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Severe endometriosis
Hello all yes I have sever endo, I also still get very bad shooting pains every now & then, all on left side as that is where all the endo and cyst is stuck. Just been wondering too, the medication I'm taking for my endo to reduce the cyst and endo is called synarel, hast been fun taking this to makes me moody and naggy, plus this week well today I had the most awful migraine and vommited too, have any of you had bad migraines along with having the endometriosis to.
Can't wait till my op date, am soo over having this yes makes me soo soo tired to.
Just want to sleep lots.
Hope all of you are going okay, after having surgery is it true that you do have more energy, and feel soo much more better.
Wishing all of you the best too.
Can't wait till my op date, am soo over having this yes makes me soo soo tired to.
Just want to sleep lots.
Hope all of you are going okay, after having surgery is it true that you do have more energy, and feel soo much more better.
Wishing all of you the best too.
Yes it is very likely for it not just to come back but to not have been removed if your surgery was not done by an Endo specialist which there are only a handful around the world for 190 million.
That being said let me know where you live and I can get you in touch with the best surgeon in your area.
It would be good to get all copies of your surgery, ultrasounds etc.
That being said let me know where you live and I can get you in touch with the best surgeon in your area.
It would be good to get all copies of your surgery, ultrasounds etc.
Hi I'm just new to this site I'm just looking for some information I was dig oozed with stage 4 endrimitrios a yr and half ago .due to severe bleeding I needed 10 pints of blood over a wk so gyno doc said needed a full hysterectomy which I got my endo was on bowels left ovorie was damaged. I'm still suffering from agonising pain on pelvis and lower back pain I'm constantly up at hospital I've lost over a stone in weight within a month the gyno doc said I've got adesion and nerve damaged some days I can't move with the pain barely sleep due to pain I'm on pain killers butron patches to help with the pain my life is totaly ruined due to this disease some days I wonder if its worth going on as I'm so down as my life is ruined my question is is it possible for endo to come back after full hysteractomy I'm 39 not coping to great with menopause either thank you for any information I can receive
Ladies- if the pain is horrendous ,have a pre sacral nuerectomy and excision of the Endo, it changed my life. It cuts the fiber that causes period cramps and I am relieved! I saw dr Charles miller in Schaumburg, Illinois. Best decision of my life!!!
Its hard when you go through all this and you feel alone.
to be honest twitter has been my saving Grace since November. There are many Endosisters on there and we are there for each other all the time and no matter what time of the day someone is on because some people live in the UK, US and Canada etc.
If you want my Twitter name in EndEndoForever find me and I can help you find daily support when needed. :)
Medhelp is great for answers but when you need someone right then and there and you are struggling to cope Twitter has done it for me.
My husband tries to understand but he really doesn't get it.
The best way to explain Endo to people is picture 1 bee sting. People are in so much pain over one bee sting and almost everyone has been stung in their life time at least once. Now picture hundreds of bee stings inside, oozing and inflamed. This has been the easiest way to explain to men and to people that get bothered that its a gynecological disease.
If you want to try to make people understand as well print off the "Spoon Theory" and let them read it. The girl has lupus but still the same it is meant for anyone dealing with chronic pain daily as well as invisible illnesses.
to be honest twitter has been my saving Grace since November. There are many Endosisters on there and we are there for each other all the time and no matter what time of the day someone is on because some people live in the UK, US and Canada etc.
If you want my Twitter name in EndEndoForever find me and I can help you find daily support when needed. :)
Medhelp is great for answers but when you need someone right then and there and you are struggling to cope Twitter has done it for me.
My husband tries to understand but he really doesn't get it.
The best way to explain Endo to people is picture 1 bee sting. People are in so much pain over one bee sting and almost everyone has been stung in their life time at least once. Now picture hundreds of bee stings inside, oozing and inflamed. This has been the easiest way to explain to men and to people that get bothered that its a gynecological disease.
If you want to try to make people understand as well print off the "Spoon Theory" and let them read it. The girl has lupus but still the same it is meant for anyone dealing with chronic pain daily as well as invisible illnesses.
