What should I do?

[Helpme0711]

I am 19 years old. I was diagnosed with endometriosis back in March. I first went to the hospital for pelvic pain and pain at the top of my left leg. It kept giving out when I would walk or stand. I had surgery in March because the doctor thought I had a tumor on my ovary and we were originally supposed to find out if it was cancerous or not after the surgery. But during the surgery was when the doctor realized and confirmed that this was endometriosis. He said my leg may have been giving out because there was a cyst on a nerve to my leg. After he drained the cysts during the surgery, my leg felt better. They put me on a medication called Northindrone Acetate / sometimes known as Agestyn
This medication has taken me completely off of my periods.

Now, I have been having more pain than ever before in my ovaries, severe stomach pain, severe headaches, and I have been extremely emotional, and I have been spotting. When I wipe after urinating, there is either brown, darkish brown(black), or blood. My leg is giving out and the pain in my leg is worse than ever before. I am concerned and I have called my doctor multiple times and they keep saying to go to the ER to be examined but whenever I go to the ER, they tell me it's all apart of having this disease and they make me feel stupid. None of my friends or family understands this and I really need help because I don't know what is normal and what is not. Please help me

[ipurr2]

Please get to an endometriosis specialist! Most will review your records for free...a true specialist will be able to remove it from your colon or have a general surgeon on board to do the colon side of the surgery...if they can't do this find one who can..Oby/gyns are not qualified to treat this extensive disease and you will find yourself in worse shape only to go to the specialists in the end anyway...so just bypass all the gyns and er visits get to the endo specialists!

[Melbear93]

Hello hon.
I'm sorry for all that you're going through. I know that at the moment you don't have much faith in the ER but why don't you go to a good gynecologist and they should be able to help you 100%. I had a scare after I went though something personal and thought that I may have endometriosis due to the fact that all the side effects matched what I was feeling.
Please Please go see a gyno and I guarantee that they will be able to help you. They deal with issues like this all the time. Don't run from it dear. Just face it and see what they say.

Take care and feel better.