THEY DON’T KNOW WHAT I HAVE BUT THEY ARE THROWING SEIZURE MEDICATION AT ME

        After I week of being sick my doctor put me on amoxicillin because she thought I had sinus infection (with being sick I told her I kept getting a strange sensation/pressure every 5 to 10 minutes and would last for about 3 seconds on the right side of my head). Well that didn’t work and a week after I went to the ER because I began to smell a gas, burning, type of smell and feet a little foggy/dizzy. This would last about a minute or so, when that happened I had deja vu  (it happened about 6 times that day).  I told the neurologist this and he said it could be seizures and wrote me a prescription for oxcarbazepine (trileptal) and left it up to me of when I wanted to start it. 10 days after the appointment and after the EEG (showed a small abnormality in brain waves) and MRI (showed up negative). By this time the sensation/pressure I was having had disappeared but I started to take the mediation because my other symptoms have gotten worse, the déjà vu and the gas/burning and sometimes soapy smell came more frequently (about 25 times a day). I started with 150 mg of oxcarbazepine 2 times a day. After a week being on this my symptoms got more intense and more frequent. I started to taste what I smelled and it made me nauseous. Also my senses became more sensitive, and everything tastes really bad. The neurologist told me to take 300 mg of oxcarbazepine twice a day, and it’s been 3 days and I get my symptoms more frequently (so far today I have had them 39 times). I called the neurologist and he told me to switch to another seizure medication tomorrow.
Over the past two months I have been very patient waiting to finally feel like myself, but I only seem to get worse, this is taking a complete toll on my life, the déjà vu is so scary I can swear I have dreamt it before (but I “remember” something worse happening in the “dream”, although it doesnt), but I know that is irrational. The smell ***** and now I that I taste it I get nauseous and loose my appetite. I keep missing school for this and getting through work is really difficult. Right now I’m just concentrating on finding out what I have and no one seems to care enough to really put any thought or effort to getting to the root of the problem. I’m only 18 years old and becoming very frustrated and impatient, I would appreciate any kind of feedback.

[melvinkathlene]

I have to tell you I have the same thing, dejavu (sp) if I remember it it comes true later on. It is like a feeling like it has happened before and you don't actually see the things in reality it's in your head but it's familiar. I get the smell first, a chemical smell it's horrible, and my head feels weird and funny I feel panicy I want it to stop so bad but if I fight it it makes it worse. I know what you are saying. A lot of medicines don't help depending on what type of seizures you have. If you suffer from partial lobe many people don't get help from meds. I haven't I need surgery I have been on 20 some meds and been suffering with this over 20 years. Do you get sick afterwards and a very bad headache? Do you take other meds that may be contributing to this or making it worse? Do you have carbonmonoxide leak in your home? You need to find out.