This is imperative and I can't express this enough "Make the first surgery count"

You can read my journals as it took 14 yrs for me to be diagnosed and that was only because an endometrioma grew, if it had not I would still be living in misery. Surgeons who specialist in this disease know what they are looking for most Gyno's either don't think anything can be done, don't have the experience to operate on the disease, tell you to get pregnant and it will cure it or have a hysterectomy it will cure it. These are all wrong things to say to a patient yet it still happens because doctors are not told to update on new treatment or new findings.

I am here for you and I can answer whatever question you have for me and I want to help you because you can't suffer like this any more.