New here

[kirstyp991]

Hi everyone
Im new here, was diagnoised with epilepsy in feb, iv had 4 seizures, all 4 i have ended up in hospital. I am on 200mg of lamictal and 10mg of clobazam. I keep having strange episodes and im unsure of what they are and was wondering if anyone could help me, I get these weird feelings like pins and needles in one side of my body, become dizzy, have a weird smell and become very confused and sometimes its like im in a dream, i can hear whats going on around me but my vision is blurred and i cant respond, then i have a twitching episode that lasts around 20-30 seconds. Does anyone know whats happening to me? i have a neurology appointment next tuesday so will discuss it then but was just wondering if anyone else experiances this or knows what it is?

[kirstyp991]

Thanks so much for your reply, my neurologist put my lamictal upto 300mg a day now, still having weird episodes so having a MRI scan on the 11/10 hopefully we will get some where then. Hope your doing well xx

[kirsty702]

Hi kirsty , my name is kirsty lol ,  i have just been confirmed as epileptic and i have some of the things that you have talked about i dont just have seizures (shaking ) i also just before i am about to have a fit get pins and needles down my arms , feel dizzy , and also can hear my own heart beat in my head , but my fits have not just been shaking i have also had halucnations and had conversations with people that i can not remember , also my husband said that i have spoken in a funny voice like my speech has just slowed right down and when he trys to talk to me i dont make any sense at all and then mins later i have snapped out of it and has no idea what he has been talking about , the doctor said to me that a fir doesnt need to be falling on the floor shaking it is different for everyone , eg, feeling dizzy confused , seeing things that are not there , lost of speech , body funtion , fainting , the seeing things that are not there has been the most upsetting for me as i thought that my son was in danger and at the time it all seems very real , i hope you get the answers you need , and if you need to talk to someone who is also new and confused about this , just drop me a line , take care x

[kirstyp991]

Thanks for the reply, i have neurology appointment today so i will discuss it with him. Thanks so much

[flipper336]

It sounds like you are having another type of seizure than you are use to. Not all seizures have the same symptoms for everyone. Your doctor might have to raise your dose, or even change the type you are taking.