Hi! I have JME as well and am 16 years old. Thr doctors said i've had it since i was 6, but they never diagnosed it until i was 10. This is due to them saying it was A.D.D, because i would stare off in the distance, however, it was seizures all along. My seizures were also partially caused by a sleep medicine i took when i was 6. I used to have twitching in my face, but it went away. I have no more twitching. The twitching is due to the seizure activity and is common with JME patients. I take trileptol 600mg. I'm positive that the twitching is from the seizures. I could be wrong though. I hope i was helpful :)