hi, ive being here before about ovarian cysts pcos and endometriosis, im 22 and have had ovarian cysts and pcos since 16yrs old and last year diagnosed with endo, i did manage to start college and work but a couple months down the line i went back to being quite unwell again, i had to leave my job and have currently stopped college for now, i was told last october to try the pill to try help which it didnt so ive now being booked in for a operation on 28th june, my problem atm is one im so constantly uncomfortable painkillers and anti inflams dont really work and i also have being having some bleeding (heavy at times) which the doctor gave me some tablets for and after 3days it stopped so i stopped the tablets (label says shouldnt take them for more than 4days at a time) but the day after i stop them it starts again, i feel like im going round in circles and its driving me mad, ive being back and forth from the doctors i feel now i cant keep going back as they will just think here she is again lol and i wouldnt like people to think that of me, im just not too sure what to do anymore, im so tired of tablets heat pads hot water bottles etc, even when i walk it feels like my hip/pelivs is pulling, like a elastic band that wont stretch, after my operation in june i am going to ask for endo treatment as last year i was told i had it and just left, does anyone have any idea what i can do to try and be more comfortable until june arrives, also has anyone had endo thats spread to there bowel as i told my consultant i have awful pain in my back and lower stomach when having a bowel moment and he said it could be the endo that has spread but he wont know till the op whats going on inside, im just wondering if anyone has had this what other symptoms are there and if a op was involved what happened as im very worried and stressed that it has spread but i dont know much about it really but feel little uncomfortable asking doctors etc, any help/advice would be greatly appreciated xx
Wow...I am sorry you are having to deal with all this. Personally, I would recommend seeing an actual endometriosis specialist. The specialist I saw really doesn't believe in medicating the endo. He treated me by literally cutting out all the endo spots and all the suspected endo spots. As for your current doctor, don't feel like "here you are again", endo is very painful and complex, if they don't understand you, go to a different doctor. I'll give you the website to the specialist I saw - read through the different tabs, they have a ton of helpful information on there. Good Luck!!
thank you for the link ill have a good look on there, and yeah i think i will go to a different doctor now, im just not satisfied with mine atm, had the stomach pains aswell as shingles one time and after talking about the shingles i went to go onto my stomach pains and she said oh well weve covered your shingles for today you will have to book another appointment for your other problem, i was shocked so just said ok, anyway thanx again for the website :-)
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