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Epilepsy - MS - ?????

Epilepsy - MS - ?????

I am really confused with my ongoing symptoms and would like any advice or direction.  These last few weeks have seemed like an eternity and I am still awaiting answers.  A few weeks ago I started having some visual changes and felt a little "out of body" while sitting on the couch. I awoke to my husband hovering over me telling me I just had a seizure.  It only last a few seconds and I only remember the odd feelings before (I have had these feelings before and I just thought it was something I ate).  I did not lose control of bowel or bladder but was a little disoriented and sweating profusely and then I felt fine.  My husband forced me to the ER where they did a CT scan (it was normal), said they dont treat first time seizures and told me to follow up with the PCP.  

My PCP ordered an EEG results:
    
      Focally abnormal EEG indicative of left temporal lobae structural lesion.  Slow wave activity from left temporal
      phase reversal at T5.

MRI/MRA (no contrast) results:
MRA - A1 segment of left anterior cerbral artery is tortuous and hypoplasitc

MRI -  Few non-specific white matter T2/FLAIR hyperintense foccie, possilby due to MS
     Small non-specific left retrocerebellar fluid collection of questional clinical significance, possibly communicating
     with a generous cisterna magna (7mm depth by 25-30 mm transversely by 5-6 mm in cephalocaudad dimension
     could be an arachnoid cyst although appearance not typical)

A few days later I developed sudden vision loss in my left eye and went to ophthalmologist he sent me to see a neurologist on an emergent basis - was dx with optic neuritis and put on IV and oral steroids.  Vision is getting better.  He also did a spinal tap (which was negative), several other labs (said B12 was slightly low at 258) and another MRI with contrast.  I developed a spinal headache and when I went in for a blood patch the ER doctor said MRI results showed 10 different areas of demyelination.  I see a neuro in a few weeks.

I had a MRI/MRA in 2000 for some dizziness and nystagmus it showed:
MRA - aplasia or marked hypoplasia of A1 segement of the left supraclinoid carotid artery

MRI - 2 possible arachnoid cyst in posterior fossa, one in the midline and one posterolaterally on the left (2 by 1cm).

My father has epilepsy and MS but the neuro I saw for my neuritis says it does not matter that it is not hereditary.

The research I have done says it is rare to have seizures with MS.  I have some intermittent numbness/tingling in my hands and arms at times (very slight), night sweats for over a year, and some chronic mildly enlarged lymphnodes in my groin and neck.  I had one bx in my groin and it showed as a reacitve node.  My concerns is that I had some minor symptoms eight years ago and they were dismissed and it was suggested I lose weight.  I have lost 150 pounds.  Is there any siginificance with the cysts and is it normal for demyelination to appear that way.  I do not have headaches or have had not head trauma  Is there a corelation between the EEG and MRI?  The doctor also ordered a VEP but I do not know the results of it and am curious to how accurate it would be with the neuritis.  The neruologist I am scheduled to see next week is the same one I saw in 2000.  I realize my symptoms have changed a bit but I want to take control and not be dismissive.  I have already lost my driving privileges and am concerned with the affects of this on my career.  Could you please give me any suggestions or any ideas as to what might be going on?
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Sorry to hear your having such a terrible time, I really can relate!! I originally thought I had MS, had full work up all negative except few white matter lesions non-specific. I was recently diagnosed with having seizures and am now on meds.
I do hope you go to a really good neurologist you may want to consider getting a second opinion after you see your original neurologist since he wasnt quit clear when you originally saw him in 2000.
Boy can I sympathize with the spinal headache, had it twice its awful even after blood patch. Drink plenty of fluids, especially caffeine.  
wish i had more to offer, you may also want to post this on the MS forum, they have wonderful advice to offer ( put attention Quix, she's a MD by profession who also has MS) she gives wonderful advice.  
Wishing you lots of luck with all your testing.  MB
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