Ive had 3 EEG's come up suspicious for seizure activity since a car accident in 05'. They managed to get seizures triggered during a recent test but got NO EEG readings.
SO this doctor tells me I have Psychogenic Non-Epileptic Seizures. I relate this with a Panic Attack. That by the way its explained, its emotion response to being nervous or what not. Its not supposed to be caused by electrical miss-fires.
But he tells me with this type I cant be having them in my sleep, but I DO have them. And wake up feeling like a mac truck has hit me. Some times I even dream that Im standing beside my self watching my self seize but I can feel all the pain just as I do when awake for them.
My seizures can really leave me out of it for days. Pain, bruising, exhaustion. You name it. I often have an 'aura' before hand. At times Ive had scent seizures, where I smell rubber or menthol. I loose speech and coordination. And people can watch my mussels jerking as well as my limbs or body.
This is effected by meds as well, which can make it much worse. My dogs woken me up from them and my previous service dog saved me from suffocating in bed twice. They alert to them before they happen at times.
I have a range in types and had seizure changes after the last EEG. I react to flashing lights or some kinds of flickering lights in stores or restaurants.
Could this be a miss-diagnosis? Should I be seeking a second opinion or accept this one? I recently spoke to a woman who said she was blown off by the same doctor but was finally diagnosed with EP. She told me that some times the seizures can be deep in the brain and an eeg wont pick them up. Is this true?
What the lady told you about the EEG is correct. If the part of the brain that is the cause of the seizures is located deep the only way a EEG would locate it is if they put the sensors on the brain it's self. Go get a second opinion from a specialist.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.