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341190 tn?1295467125

Could i have Epilepsy

Hi This is my first time on this site so bear with me, I first passed out/fainted when i was 8 over the next 30 years have done it app 10 times, most recently this morning, each time i feel dizzy have a sickly feeling then i faint, I start to shake my eyes roll back and i wet myself, as im coming round i firstly hear then see then am fully aware, altogether lasts between 2 and 10 mins, have only ever had blood tests for usual things, ie anemia, thyroid, kidneys, diabeties, never had a brain scan, any help or advice would be very greatly appreciated, i know this dosent sound like i do it a lot but im getting scared to go anywhere in fear i might faint, Thanks, Jo
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Avatar universal
You really should be seen by a Neurologist....to rule epilepsy out completey.

Do you possilby have blod sugar issues....(doggone laptap...sory bout lousy typing)

If you had a head injury, it could explain a lot.  I never had seizues until a car accident....and it was not a bad one.....just enough to set off the seizures.

Try the neurologist for an MRI and EEG. Keep up to date on bloodwork. Visit an acupuncturist, too.  I was once on a big dose of anti-convulsant meds & became pregnant. The acupuncturist helped me get off all meds and have a wonderfully healthy pregnancy and perfect baby......after only 6 visits.  He was wonderful, but now lives in Hawaii.  Ugh!  I loved that man....he was awesome.

