Please Help

[Apryle]

I have had epilepsy all my life, severe grand mals. Pretty much controlled unless stress really hits me which it has alot here lately. I am 40 yrs old and i just married the man of my dreams. He knows a little bit about my seizures and has read up enough to know how severe they can be but not enough to understand it completely. In the last 6 months my seizures have gotten worse because of the new life style and putting 2 families together and trying to help my new husband with his business. (im guessing, not bad stress but stress)  In the last past 2 weeks things have really been bad, i dont have health insurance just yet so seeing my Dr everytime a problem happens is out of the question but i did see her yesterday about some problems.
We are now having problems, my seizures are worse and they have effected my memory severely. So severe i can hardly remember what i do and how i do it. This has caused problems because i have made some hug mistakes with our finiances and he wants me to explain how and i dont know why i did what i did or remember. He thinks i am crazy im sure but this has caused problems my whole life with memory issues but not this bad. I guess i would like to know if any one else has severe memory issues and how they cop with forgetting everything or making alot of mistakes because your so tired all the time. I hope i havent lost my husband with all this. I am on Dil and now hopefully when i get insurance my Dr says she can put me on a anti depressent to help calm me down. Please if anyone has gone through this please reply, I need all the help i can get. These seizures are controlling my life and effecting my marriage

[whitneyk]

Hi Apryle,

my daughter has been having grand mall seizures since she was 8 years old and she is now 16.  she was on epival for 7 years and because of hormones this al changed and she grew out of the meds.  She is now on Topomax.  she takes 125 mg twice a day.  and they seem to be under control unless she is sleep deprived or under stress.  she is currently going into grade 11 and gets very confused.  she will be talking to me and in mid sentence, she will just stop and try to remember what she was sayng.  This is very frusterating to her, and she gets very upset.  Her memory loss is significant also.  she looks at pictures and she is ok with long term memory, but short term memory is very bad.  Which makes it really tough to do High School courses or any work at home because she can't remember what she was doing or what she has done already.  She gets really depressed because her friends have seen her have a seizure, but she has not seen herself have one.  She has not idea of when it will happen or that it has except that she bites the side of her cheek and her tongue.  She wants me to take a video of her seizure the next time she has one... I am debating whether or not this is a good idea or not.   I don't want to scare her.  Has your husbband ever seen you have a grand mall seizure?  There are videos at your local library or you can go on line to the Epilepsy Foundation   I hope some of this history helps you with your dilemma.  I hope that your new husband understands that Epilepsy is nobodys fault, its just one of those things that happen like diabetes...It took me a long time to stop balming myself for my daughters condition.   Good Luck with your situation...Please let me know if you want to know anything else...

[dollyn]

I am so sorry that for what you are going threw.

My son who is now 10 started having seizures.when he was 6 years old.And is having a hard time learning.Do to the fact that he cant remember things he has learned.And I know how hard it can be on a family.And at times he has know idea what he has done.
And can't even tell me what he feels before a seizure or after a seizure ,and also tells me he has not had one when I tell him he just had one,and gets made at me.

Have you looked into the VNS for your seizure.My son just had the surgery on June 24th this year.And we are hoping to see a change soon with it.

best of look.

your husband should come on in here and read what other people have to say.

God bless you and keep you safe and strong.