need guidance re possible hysterectomy

[xstien]

I'm 30 years old and I've had endo since I was a teenager. I got pregnant when I was 20 and was told that having a baby usually helps but it didn't hello me. I had a laparoscopy when I was about 22. After that and being on proper bc I had years of no periods or pain. I've been on Nexplanon for about a year now and it's been great. However 5 months ago excruciating pelvic pain started. After seeing one doc after another I finally got in with my Gino that deals with my endo and she started me on some hormone thing since I'm on Nexplanon because the two can help level out hormones. She also wants me to do pelvic physical therapy. All good ideas but I know my body so when she said let's try these things and if they don't work we will have to do a hysterectomy. I know my body and I just know that's what's gonna have to happen. I don't I want to get too personal but I have a 9 yr old boy, am a single mom and still yong enough that I still hope to find someone to have a family with. To have a proper pregnancy experience with a loving man (or woman) by my side through it and be co-parent. So I'm just curious if anyone can relate. What you dealt with, how, when, how was the recovery, did you have someone to help you heal? I live alone am single and have only one true friend whom I barely see. I was crying on the bus today thinking I'll never get the chance to experience pregnancy the right and loving way. Any input is appreciated. Thank you..

[dragonfly85]

I can relate on a lot of this.
I also was a single mom to 3 children until they were ages 4, 5 & 6. Was also in a very abusive relationship and did everything myself with raising them, working 2 jobs and so on. I am 28yrs old now and been married for 1yr in a great relationship but I have had 7 surgery's ( last one was just 5 day's ago). I have endo very bad and done had it scrapped but it keeps coming back and messing with other organs. I have had my left ovary removed, I'v had many cyst's removed, tumor removed and now just had another large cyst removed on 3/5 and they noticed the endo is back again and is a severe case. Been thru all the meds, birth control and so on.
I now go for a appointment on the 20th to set up a hysterectomy.
I do wish I could have 1 more child considering my husband has no bio children but he is adopting mine and is very happy with that but to me I wish I could give him his own and would love to have another to be able to actually enjoy the pregnancy and have that help and feel how it is to co parent.

I wish you the best of luck and all's I can say is if you feel that this is your only choice to become healthy again then go for it! It ***** I know but you need to think about your health for your self and your child.
Good Luck!!

[ticked]

Welcome to the Endometriosis Forum. I can try to help as best I can speaking from experiences as well as being an advocate.

First thing I would like to say is that I was a single mother after 5 weeks of my childs birth until she was 7. I wasn't diagnosed until she was 4 so I struggled so much. I was also in an abusive relationship so I had to leave her father so it was really not a good time for me on top of all the hormones and pain.

Why did you switch BCP if it was working for you?

A hysterectomy is not a cure for Endo period and a lot of Gynos will say this and its wrong. You need to find another doctor and I would suggest an Endo specialist. There are only a handful world wide for 179 million woman worldwide but I can help direct you to one if you let me know where you live. Excision is key for Endo as well as being done by a trained, skilled Endo specialist it makes a world of difference. Don't settle for what your gyno has told you.