Pseudoseizure/psychogenic NOT epilepsy

[Emiri99]

I was diagnosed with pseudoseizures 2 years ago and have one every few months. When they occur they very much appear to be epileptic grand mal seizures. When I fist started having them I was taken to the ER by ambulance and was treated as an epileptic patient. I then had tests done to confirm that it was not epilepsy. I was then treated very badly in hospital after my results were known because my seizures were not thought to be "genuine". I have a history of major depression and my psychiatrist has told me that my anxiety has manifested into a physical symptom.  Pseudoseizures or psychogenic seizures are clinically recognized to be uncontrollable yet even my neurologist implied to me that he thought I was faking my episodes. MY QUESTION is why isn't there enough support or discussion on this topic? Why can't I find any forums on the net? Has anyone else experienced this similar treatment?

[lovemykids465]

Wow. You too. I have a 17 year old daughter who has pseudo seizures. Had some today while in Physical therapy ( hyper extended knee) .They rushed her to the ER where a doctor got in her face and told her to quit the theatrics and grow up. This only made them worse, She has an immune disorder and has been in and out of the hospital for the past 7 years and the psychiatrist said this is her bodies way of dealing with the overload of pain and frustration. But now I have a mess on my hands due to the jerk in the ER. I wish there was some more info out there or at least support. Found out she was skipping doses of depekote because of the knee injury. She is a runner but can not run for a bit and the meds make her hungry so she was not taking it every day but every other day to help her not eat as much ( only 120 lbs) b/c she can not run and did not want to gain more weight.

[CassandraNelson]

Hi. I have epilepsy and after a stay in the EEG monitoring unit, they didn't find epileptic seizures. They told me they were behavioral spells. I never heard of them before. The epilepsy team just gave me one sheet of paper with a brief description and told me I could go home after only one night in the hospital. My friends were mad! Being as I have the photosensitive variety of seizures in the first place my mom thinks I should have a different AED altogether. The problem is is that my Depakote is also my mood stabilizer. I feel like I've been totally ignored by all the doctors I've met with. Makes me quite angry. I could have a combination of both "pseudo" and epileptic seizures I know. I'm only concerned about the ones I'm sure of being epilepsy related. My doctor put me on more Depakote and told me to come back in a few months. I agree that there needs to be more support.