Hello my daughter (13) was born having seizures. She has been diagnosed with refractory complex partial and generalized seizures. She has also been diagnosed with seizures during sleep. I noticed recently when she is sleeping she would have these movements that looks like twitching and shrugging her shoulder/s. Sometimes her shoulders and arms will jump up inches off her body. Sometimes it would happen 1 or 2 times in a row sometimes up to 10-15 times rhythmically. Sometimes it's both arms at the same time and sometimes it's 1. Sometimes it's the fingers, head or the face (eyes, mouth, cheeks) and sometimes it starts with the fingers then goes to the arm then head/face and other arm. I have even seen her stomach twitch. Sometimes they arouse her to make her turn over. Then it's like they start all over again. My daughter also has them anywhere from 1 sec. to a few seconds to 1 minute to a couple of minutes apart. All the way to a few hours apart. I notice it more in the morning before she wakes up after the nights sleep although she also does it if she takes a nap. I have been video taping her while she sleeps and her pedi neuro said she had Myoclonic jerks, but didn't feel like they were seizures. She said the jerks I showed her are every second and that wasn't fast enough to be a seizure. How fast should they be to be considered a seizure? I showed her on a 3" screen. So I don't think she saw it that good. I am confused as to why this is happening she wakes up with real bad headaches. She has also had since birth at different times where her tongue quivers for a while then it stops. The pedi neuro didn’t know what to think of it. Now I have seen and also taped where her arm does this weird movement. I wasn’t sure how to describe it, but my little boy said her arm moves like jello. So it shakes in small increments sideways not like a muscle twitch that jumps vertically. I showed the pedi neuro and she wasn’t sure why or what was happening, but isn’t concerned. Should I be? She is on 5 different seizure med. Carbatrol XR 1600mg a day, Lamictal 800mg a day just dropped to 400mg a day, Phenobarb 194.4 mg at bed, Topamax 400mg a day, and just added Depakote XR 500mg a day. We had just completed another Neropsych eval. And it shows that she has declined mentally we are not sure if it is because of medicine or the seizures. We are changing her meds around and will be taking her off some and do another Neuropsych eval in the fall. Any thoughts would be greatly appreciated. Thank you.