I don't know what's going on! Help.

[MadiBogden]

Okay. Well I'm very prone to passing out I guess. I pass out if I stand (even if I take my time getting up), sometimes when I'm in the bathtub because it's really hot and sometimes when I reach out. But when I pass out my eyes roll behind my head (dad saw me one time) but Everytime I pass out my body has jerking movements and I cannot stop shaking until I wake up. When I wake up. My body is still jerking until I try moving. I've almost hurt myself several times and I need to know if this is seizures or anything. I need to know what to do

[carrie15]

Defnitely go to see a NEURLOGIST! I and insist on EEG . I t sounds like the Tonic Clonic seizures which can be quite severe. Do you have terrible head ache afterwards? When your seizures come on all your nerve endings go in your body, so when you fall and hurt yourself yo will feel the pain afterwards when it rights itself. When I had them I sat against a boiling hot radiator, but certainly felt the pain after the seizure, when I came to. Go to GP and insist on being referred to a NEURO. Good luck, give us some feed back if get some answers, Good Luck, Carrie15

[MadiBogden]

And I wake up kind of confused. Like I know I passed out because I'm on the floor and I'm still shaking until I try to move. I never know how long I have been out. And before I pass out. I guess I don't know what happens because one time. I don't remember even falling but I had to because I woke up on my bed.

[MadiBogden]

Before I pass out I get super dizzy and shaky.(normal shaky) my vision goes black and I can't hear or see anything and I fall backwards and the real shaking of my body starts.

[spitfire2]

I forgot to add, in the top of my prior note, that I of course find the fact you go unconscious very concerning as well (in addition to the shaking and jerking movements you mentioned.)  Sorry for the slip!

[spitfire2]

It's hard to say for sure....it's the shaking and jerking movements which you describe above I find concerning, and rolling back of your eyes, as this can happen during a tonic clonic seizure.  Do you feel confused when you wake up, like you're not sure what has happened for some time?

Again, in light of what you mention now it again could be possibly syncopy, where you go unconscious due to temporary lack of oxygen to the brain.   Do you have any dizziness or nausea also, just before you pass out?  Or do you have issues with low blood sugar, or hypoglycemia?  I do hope you see a neurologist very soon, as it's very important you get the correct treatment for this.  Good luck, and keep us posted as to what transpires.  I hope you are able to find some answers soon

[MadiBogden]

Do you think they are still seizures even though I only get them whenever I stand up from sitting, laying down, or reaching upwards.?

[spitfire2]

I meant tonic clonic seizures, or primary generalized seizures, often still referred to as "grand mal" seizures.  Again, you should see a neurologist--can't emphasize this enough, really, really important to get this diagnosed.

[spitfire2]

It sounds like you may be having tonic-clonic (primary generalized seizures.)  Do you have any odd sensations in between these events, or just before you pass out/start shaking?  I REALLY think you should see a neurologist--having uncontrolled seizures is very serious (or even just passing out, i.e. syncopy), especially if you are swimming or in the tub, near a stove, etc. Good luck--