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NES/Conversion Disorder
3yrs and still no doctors to treat NES/Conversion Disorder
by SophieRay
, Aug 27, 2008 10:43PM I originally posted this in the wrong area.
Tags: disorders, conversion, stress
We are in need of finding a qualified doctor who can review our sons medical records and determine if there is something else going on besides NES/Conversion Disorder. The medical community has not been willing to consider other possible contributing factors (Exposure to chemicals from a drilling job, exposure to heavy metals from a metal factory, severe reaction to the drug Keppra, over medicated while in the hospital to the point of having to be put on a ventilator, numerous head injuries from 5th grade to the present, , helps out on a dairy farm & is daily exposed to ticks, etc.) The neurologist say there is nothing they can do and the psychiatrist believes their could be something more going on from a medical stand point. My son is stuck in the middle-Over the last year he has become very frustrated with the medical community. So far they have done more harm in helping my son than any good. His seizure activity,episodes, what ever you want to call them are getting worse. The other night my husband, daughter, and I cried while our son was in one of the most difficult seizures we have faced yet. We feel alone, weary and desperate to find someone who will show compassion, knowledge, and be willing to look into everything from the beginning. If we take our son to the hospital they will simply medicate him and tell him he is crazy and does not know how to cope with stress. We want our son back.He has said to us "Yeah, every doctor so far has been highly recommended, I get my hopes up, and I am worse today than a year ago."I have read more literature on NES, dissociative, conversion, complied a file on our son that includes video footage, timelines for head injuries,psycholgical information, medical records, etc.e have a file of all the doctors, counselors etc we have called over the last year and their response is all the same.I am sorry I am not qualified to help your son or I am sorry the doctor is not taking new patients' Help.
by SophieRay
, Aug 27, 2008 10:43PM I originally posted this in the wrong area.
Tags: disorders, conversion, stress
We are in need of finding a qualified doctor who can review our sons medical records and determine if there is something else going on besides NES/Conversion Disorder. The medical community has not been willing to consider other possible contributing factors (Exposure to chemicals from a drilling job, exposure to heavy metals from a metal factory, severe reaction to the drug Keppra, over medicated while in the hospital to the point of having to be put on a ventilator, numerous head injuries from 5th grade to the present, , helps out on a dairy farm & is daily exposed to ticks, etc.) The neurologist say there is nothing they can do and the psychiatrist believes their could be something more going on from a medical stand point. My son is stuck in the middle-Over the last year he has become very frustrated with the medical community. So far they have done more harm in helping my son than any good. His seizure activity,episodes, what ever you want to call them are getting worse. The other night my husband, daughter, and I cried while our son was in one of the most difficult seizures we have faced yet. We feel alone, weary and desperate to find someone who will show compassion, knowledge, and be willing to look into everything from the beginning. If we take our son to the hospital they will simply medicate him and tell him he is crazy and does not know how to cope with stress. We want our son back.He has said to us "Yeah, every doctor so far has been highly recommended, I get my hopes up, and I am worse today than a year ago."I have read more literature on NES, dissociative, conversion, complied a file on our son that includes video footage, timelines for head injuries,psycholgical information, medical records, etc.e have a file of all the doctors, counselors etc we have called over the last year and their response is all the same.I am sorry I am not qualified to help your son or I am sorry the doctor is not taking new patients' Help.
He is no longer on Keppra. We have even contacted the FDA regarding this drug. I would not recommend this drug to anyone. It was only after taking this drug that our sons seizure activity took a turn for the worse.
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