I have never had any concerning pain or concerning periods with my 20 years of birth control until a few months ago. I began having the highest level of pain during menstruation out of the blue in my right glute - no walking, sitting, or standing, or laying on my back. Fast forward to today, a contrast pelvic MRI and vaginal wall biopsy has revealed I have stage 4 endometriosis on my sacro spinal (sp?) ligament, behind the pudendal nerve, a narrowing caliber of vessels, and fibrosis on upper rectum to name a few. There is a 3.5c "lesion" around the nerve, they are telling me is extremely rare. I'm currently seeking additional doc opinions, but going to start Lupron shots ASAP to shrink it at which time they will consider surgery. I'm new to all this at 34 years old and pretty freaked out!
i also had endo on my uterosacral ligament which can also cause the nerves to get inflammed
i use to get sciatic nerve pain occasionally, it lasted about 3 days each cycle. burning pain down my right leg. it was from my endometriosis. i had endo in my pelvic area so when my endo got inflammed it would irritate my sciatic nerve. i would talk to an endo specialist if it affects your every day living. get a lap done by a good endo specialist. do you have any other signs of endo?
It hasn't been unheard of for endometriosis to implant on the sciatic nerve-one doctor told me it can implant as high as the lungs and the brain.
Endometriosis can only be officially diagnosed by laparoscopy but a CT scan or MRI could show inflammation. Endo can be very inflammatory to the organs and tissues of the body.
If you feel like you are not getting anywhere with your doctor, see another one for a second or third opinion: you deserve some answers and you deserve someone that will listen to your concerns.
I had the same symptoms for years, and dealt with it until I started having extremely irregular periods. Long story short I have stage IV endometriosis, had a hysterectomy. I didn't know I had endo before the hysterectomy, I had it because I had severe adhesion and ovarian mass, and basically frozen pelvis. I kept one ovary so I still have cycles, and 6 months later I am still in severe pain at that time every month. My leg hurts so bad I can't walk, and nothing really helps. I take 800mg Motrin and it doesn't do much at all. I'm now going to start physical therapy for the pain, and have an upcoming appointment with an endo specialist. If they haven't already your doctor should due an ultrasound to see if you have any masses on your ovaries. The only way they can tell if you have endometriosis is if you have a laparoscopy. Although My doctor didn't see it at the time of my laparoscopy, because it was after my period and the implants had shed so they were hard to see, and I had stage IV, it was everywhere he said. If you're taking birth control to suppress your periods, it will be hard to know if they have become irregular. I'm not a doctor so I can't really give you advice, all I can do is tell you my story. If I were you though, I would tell your doctor how much pain you're in and that you think you might have endo, and if they don't take you seriously, find another doctor who does.