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Myoclonic Jerks-can't find a med that works
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Myoclonic Jerks-can't find a med that works

Hi, I have frontal-temporal lope epilepsy from a head injury.  I have complex partials that sometimes progress to generalized.  I take Zonegran 400 mg for them which works except under stressful situations like surgery or hypoglycemia.  I also have Myoclonic jerks daily.  Every time I have a generalized seizure they get worse.  Not only do I have obvious jerks in my upper body but I also make noises along with them that are so embarrassing I don't go out much anymore.  Meds do not control them anymore.  I have tried Klonopin, Imiprimine, Topomax (topamax), Depakote, Lamictal, Trileptal, Keppra but nothing helps.  My neurologist has even tried Botox in my shoulder, neck & facial muscles.  It helped somewhat but it didn't stop them completely and brought other problems like not being able to lift my head up off of my pillow and it didn't stop the noises.  Has anyone out there tried any other med combo or treatment that works?  I am just looking for some other suggestions.  Thanks.  
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You really need to talk to your doctor.  You need to make sure that you having your blood drawn regularly to look for the antibodies.  
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