losing faith

[tirby40]

I was diagnosed with Endometriosis back in 2010.  i have had 2 laperscopic surgery's since then.  but i have been in so much pain since April.  I am on birthcontrol but my symptoms have changed a little bit.  I have excruciating on my left side, nauseous, chest pain where its hard to breath, dizzy and i am tired literally all the time.  i also can not sleep through the night.  i have been to all different types of Dr.  Even had a colonoscopy and still come up with nothing.  should i just get use to feeling this way.  has anyone else had any of these symptoms?

[ticked]

I second what lulu has said.

[lulu747]

Hi there-

Yes I have experienced all of these symptoms from endo.  Did you have excision surgery to remove the endo, or ablation?  Excision is the only thing that removes the endo from the root.  Using the laser just cauterizes it and leaves cells and scar tissue behind.  

I had total excision surgery in 2010 and was pretty much pain and symptom free until last October.  My symptoms returned slowly at first, and then with a vengeance.  I just had my second excision surgery 2 weeks ago and am hoping it will be my last.

It is pretty common for endo to grow back, or if surgery is not done by an excision expert, for endo to be left behind.  I think it is time for you to seek help again.  Join the facebook support groups like endometriopolus and the world endometriosis forum and you will find lots of info there on the best surgeons in your area.

Hang in there endo sister.  If you have any questions, feel free to PM me.
Lu