Aa
please help
So my girlfriend has endometriosis, and also had been prescribed to pills for a long time so she is used to pills being the only relief from pain. she has good days and bad days. the good days are amazing but the bad days are really bad, and i dont know what to do to help. I know that she wants understanding and not pity, but its hard to understand. if you cant feel the pain someone feels then you cant understand. i just want her to feel better and to help. i dont know what to do and if anyone can help that would be awesome.
Find a specialist. Your obgyn is not trained to treat endo. Good luck and don't give up!
What an amazing boyfriend you are. Just to seek out help like you are doing is amazing. I think there is a group called "Mendo" on Facebook, if I can find it I will message you the link. It is for men to share what they are going through when their partners have Endo. Was she surgically diagnosed or just told she had endo?
unfortunately the pill only potentially slows the disease down if you are lucky...but it has it's own issues...I too took the pill for many many years and by the time I was officially diagnosed with endo (13 years after I actively tried to figure it out and did in fact self diagnose and have it confirmed with laproscopic surgery and nothing showed on the MRI's or ultra sounds) the disease had literally glued my organs together and things were a mess...it causes so many more issues then even most dr.'s understand much less us or those who love us...so first thank you for at least trying to help and understand her disease! Next I would strongly recommend she get into the care of an endometriosis excision specialist not a regular gyn or oby/gyn as they are baby dr.'s and do not have the skills it takes to deal with this disease. if you share your city/state I will do my best to find and share endo specialists in your area...we unfortunately do most often have to travel out of our area (I went several states away~best choice I ever made) to see the best of the best...only wish I had done it long before I had dr.'s cut on me who did not understand the disease...
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