Aa
A
A
Close
964031 tn?1247234428
Spinal meningitis and epilepsy link?
I was diagnosed with grand mal epilepsy a few years ago but my doctors and neurologist are all puzzled as to how I managed to go as long ad I did without ever having a tonic clonic type of seizure
I'll give you a little history before I ultimately ask the big question since it may help to answer.

When I was ten months old I developed the viral form of spinal meninitis. It about killed me but through God's grace and will I survived. I never had any kind of seizure at all but what I later came to find out what were auras I DO remember having all the time. Sometimes up to several times a day. I always chalked them up to me just spacing out but whenever they occurred I remember it being extremely difficult to break out of until they passed on their own. I've had them throughout my adult life as well until one day I blacked out and couldn't remember what happened. I had a few more and one was when I was with a friend. He described me as "just sitting there with a blank look on my face and unresponsive" to anything he said to me. I went to the doctor and was told I had petit mal epilepsy. He put me on Carbemazepine (so?) and sent me on my way. No tests. No EEG. Nothing. Just a quick "you have epilepsy - take these pills".  OK fine, you're the doctor. So I take the pills - 2 in the morning and 1 at night. They managed to prevent the blackouts but the auras were just as common as they were before. I became frustrated with the medication "not working" and just stopped taking them completely. They also seemed to have an overwhelming side effect of making me very aggressive and angry.  Once I stopped taking them my attitude returned to normal. For years afterwards I continued having the auras. No medication was being taken, mind you.

Then one day I was at work and that familar aura sensation returned. As usual I'd let it take it's course and go on with my daily routines but that isn't what happened.  I black out and all of a sudden I return to consiousness to find myself strapped to a gurney surrounded by paramedics. At the hospital I am finally run through the gamut of tests including multiple scans of my brain, etc. At first they tried to give me something called Aderol (again I am unsure if the spelling) but I start going into anaphylactic shock. It would seem that I'm deathly allergic to that stuff. They then try Dilantin and I take to it without any serious side effects.

My doctors and neurologist tell me that they've found some atrophied brain tissue that appears as though it's been there for a very long time and when I inform them that I had spinal meningitis as an infant I see some eyebrows raise but was never given a definite answer.

Having said this entire story which is probably longer than it should have been. Forgive me as I do have a way if both rambling and writing novels out of my experiences. Anyway, I've been mulling it over in my head ever since I heard the results of my brain scans. I have read that meningitis has been known to be a cause of epilepsy so could that very well be what has brought mine on?  I have had no other tonic clonic seizures on the new medication (Phenytoin now as Dilantin was discontinued) and every now and then I'll get a very light indication if an aura but I can fight them back. I've no family history of epilepsy nor have I had any other serious brain trauma.

Could the meningitis be the cause?
Cancel
0 Answers
Page 1 of 1
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
1415174 tn?1453246703
Blank
mkh9 When you've been knocked do... Comment
Nov 22
1415174 tn?1453246703
Blank
mkh9 uploaded new photos
Oct 10
Avatar universal
Blank
zahidkapariya commented on photo
Oct 10
Top Neurology Answerers
144586 tn?1284669764
Blank
1780921 tn?1462244109
Blank
Queen Creek, AZ
Epilepsy Community Resources