endo

[ksanden]

i am 26 years old was diagnosed with endo july 13th 2010, got cleaned out and somewhat outta pain decided to try to have a baby after that. the past 3 days has been hard, the pain is worse then before. the doctor asked me today how much longer am i going to deal with this pain since the past 4 years ive been dealing with it he told me i need to consider a hysterectomy and that my chances of getting pregant isnt going to happen due to how far into it i am. it has affected all my womenly organs n rectum. its gotten to the point that i look at time pregnant due to the bloating, and my hips even swell. i am a small women if u can picture this. i feel so hurt crushed im not ready for this, i see another doctor next month to get his opinon on what is best for me, but im afraid he will say the same thing well i no he will.   just looking for some support out there i guess.. thanks for reading

[vienna_h]

As a university alumna, I still have access to medical journals and I've been reading through them to gain a more indepth understanding of the research being currently done. One thing is quite clear, the biggest factor in the treatment of endometriosis (specifically surgery) is the surgeon!

As Ticked said above, it is worth doing whatever you need to do to get an endometriosis specialist, not just any gyno. I'm not saying miracles can happen with a specialist, endo is endo, but at least you'll be in better hands and have the opinion of the best in the field.

[ksanden]

i live in minnesota. there is nothing here other then maybe the cities and that still about a 5 in half 6 hr drive...

[ticked]

My suggestion?  Find a new doctor.  You need to find and Endometriosis specialist.

I had stage IV endo and I had it all over, my ovaries were wrapped around my uterus and Fallopian tubes, it was all over my intestines and bladder, kidneys and I had a rectovaginal cyst.  He removed all the endo and I have been on the BCP continuously since 2007 with no pain.

I am not saying everyone will become free of pain because I still have times where I do get pain but I dont get a period so I really dont get pain like that anymore.

Regular Gynos really dont know alot about endo and most of them feel the best choice is a hyster and i disagree.

I do want a hyster and he wont give me one. I also have high grade lesions on my cervix and since I am done having children and because of the endo I want it all out. Well unless I get another doctor to okay it he wont do it.

He is the only doctor I want doing my surgery because he is the best of the best. Trust me you want someone who knows their stuff and can work with you. If I was going to have another baby he would be all over this because right now my uterus is anteflex and retroflex. and I know its stuck to my intestines. I can feel it.

Where do you live? I can help you find a good one.