Best wishes to you in discovering what's going on.
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Avatar universal
Hi, BP. This is my first day on forum, so I'm not sure how it is done. Anyway...went to your page and left you a message. Then I found this at the end of the page.   :)
Soooooooooooo I just suggested have your Thyroid tested, cause hyper-thyroid can make your blood pressure fluxuate wildly. My daughter had Graves disease, and this happened to her.
Good luck with that migraine.  I have them too    :(
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341190 tn?1295467125
Hi Bp, just wondering how your getting on? not spoke for a while, jo
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327385 tn?1378360731
your welcome, hope you get your seizures in control. having seizures can give you really bad headaches to . the last seizure gave me such a bad headache -i never want to go threw that again !! take care of yourself, bp
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Avatar universal
heya i have decided im going to see my gp this morning they have open surgery every morning. because with the eds i had two in less than a week and this headache isnt shifting either i feel like my brain is trying to climb out of my head.
thanx hun xx
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327385 tn?1378360731
hi jo, i know how embarrasing grandmal can be.i have grandmal seizures to.call your gp and ask her to see you. in order to get control of seizures you need to get the right dosage of meds.it will take time to build meds up in your system.it will take some time to get the right level for you.i take 400mg dilantin a day-been seizure free for almost 2 years.maybe you will need to change your meds. i cant take anything but dilantin.do you have any warning signs? stay away from strobe lights,some games(flashing-fast) could make you seize.see your gp and have your level done to make sure your level is where it needs to be .  hope this helps,brainpain
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Avatar universal
heya my names jo im new to this, but have been reading your coments to each other and thought you would be able to help.
im 24 just turned and had my first seizure on the 9th of may this year it was a big "grandmal" quite embarrasing in front of my work colleges (they are trained nurses so knew what to do though thankfully) but was sent to A&E ( im from uk) and they said straight away its epilepsy we are going to refare you. so anyway a few days later while waiting for my refaral i have another big one followed by several little ones. so my doc put me on the emergancy list and bless her heart got me an appointment with a neuro the next day. had all kinds of tests done eeg ct and bloods and put of meds since then i have had another two not sure what to do? should i go back to my gp or should i wait for neuro follow up? jo xx
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341190 tn?1295467125
Hi Bp, Hope your doing a little better now, and you have had a few late mornings with the kids being off school, how are your headaches? I have my appointment through for an eeg on the 26th of june, thanks for the info on your dad very helpfull, I made my first shopping trip yesterday to a very crowded centre to buy some bits for the wedding so really proud of myself for that, although i was thinking about fainting i didnt so good result, take care speak to you soon, jo
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327385 tn?1378360731
hi jo, so glad to hear your going threw with your wedding!!!! glad to hear your not going to let it slow you down . it will be fine,and you have a good attiuted just dust off and say i do!!  my pulse is about the same. i will do the adding and see what i come up with. headaches a little better ,maybe ill get a break ! today was last day of school so i get some sleep .anything else you want to know about pacemaker -ill ask my mom.my family is doing good,take care of yours, bp
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341190 tn?1295467125
Hi Bp, Glad your checking out other doctors, its so important to find one who will listen, for 20 years no one listened to me kept sayin your ok its just a faint, finally i think i have one that is actually saying yes there is something wrong, FINALLY Alex my daughter hasent started the tablets yet we pick them up on tuesday, will let you know how she gets on with them, How is your pulse rate doing now, has it calmed down now, i was told to take my pulse 4 times in a row add them all up then divide by 4 this gives you a more acurate reading, but try not to be so anxious while you are as this will increase it, we are going ahead with the wedding i thought what the hell if i faint then so be it ill get up and deal with it, so keeping busy with the organising, hope your family are well, how are your headaches? take care, jo
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327385 tn?1378360731
hi jo, i know what you mean ,i hate my doctor !! doctors allways have an excuse why they cant help you. ive got 2 doctors im checking into -dont want another doc that dont listen and rolls there eyes at me. taking iron killed my stomach ,hows your daughter doing on them? my son said he wont try to climb trees again. my dad had a pacemaker because his bloodpressure would drop to nothing he would get so sick and sweaty turn white and his heart would almost stop. hes had 2 so far one lead broke and battery was almost dead.had that one for about 18yrs. the new one is so much better he can be around alot of things he couldent before.the only bad thing with the new one they put it under his coller bone and he can feel it kick in.but he leads a normal life. good luck at app and take care of yourself , brainpain      
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341190 tn?1295467125
Hi Bp, My daughters bloodtests came back today she is low in iron so needs to take tablets for 6 months, I am awaiting test dates, I did go back to my docs to see if he could give me anything for anxiety but could only offer me anti depressants really dont want to go on these as im not depressed just anxious but all anti anxious tabs cause your blood pressure to drop so for obvious reasons i cant have them, Glad your son has his cast off now must be a relief, keep him out of trees now eh, doctors can be so unsympathectic some times, they need to go through a little of what we do then maybe they would understand how anxious and stressed we get, have you changed docs yet? hang in there im sure you will get better with time, thats what i keep thinking, can i ask you why your dad has a pacemaker and how long he has had it? keep smiling jo
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Avatar universal
I only had one Full blown Sezure I was getting ready to get my skis off my moms car when on the way to the care My left leg Would not move it felt like it was stuck in place. I stumbled Smelled some thing like Rotten dead cat mixed with Burning rubber. I got up said mom she turned around. she asked me if i was ok after the trip i had. i said yah, with a slur and then mindlessly followed her to her side of the car and when she asked me what i was doing i said Ohh turned around went back be hind the car to get to the other side and, Apparently Went as stiff as a BOaRD  and fell over my hands stayed in their positions NO jerking just stiff then she said my eyes were rolled up and i was drooling then. I have only had that one BUT the EEG i had 1 month after then the other one 3 months after and the one 9 months after still show irregular Brain waves. in my left frontal lobe. I was 19 when i had my first seizure. Leeding up to that I  was having REALLY bad facial, and body tics along with some vocal ones too.. my neurologist had put me on an anti tic medication but i was wanting to join the airforce at the time so she was weening me off the anti tic meds, they were a muscle relaxant of some kind i have the name saved if any one wants to know it. In order to join the air force i had to med free for a year. Bahh I am very glad now that i am not in the airforce. I am very happy with my Current major, I am on 3,000 mg of Keppra now 1500 2 times daily.

