Epilepsy Community
Right Temporal Lobe Hemangioma Surgery
About This Community:

This patient support community is for discussions relating to epilepsy, safety, school issues, and transportation issues.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Right Temporal Lobe Hemangioma Surgery

I am a 29 year old female diagnosed with a cavernous hemangioma located in my right temporal lobe.  I have been dealing with seizures and attempting to get a handle on them for 5 years and I can only seem to get control over my seizures with the meds for a few months and then we have to add more or try new medications.  My Neuro and I are now thinking of going towards SURGERY?!  I am nervous yet excited.  I just want this to end.  I know the risks and they frighten me but the fear of grandmal seizures fear me more.

I am looking for anyone who has had this surgery or can give me any advice.....a been there done that kind of thing.  I would like to hear your story to give me some hope that surgery is a good step and the right choice to make.  I have two small kids and I just don't want them growing up with my epilepsy!!

Thank you in advance for your time.
Erin
Related Discussions
Avatar_dr_f_tn
Hi there!
You are very apprehensive I understand. Your surgeon might have advised you surgery since you have been having uncontrolled seizures. In general, surgery is usually recommended if the risk of brain surgery is outweighed by possible negative consequences of new hemorrhages .If the angioma is in an easily accessible area of the brain and it has been proven that the angioma is causing uncontrolled seizures surgery may be indicated. The risks and outcome of surgery depends on many factors like location and size of lesion, preexisting brain damage due to the lesions and general health of the patient. In your case I think it may be necessary to have the angioma removed. Seek opinion from experienced doctors. I sincerely hope it helps.
Take care and good luck!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Epilepsy Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
5466288_tn?1368589770
Blank
cramp_n_mystyle
IN
Avatar_f_tn
Blank
teddybears4ever2
Minneapolis, MN
Avatar_f_tn
Blank
spitfire2
chicago