Possible ADEM and crazy

Hi, I got a flu vaccine in 12/08--immediately got illness with fever--in mid january had 'dystonia'--neck still rigid and tilted. Got the actual FLU with confirmed dx in end of January '09. Immediately got seizures--confirmed from videos my husband made--labeled 'complex-partial.' Then basically went a bit crazy--out of no where with no event to precipitate such 'craziness.'  A neuro treated the Dystonia with Botox in March '09--but I had no idea the 'episodes' were seizures until the videos were seen by another Neuro in August. In September had brain MRI and EEG--both came back normal but was referred to another clinic with stronger 'magnet.' I have pain and numbness and tingling in my fingers--very moody and irritable--and a bit crazy and confused. Repeated infections every six weeks or so--I have NEVER been sick in my life until this year--and I am not GOOD at it!!! I have lost 35 lbs--do not have appointment til February 2010-- getting sicker and weaker--and sad--anyone had behavior changes? any suggestions for getting help?