I dont know some times the meds make me Anoyed with every thing Its just not like me. thats bothersome when it is happening but i ussually if i have the opertunity to, is go some where by my self and studdy. If i am with others when i am IN THE MOOD pit They anoy me soo much and end up not being so pleasent. If i am at work and it happens I bite my toung... litteraly LOL. My nerologist thinks that my Tics were a seizure. THEY are not nearly even 1% as bad as they were even on the other anti tic medication. What i have learned though is That i get mildly ticky is i am really streased out or am feeling a Aura. I feel like i will be zipping forward then hault in my place and fly back in to my body... thats what i mean by aura, the other type i have had recently is when walking and stressed Like durring finals week and i have not gotten enough sleep. it feels like my right leg slips through the ground like in a invisable hole. and then pops back out when i take my next step. it does not physically Change the way i am walking when it happens it just is the weirdest sensation ever........

AS for tests If u could get a EKG AND EEG combo. it sorts out cardio and the brain stuff all at once.
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327385 tn?1378360731
thanks jo,my headaches have been on an every day thing for 3yrs . but not as bad as this.had cat scan in er said everything normal. my doctor wants money before you even go back, shes just money hungery! my resting heart rate is 99  and in 24hrs went up to 180 2times. im thinking i have low pituitary hormones all are low normal. she just rolls her eyes at me. i havent took any pills yet-im scared to. my dad has a pacemaker because his blood pressure drops, mom told me they would make me very sick .with my palps i get dizzy and sweaty and chest burns.  son got his cast off thursday and is in a hard bottom shoe. how are you and your daughter doing?  maybe we can both get a dx soon ,im going to try a DO. keep me up dated on you both amd take care of yourself,bp
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341190 tn?1295467125
Hi Bp, sorry to hear your not too well right now, and dont think for a minute that your venting on me your not, are your headaches conneted to your heart palps? sounds to me like your doc has no time for you which is horrible so i would definatly see a new doc, my doc said that on a day to day basis although my blood pressure is on the low side its not low enough to worry about but on a day when the stress has built up then it suddenly drops and so do i, what is your pulse rate on resting? mine goes to between 55 and 60 should be around 70 for my age, if blood pressure becomes low for whatever reason, ie stress illness etc it can present a lot of differant symptoms, tiredness, fatigue, headaches, aches and pains, and the obvious passing out,  have the pills helped at all? seems like you are going the other way as in heart racing, we havent been to france yet we are waiting till next month after my daughter has finished her exams, how is your son getting on? hope you are feeling better, jo
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327385 tn?1378360731
hi jo,well ive been down with a sick migraine for almost a week. went to er and dident help much. my doctor pissed me off .i wore a heart monitor last month for heart palps and just got results friday. my heart palps up to 180 beats min but she said shes not worried about it !! blood pressure is 120/80 is very good and she gives me blood pressure pills to help my herat rate and headaches ? i was in so much pain she dident help me at all!!! im going to find a new doctor . reading your post what would happen if my blood pressure dropped? im sorry im venting on you but i think my docs crazy. sounds like your doctors checking everything and hopefully you will find what is going on .how was your trip? again im sorry for venting on you!! keep me updated,brainpain
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341190 tn?1295467125
Hi Bp, hope you and your family are well, well i went to my hospital appointment on thursday, the doctor thinks i might have reflex anoxic seizures which is my blood pressure suddenly dropping causing me to pass out, i have to go for a few tests, a tilt table test, an mri scan an eeg and then an insertable loop recorder to monitor what my heart is doing while having a blackout, hopefully these tests will diagnose my problem,
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Avatar universal
different medications have different side effects and difference in dosage can change these.  most epilepsy drugs cause tiredness nausea to name a few best way to know is look at your own pack to see what the information says as some side effects can be dangerous,  you need to know what is normal for that drug.   most people notice changes when on a new treatment especially when the dose is increased/decreased,  altering the dosage should only be under medical advice/supervision as stopping or reducing drugs for epilepsy can be very dangerous.
