My symptoms are that i am very tired all the time, especially after my seizure. I don't feel myself for long periods of time. This is not like me as I am a very active wife and mother of two boys with a full time job. However, I had my very 1st siezure one week ago and was admitted to the hospital for several days. Nothing showed on the CT scan, MRI or the EEG. But... I didn't have a seizure during the EEG.... are these tests absolutley conclusive when looking for reasons for recurrent tonic-clonic seizures in an otherwise healthy 29 year old female??? I mean I keep having them and it's really getting me down. I am on Tegretol and other meds for controlling it but just don't feel any different. This all started with me having a headache that lasted a month. Nothing seemed to help it. It made me sick to my stomach and the 1st time I had the siezure, I was in bed and that's what my husband came home to. I have not been right since. Will this go away? Is it Epilepsy, or what? One doctor says maybe another one says it's stress. What am I to do .... keep popping pills forever? I mean come on! This is scaring me & my family. I don't want to deal with this but if it is to be dealt with than where do I go for more specialized help? I am in the Savannah, GA area.
Thanks for any info you can give. I am at my wits end and I think I am losing my mind.
Sometimes your seizures do not show up on an EEG but, that does not mean you do not have a problem. Seizures do not show up when you want them to. They have to be triggered to show up on any testing equipment. There also has to be a cause for your seizures as well. Some people have accidents causing seizures, some are born with them, and some claim that they come out of nowhere. (idiopathic) This I do not believe for there is always a cause for seizures and through medical research you will discover why you are having the seizures further down the road of life.
Me I would not like to have my type of seizure triggered because, it would be like vulumteering to go through the gates of hell again. You see, I have Complex Partial and Grand Mal Seizure from three Traumatic Brain Injuries all in the Frontal Lobe Region of the brain. I actually stop breathing while having my big seizures for, I am one of those people whom cannot get controlled by medications.
To me, and remember I am not a neurologist but, it sounds like Frontal Lobe Epilepsy. The name and comcept of Frontal Lobe Epilepsy has just recently been researched and tested and found to be an entirely new seizure disorder. So, if your seizure were caused by head injuries to the frontal lobe and/or white matter on either side of your head, it would have been in the Frontal Lobe of the brain.
The question remains, how did you get your seizures in the first place? Was it through head injury, through sickness and high fever, or was you born with it?
What does your Neurologist say about the findings?
I can understand the concern, because after a seizure, I'm completely tired and want to sleep. I have had EEG's and they have been normal, but medication still doesn't control it and have been having them for 6 years and I'm 30 years old. I was at Mincep in Minnesota and conected to a EEG machine for 2 weeks, I did not have a seizure, but I did 1.5 hours later after I left the hospital. So I just wonder if EEG's are beneficial tests, because some people have normal results, but still have seizures.
You said you had a seizure after leaving the hosp when the EEG was removed. Same thing with me. I think with the Equipment on we are so limited to what we do and where we go, that things that trigger the seizures are not experienced.
In my case they were comfirming absence or partials. The tech person told me to chill out for the 24 hours and not move around too much, because if the wires move they give a false reading or could come lose from the head,
In my case things that set me off are motion, things quickly moving around me, me walking around or making quick turns, moving rushing/pouring water, shiny things or standing in boring places.
So, ya same thing got into a crowed commotion and zoned out there in the hospital right after the EEG equipment was removed.
Whats up with that/
Oh, I started these zone outs 4 years ago after being rear ended at a stop light by a Jimmy. Had back neck, rotator cuff damage and constnt dizziness and brain injury, I had a major head/brain injury at 6yrs ending up with a plate in the side of head but not seizures but tons of scar tissue on fronal and both tmeperal lobs. Temporal lobs show atrophy,
So finally it took from 2006 to 010 for these zone outs to be actually called seizures. Taking Topirmate 100mg for 2 month now. still having some, but numberwize they have decreaed a bit
anyone have any comments about my condition I like to hear. I don't find much info on adults with abscence seizers. I can be walking and have them and end up in the middle of the road, or stop in walking like parking lots or isle ways of stores/ zoned out for seconds to minutes at a time.
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