EPILEPSY COMMUNITY
Both Epileptic and Non-epileptic seizures?

Both Epileptic and Non-epileptic seizures?

I started out a two years ago with having tonic clonic like seizures.  I went to a neurologist who tried me on Keppra which worked but I had a bad reaction to it so he took me off of it.  Then he tried Dilantin which I was on for a week, but he took me off of it after having one seizure.  He did a long term video eeg, but I had no seizures.  My eeg was normal so he diagnosed me with psychogenic non-epileptic seizures.  After that, I saw a psychologist who informed me that I was normal and appeared to have no signs of stress or any inducers of non-epileptic seizures.  Then I went to another neurologist who had me do another long term video eeg.  I had a seizure on it which did not show up on the eeg and did not possess any resemblance to epileptic seizures.  I had just been kicked out of school due to the fact that my seizures were "disturbing to the other students".  After that, I went and saw a psychologist who kept changing the reasons for my seizures.  I stopped seeing him after he began trying to sell me his "stress tapes".  I began having seizures which resembled complex partial seizures a short while later.  I went back to seeing a neurologist after I was transported by ambulance to the university hospital after having 8 seizures without returning to consciousness between them.  My potassium levels were through the floor which the er suspected was the trigger for the seizures.  The neurologist ordered a long term eeg which came up normal during which no seizures occurred.  I saw two more psychiatrists who both deemed me psychologically healthy and found no need for me to see them.  I was back at square one....again.  I went on a cruise this past summer to Hawaii on which I had a seizure and was transported by ambulance to the hospital on Maui.  The doctor on the cruise ship said my seizures were displaying all the symptoms of epileptic seizures including a low oxygen saturation level.  He had a letter typed and signed explaining his displeasure in the fact that my seizures were not on medication by the time I left in the ambulance.  About a month later, I had a seizure in church and a pediatric doctor was there.  She also questioned why I had been diagnosed with non-epileptic seizures due to the fact of my seizures' resemblance to epileptic seizures.  She recommended I see an epileptologist.  3 weeks ago, I had a seizure at my friends' house.  I was transported by ambulance to the local hospital.  The residing neurologist put me on Depakote 500mg morning and night.  I was on it for three days and then my epileptologist stopped the medication.  The following day, I had another tonic clonic seizure on the stairs in the barn and landed on the concrete floor.  I was transported by Life Flight to the hospital where my epileptologist worked.  The paramedics reported that my breathing was very shallow and my blood pressure was through the floor.  I had two more seizures following and was given Ativan to stop the seizures.  I had torn a ligament in my neck and received a concussion.  At the hospital, my doctor had me do another long term video eeg.  I had no seizures during this eeg.  The doctor looked at the video of my seizure at the hospital where I had had a seizure on the eeg.  He determined me to have non-epileptic seizures.  Now I am seeing a counselor who is doing neuro therapy.  She found I have depression and worry because of my seizures.  She said that my symptoms were quite strange for my seizures being psychogenic.  She brought up the notion that I may have both epileptic and non-epileptic - the non-epileptic being a result of the stress from my seizures and all that comes with them.  I now deal with loss of much of my short term memory from the seizures.  I had a seizure in the spring on tile, resulting in brain injury causing me to now be legally blind in my right eye.  I am 15, now, and unable to drive, attend school, or most other extracurricular activities.  Neurologists dismiss me saying my seizures are psychogenic, non-epileptic, and the psychologists/psychiatrists dismiss me saying my seizures are not psychogenic non-epileptic.  I am at a loss for what to do.

Before my "complex partial" seizures, I:
Have an aura similar to a rising feeling

During my "complex partial" seizures, I:
Have no memory of the event
my eyes roll up and to the right
I move my mouth (kind of smack my lips)

After my "complex partial" seizures, I:
Feel confused and it usually takes me a few minutes return to normal
Have a headache

Before my tonic clonic seizures, I:
Do not remember within a half an hour to an hour of my seizures
Am pale
Have a hard time speaking and conversing

During My tonic clonic seizures, I have:
Lost Bladder Control
Bit My tongue
Bit my cheek
Broken an arm
Gotten a concussion
received brain damage
had a significant drop in oxygen saturation
torn a ligament in my neck

After my tonic clonic seizures,
I have no muscle control
have choked
am unconscious and unresponsive for a half an hour to an hour
Am tired after waking up (I usually sleep 15 to 18 hours)

I have had my tonic clonic seizures in my sleep, in the morning, in the afternoon, and in the evening.  I have had them outside, inside, with my horse, on stairs, at my old school, and at home.  My complex partial seizures usually last 30 seconds to a minute.  My tonic clonic seizures usually last 2 to 3 minutes, however, the seizure during the eeg lasted 9 minutes.  

Please help me as I am at a loss for what to do.

(the reporting of conversation and such after and during my seizures was information collected by my mother as I was unconscious.)
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