i was epileptic from the ages 4-14 when i suffered from grand mal seizures tried almost every drug i think until one suited,  drs thought i had grown out of it until i started having new episodes at the age of 21 for no apparent reason,  tests showed it was epilepsy again just a different type caused by hormone (cataphenial),  although i am no longer on any medication now and have been seizure free for almost 6 years.  i wouls advise anyone to keep a well being diary,  when seizures happen what you were doing who was there what happened diet etc how you felt afterwards and how long episodes last.  even where in your menstrual cycle you are as some types of epeilepsy are triggered by the change in hormones.  all this information can help Drs decide whats wrong and the best way to treat and also you may learn what might be a trigger for your own attacks.  i stay out of night clubs and dont watch programs with strobe lighting as i know this is a trigger for me,  i also eat smaller meals more often as hunger was a trigger,  i used to get an enormous headache/migraine before a seizure this was the only warning, although i dont always have a seizure with a headache,  it was like the worst headache imaginable to me and it sort of built up until i had a seizure then i was ok until the next one,  so i take headhache pills as soon as i feel a slight twinge so it dont get that bad.
i was a single parent with a 4 year old daughter when i was rediagnosed and the epilepsy nurses showed her how to place me in the recovery position,  which probably saved my life a few times as i always bit my tongue and had a mouthfull of blood when i came round and always bumped my head on the way down needing a few stitches and head x-rays on a few occasions too,so she was taught how to get help without being in a panic and everything was explained to her so she wouldn't be as scared.  so i also recommend educating everyone you live with on what to expect and what to do then they too can help you in the same way and with being in a panic.
i now lead a very normal seizure free life and drive and even as a child my parents tried to make everything as normal as possible.  society's attitude has changed so much over the years, and so has treatments so things can only get better.
wishing everyone the best of everything
Geebop
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327385 tn?1378360731
hi jo,i was mad because he said that was the day it would come off !! I i think it was just to charge my ins for the visit,and xrays he lost my sons xrays-just within 2 weeks.do you take meds for your migraines? doc wont give me anything worth taking.i have to wait till my eye swells almost shut and head gets sore to touch.doctors here are so scared to give pain meds.it sucks to have to go to the er to get relief . a break in france wow !! sounds great,it will do you good to get away.good luck on your test and take care of yourself,bp
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341190 tn?1295467125
Hi Bp, Think they would of told you about the cast before you kept him off school, yes i have had a migrane for nearly a week dragging me down a bit now, started off with flu like symptoms just cant seem to shake it off, my daughters appointment for cardiology is on mon and mine is on thurs, then we are treating ourselves to a break in france for a week something to look forward to, we have friends who own a house there so we get to go whenever we like free so just the fare to pay for, leaving the kids with my mum well my daughter my son is old enough to stay on his own, will let you know what the hospital said, bye for now, jo
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327385 tn?1378360731
hi jo,took him to get cast took off,then his doc said not for 10 more days. i was angery,my son told him he said it would come off today.i was mad because i kept him home from school that day.oh well its for the best i guess.do you get migraines? when i have a migraine it last for days-have to stay in dark.rest and take care of yourself,brainpain
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341190 tn?1295467125
Hi Bp, just an update for you, still struggling with a horrible headache not sure now if its the flu virus or anxiety, just feel like staying in bed, how is your sons leg now? take care jo
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327385 tn?1378360731
hi jo,sorry to hear your sick. hope you are feeling better .my son cast comes off monday!!the podiatrist said he broke his growth plate in his foot.he is doing good. good luck on your test, brainpain
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341190 tn?1295467125
Hi Bp, well i have been in bed for the last few days with flu, typical eh i just start getting some normality back and this happens, headache has been terrible making me feel sick too, not long to go now untill my tests thank goodness, how is your sons foot, when does he have his plaster off? take care jo
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