Hey Ticked, today was challenging for me, I woke up thinking going to do all this stuff, but I just slept all day.
I think maybe could of had this when I was younger, all monthlies were always painful, shooting pains all the time, each time I had them, I just wanted to stay home from school all the time.
Going to answer some of your questions too.
Migraines - yes I did use to get a few migraines even before synarel, it was my specialist who recommended me on this, it's not up to you what one to go on. We all are different. Least I don't have up do injections into my tummy any more they killed and made me cry lots.
I don't know what kind of op, eg weather it's going to e excision or lazer.
I just know that it will be done via laproscopy and other half laprotomy.
The stent that I have that will be removed to.
Guess stress doesn't help all this either.
I have two very close friends I can talk to about all this to.
And this week rang a support worker too.
Don't think my husband understands all this all too much for him.
Do you have girl friends that you talk to about all your stuff to? Or support workers have a good week to.
I think maybe could of had this when I was younger, all monthlies were always painful, shooting pains all the time, each time I had them, I just wanted to stay home from school all the time.
Going to answer some of your questions too.
Migraines - yes I did use to get a few migraines even before synarel, it was my specialist who recommended me on this, it's not up to you what one to go on. We all are different. Least I don't have up do injections into my tummy any more they killed and made me cry lots.
I don't know what kind of op, eg weather it's going to e excision or lazer.
I just know that it will be done via laproscopy and other half laprotomy.
The stent that I have that will be removed to.
Guess stress doesn't help all this either.
I have two very close friends I can talk to about all this to.
And this week rang a support worker too.
Don't think my husband understands all this all too much for him.
Do you have girl friends that you talk to about all your stuff to? Or support workers have a good week to.
Welcome to the Endometriosis Forum :)
Migraines usually goes hand in hand with Endometriosis.
Did you have Migraines before you started Synarel?
When is your next op? Are you have laser surgery or Excision this is important when treating Endo. Excision cuts it out right from the root laser does not. If any is left behind the estrogen inside the Endo makes it grow and spread.
When it comes to the Energy level most Endo suffers don't have energy and suffer severe fatigue all the time. That could be due to the Endo itself or the meds taken to treat it.
The medication you are taking might not work for you and that is very common with with many women with Endometriosis.
I am on marvelon a low dose BCP and it works for me. I have been on it since my first surgery in 2007 and have not had a migraine since being on it. I also have been on Lupron, Visanne, Amitriptalyne and Gapabentin. None of those meds helped and that is why I stuck to Marvelon.
Sometimes it takes trying a couple of different ones but beware of the side effects on all of those mentioned above. To me there was no reason to be put on any of them because they don't stop Endo from growing only really used to stop periods and the Visanne and Lupron put you into menopause on top of that. That is the reason I chose to stay with the BCP that stopped my periods, leveled my hormones, stopped my migraines and has over all helped me with pain.
Migraines usually goes hand in hand with Endometriosis.
Did you have Migraines before you started Synarel?
When is your next op? Are you have laser surgery or Excision this is important when treating Endo. Excision cuts it out right from the root laser does not. If any is left behind the estrogen inside the Endo makes it grow and spread.
When it comes to the Energy level most Endo suffers don't have energy and suffer severe fatigue all the time. That could be due to the Endo itself or the meds taken to treat it.
The medication you are taking might not work for you and that is very common with with many women with Endometriosis.
I am on marvelon a low dose BCP and it works for me. I have been on it since my first surgery in 2007 and have not had a migraine since being on it. I also have been on Lupron, Visanne, Amitriptalyne and Gapabentin. None of those meds helped and that is why I stuck to Marvelon.
Sometimes it takes trying a couple of different ones but beware of the side effects on all of those mentioned above. To me there was no reason to be put on any of them because they don't stop Endo from growing only really used to stop periods and the Visanne and Lupron put you into menopause on top of that. That is the reason I chose to stay with the BCP that stopped my periods, leveled my hormones, stopped my migraines and has over all helped me with pain.
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