Gelastic Seizures

[LaurenZ]

My Husband Started having Gelastic Seizures at age 30 (about 5 months ago). He has no history of seizures of any kind. These seizures began with a two month period of both absence seizures and gelastic seizures and has progressed to multiple gelastic seizures daily, usually at the end of the day and during his sleep. We are very limited financially and have no health insurance so we have not yet been able to afford his prescribed medication. I tried to do some research on my own about gelastic seizures and I have only found case studies on children. I  was wondering if these seizures have any damaging effects on the brain, since we haven't been able to start his anti-seizure meds yet. I was also wondering if these types of seizures are known to become progressively worse in adults.

[BonnieJ956]

I have had gelastic seizures all my life.  I didn't know what they were called until I went up to N.I.H. and was diagnosed with Pallister Hall syndrome.
The seizures last maybe one minutes or so, I have the trembline, a laughing sensation and sometimes tears start rolling down.  awful stomach sensation and sometimes nausea.  I have been on different type of med thru the years.  About 5 years ago I went on an herbalife program and started losing weight.  My brother introduced to me to a vitamin called Total Control.  I started taking this vitamin three times a day and found out my seizures were being controlled.  Ever since then if I miss a dosage for about two to three days I will have a seizure.  The Dr. doesn't understand what could be that is helping me, I don't know but I have my seizures under control Thanks to God and this vitamin.  My other Dr. didn't believe me and I don't really care but I haven't stop taking this vitamin just thought I would comment to you all readers about this -- Bonnie

[cdpye]

i have had memeory loss and a gran mal seizure . these come up without notice i am awake but not making sense cant remember anything that happens my eyes roll back usually out of it for several hours and now its thurs this happened tues i have to ask my husband what happened . i am on 1500 mg of keppra . now the neurologist says it may be conversion syndrome has anyone known of this i need help .i cant even drive always afraid . i have a long history of migrains and am diabetic and have a heart stent . i am only 53 and have a 12 yeare old and a 9 yr old . i am talking to my husband but i have no clue what i say or do .

[Abhijeet Deshmukh, MD]

Hello.

If your daughter has Gelastic seizure, chances are that the cyst is somewhere near the hypothalamus. Have you discussed further treatment plan for her, with the doctors?

Regards

Abhijeet Deshmukh, MD

[griben]

my daughter has had seizures from birth we have allways thought it was because she was born with the cord around her neck and she was not breathing she was treated by alderhey hospital until she was fourteen but they never diagnosed anything it was only when we took her to walton neuoroly centre they looked at her old scans and told us she had a cyst on the brain and she has been suffering from gelastic seizures

[Abhijeet Deshmukh, MD]

Hello.

Though more common in children, adult onset Gelastic Seizures are also known. These seizures are known to affect the cognitive abilities and may progress to generalized seizures, if not treated promptly.

Regards